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What a great idea!

Packard Children's Hospital (Stanford) has the various sizes of Exacta-Med

oral syringes for $.50 apiece. Best price I've seen around here so far. At

Walgreen's they are $1.99!!! but there they come with a handy

plugger/stopper/dispenser for the bottle.

Becky , mom of Ricky 7 with CF and Andy 5 no CF

Price Watcher List

I had an idea that as a group we should try to maintain a price list of

common things we need to purchase.

Since my son is young, I can list the items that I'm interested in finding

the best price on, and where I last purchased them. Most of the items I'm

listing below are not covered by my insurance.

Would anyone else care to add to or update it? Is there something else out

there that makes your life and your child's life easier.

Oral Syringes

Exacta-med - I can't find these at a good price

Children's Hospital St. Louis - $.25 a piece

Kendall Mono Jet - 3 ML oral syringes with tip cap

Purchased from: Health Related Products

500 per case = about $.12

Medicine Cups * Used for apple sauce and enzymes

2 OZ cups Sam's Club Store - Lids are also available

Nestle Additions

Food additive:

~ $100 for a case of 4 cans direct from Nestle

~$38 plus shipping from Apria

I'd like to order from Nestle and split the case with another

family or two - Near St. Louis

Pedi-a-Sure

We purchased at our local Target until they stopped carrying it

6 Cans - at about $1.65 per can

Nebulizers

Pari-ProNeb Ultra - 5 year warranty

www.americanallergysupply.com <http://www.americanallergysupply.com/>

$94.90

Pari-ProNeb Ultra - 3 year warranty

www.americanallergysupply.com <http://www.americanallergysupply.com/>

$88.90

http://www.respertise.com/pronebultra.html $98.25

www.ebay.com <http://www.ebay.com/> - Some have been listed New in Box for

around $50

Pari-ProNeb Filters - Set of 5

www.americanallergysupply.com

<http://www.americanallergysupply.com/> $15.00

Nebulizer Kits

*I only use Pari Pro Neb LC

Pari ProNeb LC -

www.americanallergysupply.com <http://www.americanallergysupply.com/>

$14.90 (They've never asked for a script)

http://www.cfservicespharmacy.com/about_cf_services/price_list/ $11.00

(Requires a Script)

Grandma Bev's Pharmacy $11.00

Nebulizer Mask

Bubbles the fish

www.americanallergysupply.com

<http://www.americanallergysupply.com/> $2.00

http://www.respertise.com/bubfisaerped.html $1.75

Grandma Bev Pharmacy $1.45

Control III

Grandma Bev's Pharmacy 240ML $15.45

PT Cups

I get them from Clinic - No Cost

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We get our Exacta-med syringes from Baxa corp, but they are almost

$.27 a piece.

What is Nestle AdditionsFood additive? We might be interested in

splitting this with you. Is it like Scandishake or Scandical?

We get our medicine cups from Sams too.

We buy Pediasure at Walgreens. Not cheap, but they carry the fiber

ones.

Thanks for the info on the Bubbles the Fish mask and Control III.

We want to get a mask but our home health care company says they do

not carry it. I will just order one.

It is almost as if someone needs to give a parent of a newly

diagnosed cf child a supplies list, just like they do when you start

school each year. It is so hard to track all of this stuff down on

your own. So much trial and error.

Thanks for the great info. I will pass on your e-mail to my

husband. I know you guys met at the CFF event. He doesn't post on

the list, but reads the digests occasionally.

How is your son doing?

Sara - mommy of Zach 21 months soon

> I had an idea that as a group we should try to maintain a price

list of

> common things we need to purchase.

>

> Since my son is young, I can list the items that I'm interested in

finding

> the best price on, and where I last purchased them. Most of the

items I'm

> listing below are not covered by my insurance.

>

> Would anyone else care to add to or update it? Is there something

else out

> there that makes your life and your child's life easier.

>

>

> Oral Syringes

>

> Exacta-med - I can't find these at a good price

> Children's Hospital St. Louis - $.25 a piece

>

> Kendall Mono Jet - 3 ML oral syringes with tip cap

> Purchased from: Health Related Products

> 500 per case = about $.12

>

> Medicine Cups * Used for apple sauce and enzymes

>

> 2 OZ cups Sam's Club Store - Lids are also available

>

> Nestle Additions

> Food additive:

> ~ $100 for a case of 4 cans direct from Nestle

>

> ~$38 plus shipping from Apria

>

> I'd like to order from Nestle and split the case with

another

> family or two - Near St. Louis

>

> Pedi-a-Sure

>

> We purchased at our local Target until they stopped

carrying it

> 6 Cans - at about $1.65 per can

>

> Nebulizers

>

> Pari-ProNeb Ultra - 5 year warranty

> www.americanallergysupply.com

<http://www.americanallergysupply.com/>

> $94.90

>

> Pari-ProNeb Ultra - 3 year warranty

> www.americanallergysupply.com

<http://www.americanallergysupply.com/>

> $88.90

> http://www.respertise.com/pronebultra.html $98.25

> www.ebay.com <http://www.ebay.com/> - Some have been listed New

in Box for

> around $50

>

> Pari-ProNeb Filters - Set of 5

> www.americanallergysupply.com

> <http://www.americanallergysupply.com/> $15.00

>

>

> Nebulizer Kits

>

> *I only use Pari Pro Neb LC

> Pari ProNeb LC -

> www.americanallergysupply.com

<http://www.americanallergysupply.com/>

> $14.90 (They've never asked for a script)

> http://www.cfservicespharmacy.com/about_cf_services/price_list/

$11.00

> (Requires a Script)

> Grandma Bev's Pharmacy $11.00

>

>

> Nebulizer Mask

>

> Bubbles the fish

> www.americanallergysupply.com

> <http://www.americanallergysupply.com/> $2.00

> http://www.respertise.com/bubfisaerped.html $1.75

> Grandma Bev Pharmacy $1.45

>

> Control III

>

> Grandma Bev's Pharmacy 240ML $15.45

>

>

> PT Cups

>

> I get them from Clinic - No Cost

>

>

>

>

>

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Share on other sites

> What a great idea!

>

> Packard Children's Hospital (Stanford) has the various sizes of

Exacta-Med

> oral syringes for $.50 apiece. Best price I've seen around here

so far. At

> Walgreen's they are $1.99!!! but there they come with a handy

> plugger/stopper/dispenser for the bottle.

>

> Becky , mom of Ricky 7 with CF and Andy 5 no CF

>

Ok here are some updates from email. Please email me at

vaughn1@... if you want to add to the list.

Oral Syringes

Exacta-med –

Most Pharmacy's - $.25 - $.50 a piece

Wal-Greens with Bottle Topper - $1.99

www.baxa.com $30 for 100

Kendall Mono Jet – 3 ML oral syringes with tip cap

Health Related Products 800/845-4566 $54.00 per case of 500 plus

7.99 shipping

Medicine Cups * Used for apple sauce and enzymes

2 OZ cups Sam's Club Store – Lids are also available

Nestle Additions

Food additive:

~ $100 for a case of 4 cans direct from Nestle

~ $38 plus shipping for 1 can from Apria

I'd like to order from Nestle and split the case with another

family or two – Near St. Louis

Pedi-a-Sure

We purchased at our local Target until they stopped carrying it

6 Cans – at about $1.65 per can

Nebulizers

Pari-ProNeb Ultra - 5 year warranty

www.americanallergysupply.com $94.90

www.medichest.com/Relay.asp $82.32

www.allergysolution.com/Asthma.htm $89.95

www.americarx.com $83.32

Pari-ProNeb Ultra – 3 year warranty

www.americanallergysupply.com $88.90

www.respertise.com/pronebultra.html $98.25

www.ebay.com – Some have been listed New in Box for around $50

Pari-ProNeb Filters –

www.americanallergysupply.com Set of 5 $15.00

www.natlallergy.com 1 @ $2.99

www.allergysolution.com/Asthma.htm 4 @ $11.95

Nebulizer Kits

Pari ProNeb LC –

www.americanallergysupply.com $14.90 (They've never asked for

a script)

www.cfservicespharmacy.com/about_cf_services/price_list/ $11.00

(Requires a Script)

www.allergysolution.com/Asthma.htm $14.95

Grandma Bev's Pharmacy $11.00

Nebulizer Mask

Bubbles the fish

www.americanallergysupply.com $2.00

www.respertise.com/bubfisaerped.html $1.75

Grandma Bev Pharmacy $1.45

www.americarx.com $1.33

Control III

Grandma Bev's Pharmacy 240ML $15.45

www.allergysolution.com/Asthma.htm 8OZ 11.95

PT Cups

I get them from Clinic – No Cost

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We have switched to Wal-Mart's brand of pedia-sure made by their parent's choice

company. The last time I checked it had all of the same cal/fat/ and nutrients

of pediasure at only $7.25 a six pack instead of the $11 we pay for pediasure.

As an added bonus, Patti thinks it tastes better. (It sure does smell better

anyway.)

Dawn mom of 4, 7 and under, the youngest wcf

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This is a fantastic idea, price watcher list. But nice to know that

walmart has a brand of Pediasure, thanks, I can find it here

sometimes on sale for 9.99 but 7.25, it sure is better. Thank you

again Dawn! Thank you , too for the grat idea!

> We have switched to Wal-Mart's brand of pedia-sure made by their

parent's choice company. The last time I checked it had all of the

same cal/fat/ and nutrients of pediasure at only $7.25 a six pack

instead of the $11 we pay for pediasure.

>

> As an added bonus, Patti thinks it tastes better. (It sure does

smell better anyway.)

>

> Dawn mom of 4, 7 and under, the youngest wcf

>

>

>

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This is such a fantastic brainstorm! I like your idea so much, that

I've created a database on the cfparents group site where members

can enter information so that it's all in a table at one location.

This will (hopefully) make it easier to find the information when we

need it.

You can put information in by going to

http://health.groups.yahoo.com/cfparents/

and clicking on " Database " in the left-side column.

Then click the title " Price Watcher List "

From that page you should be able to " add a record. "

After you enter the info for each field and submit the record, Yahoo

(predictably) displays an error message. Don't panic, though,

because I put in the first record and got an error message, too, but

it showed up in the database anyway. :)

If we keep records this way, it should make a nice little database

of best deals on our frequently purchased supplies.

I may have made this sound much more complicated than it actually

is. I encourage anyone with Price Watcher info to go try putting it

in as described above. It's really simple.

Let me know what you think!

~ Albright

mommy to 3, the youngest with cf

> I had an idea that as a group we should try to maintain a price

list of

> common things we need to purchase.

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  • 2 months later...

After listening to the webcast " avoiding germs " I am wondering what's

the most cost effective/cheapest hand solutions for home use? I am

looking for those they have in hospitals to kill bacteria in the

hands. Seems to me that we should all be buying wholesale...

> > What a great idea!

> >

> > Packard Children's Hospital (Stanford) has the various sizes of

> Exacta-Med

> > oral syringes for $.50 apiece. Best price I've seen around here

> so far. At

> > Walgreen's they are $1.99!!! but there they come with a handy

> > plugger/stopper/dispenser for the bottle.

> >

> > Becky , mom of Ricky 7 with CF and Andy 5 no CF

> >

>

> Ok here are some updates from email. Please email me at

> vaughn1@c... if you want to add to the list.

>

> Oral Syringes

> Exacta-med –

> Most Pharmacy's - $.25 - $.50 a piece

> Wal-Greens with Bottle Topper - $1.99

> www.baxa.com $30 for 100

>

> Kendall Mono Jet – 3 ML oral syringes with tip cap

> Health Related Products 800/845-4566 $54.00 per case of 500

plus

> 7.99 shipping

>

>

> Medicine Cups * Used for apple sauce and enzymes

>

> 2 OZ cups Sam's Club Store – Lids are also available

>

> Nestle Additions

> Food additive:

> ~ $100 for a case of 4 cans direct from Nestle

> ~ $38 plus shipping for 1 can from Apria

> I'd like to order from Nestle and split the case with another

> family or two – Near St. Louis

>

> Pedi-a-Sure

> We purchased at our local Target until they stopped carrying it

> 6 Cans – at about $1.65 per can

>

> Nebulizers

> Pari-ProNeb Ultra - 5 year warranty

> www.americanallergysupply.com $94.90

> www.medichest.com/Relay.asp $82.32

> www.allergysolution.com/Asthma.htm $89.95

> www.americarx.com $83.32

>

> Pari-ProNeb Ultra – 3 year warranty

> www.americanallergysupply.com $88.90

> www.respertise.com/pronebultra.html $98.25

> www.ebay.com – Some have been listed New in Box for around $50

>

> Pari-ProNeb Filters –

> www.americanallergysupply.com Set of 5 $15.00

> www.natlallergy.com 1 @ $2.99

> www.allergysolution.com/Asthma.htm 4 @ $11.95

>

> Nebulizer Kits

> Pari ProNeb LC –

> www.americanallergysupply.com $14.90 (They've never asked for

> a script)

> www.cfservicespharmacy.com/about_cf_services/price_list/ $11.00

> (Requires a Script)

> www.allergysolution.com/Asthma.htm $14.95

> Grandma Bev's Pharmacy $11.00

>

> Nebulizer Mask

> Bubbles the fish

> www.americanallergysupply.com $2.00

> www.respertise.com/bubfisaerped.html $1.75

> Grandma Bev Pharmacy $1.45

> www.americarx.com $1.33

>

> Control III

> Grandma Bev's Pharmacy 240ML $15.45

> www.allergysolution.com/Asthma.htm 8OZ 11.95

>

> PT Cups

> I get them from Clinic – No Cost

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