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Re: I am so mad...

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,

I believe that someday, the person who opened their mouth without thinking

or caring and made someone else feel bad for what they said will be in that

position someday. What goes around comes around!!! It has to be the

hardest thing in this world for your child to be subjected to crap that

isn't necessary and we can't protect them from it. I often wonder about

this very thing given the fact that I have two daughters and wonder whether

they will have the joy of becoming a parent. My oldest daughter has just

been married a year and she does not have cf, but she is a carrier. She has

been off the pill since March and so far no luck. She has had some thyroid

issues. Her monthly menses have always been normal even while on the pill.

Since she has gone off, she has had several months with no menses. Has

anyone else had any of these types of experiences?

Tina W., mother of , 18 years old w/cf on Wednesday.

I am so mad...

The other night while tucking Josh 9 1/2 wcf into bed he said " Mom can I

ask

you something? " Of course I said yes. Well he says, is it true people w/cf

can't have babies? I was floored. We are always honest with him about his

disease. Okay maybe skewed towards the positive, but honest. I said to him

why

do you ask? Well low and hehold a little girl in his class, 4th grade, told

him that people with CF can't have babies. She said her mother worked for a

Dr, for 5 years and she knew it to be true.

I just can't believe it. I felt so bad for him. Another thing to worry

about. I told him that many wcf can't have babies but some can and that by

the

time he was ready to have a child I was sure that there would be a way.

Then

explained to him about invitro. Just what a 9 year old little boy want's to

know or worry about.

I have no way of knowing if the mom told this other child or she read it in

a

book. But why did she have to tell Josh. I know kids will be kids. I just

needed to vent, URGH!!1

Thanks for listening

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,

True infertility might be present in men with cf but it is also true

that he is only 9 years old and between now and when he is ready to

have babies only the best can happen in that field. Also, even

in " normal " people there is no guarantee that they can be fertile.

Fertility is a problem of a lot of people and now more than ever.

Tell him that nobody knows who can have children, if you are teaching

him spiritual believes, tell him only God knows, nobody else.

This is just my humble opinion,

> The other night while tucking Josh 9 1/2 wcf into bed he said " Mom

can I ask

> you something? " Of course I said yes. Well he says, is it true

people w/cf

> can't have babies? I was floored. We are always honest with him

about his

> disease. Okay maybe skewed towards the positive, but honest. I

said to him why

> do you ask? Well low and hehold a little girl in his class, 4th

grade, told

> him that people with CF can't have babies. She said her mother

worked for a

> Dr, for 5 years and she knew it to be true.

>

> I just can't believe it. I felt so bad for him. Another thing to

worry

> about. I told him that many wcf can't have babies but some can and

that by the

> time he was ready to have a child I was sure that there would be a

way. Then

> explained to him about invitro. Just what a 9 year old little boy

want's to

> know or worry about.

>

> I have no way of knowing if the mom told this other child or she

read it in a

> book. But why did she have to tell Josh. I know kids will be

kids. I just

> needed to vent, URGH!!1

>

>

> Thanks for listening

>

>

>

>

>

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her hormones need to be regulated agin as the pill makes them unbalanced.

There is always a epriod witht he pill but its not a rel one it is

hormonally induced. A course of vitex (chaste tree) tinture for 3-6 months

will do the trick. 2.5mls every morning.

O'Neill

Medical herbalist

New Zealand

I am so mad...

>

>

> The other night while tucking Josh 9 1/2 wcf into bed he said " Mom can I

> ask

> you something? " Of course I said yes. Well he says, is it true people

w/cf

>

> can't have babies? I was floored. We are always honest with him about

his

> disease. Okay maybe skewed towards the positive, but honest. I said to

him

> why

> do you ask? Well low and hehold a little girl in his class, 4th grade,

told

>

> him that people with CF can't have babies. She said her mother worked for

a

>

> Dr, for 5 years and she knew it to be true.

>

> I just can't believe it. I felt so bad for him. Another thing to worry

> about. I told him that many wcf can't have babies but some can and that

by

> the

> time he was ready to have a child I was sure that there would be a way.

> Then

> explained to him about invitro. Just what a 9 year old little boy want's

to

>

> know or worry about.

>

> I have no way of knowing if the mom told this other child or she read it

in

> a

> book. But why did she have to tell Josh. I know kids will be kids. I

just

>

> needed to vent, URGH!!1

>

>

> Thanks for listening

>

>

>

>

>

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I am not a regular on this list serve--too much to stay on top of and

too little time!--but had to reply to this one as this is something

I've thought a lot about PLUS heard a great story the other day. A

woman at my church has a nephew with CF. He and his wife are

pregnant, due to the wonders of modern day medicine. It was actually

kinda funny the way the story was told to me by the uncle " The docs

went in and sucked out the sperm " and then " mixed it up in a petri

dish " (yes, very scientific explanation). Everything is going

beautifully with the pregnancy. So.....YES, people with CF can be

parents. (BTW--the Dad with CF is 29 years old and doing great if

that's of interest)

--Britta (mom to Ellie, 5, no CF, and Malin, 2 w/ CF)

> The other night while tucking Josh 9 1/2 wcf into bed he said " Mom

can I ask

> you something? " Of course I said yes. Well he says, is it true

people w/cf

> can't have babies? I was floored. We are always honest with him

about his

> disease. Okay maybe skewed towards the positive, but honest. I

said to him why

> do you ask? Well low and hehold a little girl in his class, 4th

grade, told

> him that people with CF can't have babies. She said her mother

worked for a

> Dr, for 5 years and she knew it to be true.

>

> I just can't believe it. I felt so bad for him. Another thing to

worry

> about. I told him that many wcf can't have babies but some can and

that by the

> time he was ready to have a child I was sure that there would be a

way. Then

> explained to him about invitro. Just what a 9 year old little boy

want's to

> know or worry about.

>

> I have no way of knowing if the mom told this other child or she

read it in a

> book. But why did she have to tell Josh. I know kids will be

kids. I just

> needed to vent, URGH!!1

>

>

> Thanks for listening

>

>

>

>

>

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Britta,

As long as you don't try to paint our toe nails red, I kind of like

just plain clear, you are all right, :-)

I could not resist that one, lol, but you are a great source of CF

information come visit more often.

> > The other night while tucking Josh 9 1/2 wcf into bed he said "

Mom

> can I ask

> > you something? " Of course I said yes. Well he says, is it true

> people w/cf

> > can't have babies? I was floored. We are always honest with him

> about his

> > disease. Okay maybe skewed towards the positive, but honest. I

> said to him why

> > do you ask? Well low and hehold a little girl in his class, 4th

> grade, told

> > him that people with CF can't have babies. She said her mother

> worked for a

> > Dr, for 5 years and she knew it to be true.

> >

> > I just can't believe it. I felt so bad for him. Another thing

to

> worry

> > about. I told him that many wcf can't have babies but some can

and

> that by the

> > time he was ready to have a child I was sure that there would be

a

> way. Then

> > explained to him about invitro. Just what a 9 year old little

boy

> want's to

> > know or worry about.

> >

> > I have no way of knowing if the mom told this other child or she

> read it in a

> > book. But why did she have to tell Josh. I know kids will be

> kids. I just

> > needed to vent, URGH!!1

> >

> >

> > Thanks for listening

> >

> >

> >

> >

> >

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She said her mother worked for a

> Dr, for 5 years and she knew it to be true.

>

But why did she have to tell Josh. I know kids will be kids. I just

> needed to vent, URGH!!1

>

You really wonder sometimes don't you. I'd almost be mad enough to

call the mother up and tell her what her daughter said and that

perhaps in the future she ought to keep the medical knowlege to

herself. (In a nice way of course)I haven't told my son about the

life shortening aspects of CF yet. I was kind of waiting until he was

12-13ish but you wonder if someone will beat you to the punch.

I have another for you. My son's " best " friend just told the entire

bus he was adopted. I did tell his Nana in a casual conversation one

day so just so she would know. Kids can be brutally honest.

jan

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,

I know how you feel. When my son (13 nocf) was in first grade some

kids told him there was no such thing as Santa Claus. I was really

upset! I was not ready for him to not beleive in Santa yet, and then

some parent who believes that " it is wrong fill a childs mind with

nonsense and lies " infringed on my beleifs. Of course this does not

compare to a child with CF being told they can't have children, but

it is on that same level. Boy did that p@#! me off!

e

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Ergh. I've been worrying about this because Ricky is constantly

talking about how he wants to get married and have kids when he

grows up. I know for a fact that Ricky *is* functionally sterile. :(

When he had his double hernia repair at 5 months old, the

surgeon found his vas deferens to be incomplete and told me

about it quite regretfully. Well, I already knew this was a possibility

so I wasn't too upset. But anyway, I haven't told him yet (he is only

7 years old, 8 this month) but if the question is asked of me, I will

tell him the real answer. There are ways NOW that men with CF

can father children (after all, they still make the sperm, it just can't

get out) so I have hope for Ricky that it'll be even easier when he is

grown up.

I'm sorry your son had to find out that way! People can be so

insensitive. :(

Becky mom of Ricky 7 with CF and Andy 5 no CF

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Ok, let's see 1981, first successful invitro child was born in

England, nowdays is routine work. In 22 years, I have a feeling that

children are going to be conceived telepathically, oh God. Don't

worry about that, had your child been 8 years old in 1980, what

would have been the question or the answer?

Sorry, but I just feel like children no matter what their physical

condition may be, should not be worrying about fertility. Our

children deal with so many issues that, I feel, that concern is

neither here nor there.

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> Ergh. I've been worrying about this because Ricky is constantly

> talking about how he wants to get married and have kids when he

> grows up. I know for a fact that Ricky *is* functionally

sterile. :(

> When he had his double hernia repair at 5 months old, the

> surgeon found his vas deferens to be incomplete and told me

> about it quite regretfully. Well, I already knew this was a

possibility

> so I wasn't too upset. But anyway, I haven't told him yet (he is

only

> 7 years old, 8 this month) but if the question is asked of me, I

will

> tell him the real answer. There are ways NOW that men with CF

> can father children (after all, they still make the sperm, it just

can't

> get out) so I have hope for Ricky that it'll be even easier when he

is

> grown up.

>

> I'm sorry your son had to find out that way! People can be so

> insensitive. :(

>

> Becky mom of Ricky 7 with CF and Andy 5 no CF

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Becky,

also found out through double hernia a 7 month old that s vas defrens were

incomplete and I remember the surgean saying something about something being

clogged also but like you I knew before hand of the possiblity but it still made

me sad.

amy mom to nathan 2.5 with cf

Re: I am so mad...

Ergh. I've been worrying about this because Ricky is constantly

talking about how he wants to get married and have kids when he

grows up. I know for a fact that Ricky *is* functionally sterile. :(

When he had his double hernia repair at 5 months old, the

surgeon found his vas deferens to be incomplete and told me

about it quite regretfully. Well, I already knew this was a possibility

so I wasn't too upset. But anyway, I haven't told him yet (he is only

7 years old, 8 this month) but if the question is asked of me, I will

tell him the real answer. There are ways NOW that men with CF

can father children (after all, they still make the sperm, it just can't

get out) so I have hope for Ricky that it'll be even easier when he is

grown up.

I'm sorry your son had to find out that way! People can be so

insensitive. :(

Becky mom of Ricky 7 with CF and Andy 5 no CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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