Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Mel, I felt the same way about thinking there was more that I could have done. My doctor just kept telling me to do more tummy time and keep him up off his head, but none of these things worked for us. We spent the summer traveling to visit family and no one thought anything of his head shape, except my husband's cousin. Because of her it wasn't such a shock. Although when we ended up going to Cranial Tech we still couldn't believe that Joe's head was really bad enough for the band. My dad still thinks that Joe doesn't need the band and that he can just massage his head to be correct (of course my father has no medical training!). I absolutely think that some kids are predisposed and there's nothing you can really do. We are just like you and did everything all the other parents did and we are the only ones that had to band our baby. Joe's been in his band for a little over a week and we're already seeing results, which is really starting to make everything well worth it. I think the entire process is much harder on the parents than the babies-my baby could care less he's got his band on:) Good luck! Mom to ph 5 monthes DOC Band-1 1/2 weeks > > Hello all! It is so good to see others with the same situations and struggles. I have a 2.5 year old girl and a 3.5 month old boy. My son has been developing plagiocephaly since about 1.5 months. I really started trying repositioning techniques at 2 months, but have not seen any major improvements at all. Do you think some kids are just pre-disposed to this? I get mad sometimes because I know that I haven't done much different from other moms and wonder why I am the on dealing with the issue. I have tried to follow the doctors orders and do 3 ten minute tummy times daily, but we usually just get in two because he has never really gotten used to them, he might do well for 4 minutes but then spends the next 6 screaming murder into the pillow. Now that he is a little stronger he won't even stay on his stomach for tummy time, he tries everything he can including climbing over the pillow to roll over. It is very frustrating. > > I have been doing the following for almost 2 months now: > -using the boppy noggin nest when he is on his back playing or in the swing or bouncy seat. > -time in the bumbo > -wear him in a moby wrap whenever possible > -tummy time > -switch ends of the crib everytime he goes down > -nurse on both sides > > So I really feel like I have done a lot of try to fix this, so I have come to the point that I think we are going to have to do a helmet. I was so depressed about it this weekend, thinking that if I had of just tryed harder then we wouldn't be here! But i have had to just give it up and realize it is what it is. > > Do you all face a lot of people who are like, " Oh it doesn't look that bad! " ? When you know that it is lopsided. Do you think people really don't notice or are they just being nice. My doctor said it was definately noticable and moderate. > > Anyways, enough rambling! Thanks for all your input and support as we navigate this. We will be making the appointment with CT in a few weeks. > > Mel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Hi Mel, My husband and I grew concerned by the time our daughter was one month old, and we also tried repositioning her head, more tummy time, I nursed on both sides, and also made her teachers at the daycare center aware of the situation. We even repositioned her head after she fell asleep, but it got worse anyway. Dr. said we could have been " more aggressive " but I feel we all really tried. He also said part of it is just her being stubborn! We have an appt coming up with the specialist to find out more about her degree of plagio and what the next step is. Thank you for sharing how you feel because I am new to all of this too, and it's nice to hear some feedback! Wish us luck, and good luck to you! *Bean* > > > > Hello all! It is so good to see others with the same situations and struggles. I have a 2.5 year old girl and a 3.5 month old boy. My son has been developing plagiocephaly since about 1.5 months. I really started trying repositioning techniques at 2 months, but have not seen any major improvements at all. Do you think some kids are just pre-disposed to this? I get mad sometimes because I know that I haven't done much different from other moms and wonder why I am the on dealing with the issue. I have tried to follow the doctors orders and do 3 ten minute tummy times daily, but we usually just get in two because he has never really gotten used to them, he might do well for 4 minutes but then spends the next 6 screaming murder into the pillow. Now that he is a little stronger he won't even stay on his stomach for tummy time, he tries everything he can including climbing over the pillow to roll over. It is very frustrating. > > > > I have been doing the following for almost 2 months now: > > -using the boppy noggin nest when he is on his back playing or in the swing or bouncy seat. > > -time in the bumbo > > -wear him in a moby wrap whenever possible > > -tummy time > > -switch ends of the crib everytime he goes down > > -nurse on both sides > > > > So I really feel like I have done a lot of try to fix this, so I have come to the point that I think we are going to have to do a helmet. I was so depressed about it this weekend, thinking that if I had of just tryed harder then we wouldn't be here! But i have had to just give it up and realize it is what it is. > > > > Do you all face a lot of people who are like, " Oh it doesn't look that bad! " ? When you know that it is lopsided. Do you think people really don't notice or are they just being nice. My doctor said it was definately noticable and moderate. > > > > Anyways, enough rambling! Thanks for all your input and support as we navigate this. We will be making the appointment with CT in a few weeks. > > > > Mel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 We were the same way. My pedi would just say " lots more tummy time! " and look at me like I left her lying around on her back all day long, whereas in reality I tried to keep her off her back any time she was awake and even had her napping on her side or tummy (if I could stay in the room with her), and it just didn't help. I'd go in at night and try to move her head or prop her off of her flat spot, but she'd just wiggle until she was comfortable again. Because she has torticollis, every time she went to sleep her head would go into the exact same position. That's just what was comfortable for her. All the doc said about that was " she can't turn her head to the right, " so I dropped the exercises after a few days because she *could* turn her head to the right (and eventually changed doctors -- I need more than sound bites for medical advice). I was doing everything I could, but it wasn't making any difference. Maybe more neck exercises earlier would have helped, but maybe not. But two months of constant diligence and worry got me nowhere. In fact, it was just getting progressively worse. I probably was a lot more aware of the shape of her head than others. Most people were telling me not to worry, that it would round out when she started sitting up more. But I was already starting to feel like people were wondering what was wrong with her head before we got the helmet, so I figured if I was going to be a little self-conscious about it anyway, she might as well be wearing the helmet. The funny thing was, I got used to her wearing it right away and never thought to look around and see how other people were reacting to it. If anything, I get more people telling me she's cute because if they stare at her, she'll flirt with them. Some people ask, but most don't, and a lot of people say that their niece or nephew needed a helmet, too. Also, after the evaluation, when it became clear that it was something she needed and not something she might need, I suddenly would have done just about anything to get it for her instead of trying to do just about anything to keep her out of it. It's amazing how your focus shifts. But the best part of it is, I can stop worrying. We do her exercises and lots of tummy time still, but I can lay her on her back or put her in the carseat and go somewhere without feeling like I'm making it worse. It is such a relief. > > > > Hello all! It is so good to see others with the same situations and struggles. I have a 2.5 year old girl and a 3.5 month old boy. My son has been developing plagiocephaly since about 1.5 months. I really started trying repositioning techniques at 2 months, but have not seen any major improvements at all. Do you think some kids are just pre-disposed to this? I get mad sometimes because I know that I haven't done much different from other moms and wonder why I am the on dealing with the issue. I have tried to follow the doctors orders and do 3 ten minute tummy times daily, but we usually just get in two because he has never really gotten used to them, he might do well for 4 minutes but then spends the next 6 screaming murder into the pillow. Now that he is a little stronger he won't even stay on his stomach for tummy time, he tries everything he can including climbing over the pillow to roll over. It is very frustrating. > > > > I have been doing the following for almost 2 months now: > > -using the boppy noggin nest when he is on his back playing or in the swing or bouncy seat. > > -time in the bumbo > > -wear him in a moby wrap whenever possible > > -tummy time > > -switch ends of the crib everytime he goes down > > -nurse on both sides > > > > So I really feel like I have done a lot of try to fix this, so I have come to the point that I think we are going to have to do a helmet. I was so depressed about it this weekend, thinking that if I had of just tryed harder then we wouldn't be here! But i have had to just give it up and realize it is what it is. > > > > Do you all face a lot of people who are like, " Oh it doesn't look that bad! " ? When you know that it is lopsided. Do you think people really don't notice or are they just being nice. My doctor said it was definately noticable and moderate. > > > > Anyways, enough rambling! Thanks for all your input and support as we navigate this. We will be making the appointment with CT in a few weeks. > > > > Mel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Thanks so much ladies for sharing your similar thoughts...sometime I feel so obsessed about it all, and that no one really understands. I wanted to say that I totally agree with the last reply about worrying all the time while they are on their back. I try not to have him laying down much other than to sleep, but Saturday for instance we went on a short local road trip and the whole time I have this guilt in the back of my mind that he is on the back of his head! I can't wait to get the band so that i can stop feeling that way! > > Hello all! It is so good to see others with the same situations and struggles. I have a 2.5 year old girl and a 3.5 month old boy. My son has been developing plagiocephaly since about 1.5 months. I really started trying repositioning techniques at 2 months, but have not seen any major improvements at all. Do you think some kids are just pre-disposed to this? I get mad sometimes because I know that I haven't done much different from other moms and wonder why I am the on dealing with the issue. I have tried to follow the doctors orders and do 3 ten minute tummy times daily, but we usually just get in two because he has never really gotten used to them, he might do well for 4 minutes but then spends the next 6 screaming murder into the pillow. Now that he is a little stronger he won't even stay on his stomach for tummy time, he tries everything he can including climbing over the pillow to roll over. It is very frustrating. > > I have been doing the following for almost 2 months now: > -using the boppy noggin nest when he is on his back playing or in the swing or bouncy seat. > -time in the bumbo > -wear him in a moby wrap whenever possible > -tummy time > -switch ends of the crib everytime he goes down > -nurse on both sides > > So I really feel like I have done a lot of try to fix this, so I have come to the point that I think we are going to have to do a helmet. I was so depressed about it this weekend, thinking that if I had of just tryed harder then we wouldn't be here! But i have had to just give it up and realize it is what it is. > > Do you all face a lot of people who are like, " Oh it doesn't look that bad! " ? When you know that it is lopsided. Do you think people really don't notice or are they just being nice. My doctor said it was definately noticable and moderate. > > Anyways, enough rambling! Thanks for all your input and support as we navigate this. We will be making the appointment with CT in a few weeks. > > Mel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Hi Mel, I think exactly the same thing: What did I do differently or didn't do to cause or not prevent this? I do think some kids are predisposed: tort, in utero position or lack of space, weight, swaddling, etc. I have 2 friends who have babies around the same age and their heads are so perfect. And I clearly remember them leaving them in their car seats and strollers and bouncy seats just as much as I did, if not more frequently. All we can do is be thankful that we have been given the choice to do something. I have met many parents/grandparents who saw Luke's helmet and after explaining to them what it was for, they said, " My son/granchild has a flat/lopsided head. I didn't know there was anything that could be done. " It sounds to me like you are doing everything you possibly could be doing to help your son. There was not one person I knew or met that said my son had a problem. However, after seeing the results from banding, numerous people said, " He definitely needed that helmet! " Luke, 10 months old STARband grad NYC > > Hello all! It is so good to see others with the same situations and struggles. I have a 2.5 year old girl and a 3.5 month old boy. My son has been developing plagiocephaly since about 1.5 months. I really started trying repositioning techniques at 2 months, but have not seen any major improvements at all. Do you think some kids are just pre-disposed to this? I get mad sometimes because I know that I haven't done much different from other moms and wonder why I am the on dealing with the issue. I have tried to follow the doctors orders and do 3 ten minute tummy times daily, but we usually just get in two because he has never really gotten used to them, he might do well for 4 minutes but then spends the next 6 screaming murder into the pillow. Now that he is a little stronger he won't even stay on his stomach for tummy time, he tries everything he can including climbing over the pillow to roll over. It is very frustrating. > > I have been doing the following for almost 2 months now: > -using the boppy noggin nest when he is on his back playing or in the swing or bouncy seat. > -time in the bumbo > -wear him in a moby wrap whenever possible > -tummy time > -switch ends of the crib everytime he goes down > -nurse on both sides > > So I really feel like I have done a lot of try to fix this, so I have come to the point that I think we are going to have to do a helmet. I was so depressed about it this weekend, thinking that if I had of just tryed harder then we wouldn't be here! But i have had to just give it up and realize it is what it is. > > Do you all face a lot of people who are like, " Oh it doesn't look that bad! " ? When you know that it is lopsided. Do you think people really don't notice or are they just being nice. My doctor said it was definately noticable and moderate. > > Anyways, enough rambling! Thanks for all your input and support as we navigate this. We will be making the appointment with CT in a few weeks. > > Mel > Quote Link to comment Share on other sites More sharing options...
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