Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 , I believe that someday, the person who opened their mouth without thinking or caring and made someone else feel bad for what they said will be in that position someday. What goes around comes around!!! It has to be the hardest thing in this world for your child to be subjected to crap that isn't necessary and we can't protect them from it. I often wonder about this very thing given the fact that I have two daughters and wonder whether they will have the joy of becoming a parent. My oldest daughter has just been married a year and she does not have cf, but she is a carrier. She has been off the pill since March and so far no luck. She has had some thyroid issues. Her monthly menses have always been normal even while on the pill. Since she has gone off, she has had several months with no menses. Has anyone else had any of these types of experiences? Tina W., mother of , 18 years old w/cf on Wednesday. I am so mad... The other night while tucking Josh 9 1/2 wcf into bed he said " Mom can I ask you something? " Of course I said yes. Well he says, is it true people w/cf can't have babies? I was floored. We are always honest with him about his disease. Okay maybe skewed towards the positive, but honest. I said to him why do you ask? Well low and hehold a little girl in his class, 4th grade, told him that people with CF can't have babies. She said her mother worked for a Dr, for 5 years and she knew it to be true. I just can't believe it. I felt so bad for him. Another thing to worry about. I told him that many wcf can't have babies but some can and that by the time he was ready to have a child I was sure that there would be a way. Then explained to him about invitro. Just what a 9 year old little boy want's to know or worry about. I have no way of knowing if the mom told this other child or she read it in a book. But why did she have to tell Josh. I know kids will be kids. I just needed to vent, URGH!!1 Thanks for listening Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 , True infertility might be present in men with cf but it is also true that he is only 9 years old and between now and when he is ready to have babies only the best can happen in that field. Also, even in " normal " people there is no guarantee that they can be fertile. Fertility is a problem of a lot of people and now more than ever. Tell him that nobody knows who can have children, if you are teaching him spiritual believes, tell him only God knows, nobody else. This is just my humble opinion, > The other night while tucking Josh 9 1/2 wcf into bed he said " Mom can I ask > you something? " Of course I said yes. Well he says, is it true people w/cf > can't have babies? I was floored. We are always honest with him about his > disease. Okay maybe skewed towards the positive, but honest. I said to him why > do you ask? Well low and hehold a little girl in his class, 4th grade, told > him that people with CF can't have babies. She said her mother worked for a > Dr, for 5 years and she knew it to be true. > > I just can't believe it. I felt so bad for him. Another thing to worry > about. I told him that many wcf can't have babies but some can and that by the > time he was ready to have a child I was sure that there would be a way. Then > explained to him about invitro. Just what a 9 year old little boy want's to > know or worry about. > > I have no way of knowing if the mom told this other child or she read it in a > book. But why did she have to tell Josh. I know kids will be kids. I just > needed to vent, URGH!!1 > > > Thanks for listening > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 her hormones need to be regulated agin as the pill makes them unbalanced. There is always a epriod witht he pill but its not a rel one it is hormonally induced. A course of vitex (chaste tree) tinture for 3-6 months will do the trick. 2.5mls every morning. O'Neill Medical herbalist New Zealand I am so mad... > > > The other night while tucking Josh 9 1/2 wcf into bed he said " Mom can I > ask > you something? " Of course I said yes. Well he says, is it true people w/cf > > can't have babies? I was floored. We are always honest with him about his > disease. Okay maybe skewed towards the positive, but honest. I said to him > why > do you ask? Well low and hehold a little girl in his class, 4th grade, told > > him that people with CF can't have babies. She said her mother worked for a > > Dr, for 5 years and she knew it to be true. > > I just can't believe it. I felt so bad for him. Another thing to worry > about. I told him that many wcf can't have babies but some can and that by > the > time he was ready to have a child I was sure that there would be a way. > Then > explained to him about invitro. Just what a 9 year old little boy want's to > > know or worry about. > > I have no way of knowing if the mom told this other child or she read it in > a > book. But why did she have to tell Josh. I know kids will be kids. I just > > needed to vent, URGH!!1 > > > Thanks for listening > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 I am not a regular on this list serve--too much to stay on top of and too little time!--but had to reply to this one as this is something I've thought a lot about PLUS heard a great story the other day. A woman at my church has a nephew with CF. He and his wife are pregnant, due to the wonders of modern day medicine. It was actually kinda funny the way the story was told to me by the uncle " The docs went in and sucked out the sperm " and then " mixed it up in a petri dish " (yes, very scientific explanation). Everything is going beautifully with the pregnancy. So.....YES, people with CF can be parents. (BTW--the Dad with CF is 29 years old and doing great if that's of interest) --Britta (mom to Ellie, 5, no CF, and Malin, 2 w/ CF) > The other night while tucking Josh 9 1/2 wcf into bed he said " Mom can I ask > you something? " Of course I said yes. Well he says, is it true people w/cf > can't have babies? I was floored. We are always honest with him about his > disease. Okay maybe skewed towards the positive, but honest. I said to him why > do you ask? Well low and hehold a little girl in his class, 4th grade, told > him that people with CF can't have babies. She said her mother worked for a > Dr, for 5 years and she knew it to be true. > > I just can't believe it. I felt so bad for him. Another thing to worry > about. I told him that many wcf can't have babies but some can and that by the > time he was ready to have a child I was sure that there would be a way. Then > explained to him about invitro. Just what a 9 year old little boy want's to > know or worry about. > > I have no way of knowing if the mom told this other child or she read it in a > book. But why did she have to tell Josh. I know kids will be kids. I just > needed to vent, URGH!!1 > > > Thanks for listening > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 Britta, As long as you don't try to paint our toe nails red, I kind of like just plain clear, you are all right, :-) I could not resist that one, lol, but you are a great source of CF information come visit more often. > > The other night while tucking Josh 9 1/2 wcf into bed he said " Mom > can I ask > > you something? " Of course I said yes. Well he says, is it true > people w/cf > > can't have babies? I was floored. We are always honest with him > about his > > disease. Okay maybe skewed towards the positive, but honest. I > said to him why > > do you ask? Well low and hehold a little girl in his class, 4th > grade, told > > him that people with CF can't have babies. She said her mother > worked for a > > Dr, for 5 years and she knew it to be true. > > > > I just can't believe it. I felt so bad for him. Another thing to > worry > > about. I told him that many wcf can't have babies but some can and > that by the > > time he was ready to have a child I was sure that there would be a > way. Then > > explained to him about invitro. Just what a 9 year old little boy > want's to > > know or worry about. > > > > I have no way of knowing if the mom told this other child or she > read it in a > > book. But why did she have to tell Josh. I know kids will be > kids. I just > > needed to vent, URGH!!1 > > > > > > Thanks for listening > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 She said her mother worked for a > Dr, for 5 years and she knew it to be true. > But why did she have to tell Josh. I know kids will be kids. I just > needed to vent, URGH!!1 > You really wonder sometimes don't you. I'd almost be mad enough to call the mother up and tell her what her daughter said and that perhaps in the future she ought to keep the medical knowlege to herself. (In a nice way of course)I haven't told my son about the life shortening aspects of CF yet. I was kind of waiting until he was 12-13ish but you wonder if someone will beat you to the punch. I have another for you. My son's " best " friend just told the entire bus he was adopted. I did tell his Nana in a casual conversation one day so just so she would know. Kids can be brutally honest. jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2003 Report Share Posted November 10, 2003 , I know how you feel. When my son (13 nocf) was in first grade some kids told him there was no such thing as Santa Claus. I was really upset! I was not ready for him to not beleive in Santa yet, and then some parent who believes that " it is wrong fill a childs mind with nonsense and lies " infringed on my beleifs. Of course this does not compare to a child with CF being told they can't have children, but it is on that same level. Boy did that p@#! me off! e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Ergh. I've been worrying about this because Ricky is constantly talking about how he wants to get married and have kids when he grows up. I know for a fact that Ricky *is* functionally sterile. When he had his double hernia repair at 5 months old, the surgeon found his vas deferens to be incomplete and told me about it quite regretfully. Well, I already knew this was a possibility so I wasn't too upset. But anyway, I haven't told him yet (he is only 7 years old, 8 this month) but if the question is asked of me, I will tell him the real answer. There are ways NOW that men with CF can father children (after all, they still make the sperm, it just can't get out) so I have hope for Ricky that it'll be even easier when he is grown up. I'm sorry your son had to find out that way! People can be so insensitive. Becky mom of Ricky 7 with CF and Andy 5 no CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Ok, let's see 1981, first successful invitro child was born in England, nowdays is routine work. In 22 years, I have a feeling that children are going to be conceived telepathically, oh God. Don't worry about that, had your child been 8 years old in 1980, what would have been the question or the answer? Sorry, but I just feel like children no matter what their physical condition may be, should not be worrying about fertility. Our children deal with so many issues that, I feel, that concern is neither here nor there. mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf > Ergh. I've been worrying about this because Ricky is constantly > talking about how he wants to get married and have kids when he > grows up. I know for a fact that Ricky *is* functionally sterile. > When he had his double hernia repair at 5 months old, the > surgeon found his vas deferens to be incomplete and told me > about it quite regretfully. Well, I already knew this was a possibility > so I wasn't too upset. But anyway, I haven't told him yet (he is only > 7 years old, 8 this month) but if the question is asked of me, I will > tell him the real answer. There are ways NOW that men with CF > can father children (after all, they still make the sperm, it just can't > get out) so I have hope for Ricky that it'll be even easier when he is > grown up. > > I'm sorry your son had to find out that way! People can be so > insensitive. > > Becky mom of Ricky 7 with CF and Andy 5 no CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Becky, also found out through double hernia a 7 month old that s vas defrens were incomplete and I remember the surgean saying something about something being clogged also but like you I knew before hand of the possiblity but it still made me sad. amy mom to nathan 2.5 with cf Re: I am so mad... Ergh. I've been worrying about this because Ricky is constantly talking about how he wants to get married and have kids when he grows up. I know for a fact that Ricky *is* functionally sterile. When he had his double hernia repair at 5 months old, the surgeon found his vas deferens to be incomplete and told me about it quite regretfully. Well, I already knew this was a possibility so I wasn't too upset. But anyway, I haven't told him yet (he is only 7 years old, 8 this month) but if the question is asked of me, I will tell him the real answer. There are ways NOW that men with CF can father children (after all, they still make the sperm, it just can't get out) so I have hope for Ricky that it'll be even easier when he is grown up. I'm sorry your son had to find out that way! People can be so insensitive. Becky mom of Ricky 7 with CF and Andy 5 no CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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