Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Dear n, You shouldn't write such nice things like that. Really it is everyone on the lists that jump in ----you included , all the time to try to help each other in one way or the other. Yes, It has happened before & you were right there helping someone as well. That's why it is a great support group. with the Milan Fdn. helped too-- The r4stars.org group is wonderful . i have been trying to get all of you all with $$ problems..pertaining to a CF person in your family to go to their site wwwr4stars.com or reach for the stars foundation in a search block. they are in Fl. & have been doing this about 2 years. We have been serving their young gal since she was a wee one..........They have a wonderful group ....lots of support. Levy (wife of Levy) is being presented an award from Boomer Eiasion this week at a gala for her volunteer work. I am not sure how long ago I posted to you all -----4 lists . someone could check the archives, BUT they are their to help. Brain called me and asked if I would remind you again. Becky is a great example of how they really can help. If a spouse (the bread winner) looses a job....contact them. If your co pays balances are way to large.....contact them.........I you don't have insurance----or your insurance wont cover something you NEED, contact them. (I did mention that in previous post -last month or so ). I will be helping at a fund raiser /Ed day in Miami on May 1 with , etc. Anyone in that area , will be invited to attend. The process of speakers is activated now. I think so far there are 4 lined up ///Others too will be schedule. When it is all together I'll post . REMEMBER the answer is NO , if you never ask................. If you want to call me about them, do so . 1- . OR, just go to their web site...they have ALL their info . Rosemary, remember our favorite doc Jack Gorvy?? They did one of their first fund raiser in his honor with a gala in his honor.......... MARION, thank you for your sweet words , as always LOVE & HUGS< GrandmOMBEV new news http://www.cristina.org/ The phone number was correct, and Rosemary is a love to send this to us; Bev, as usual, is right on--thank you, Rosemary! Love to this organisation, Bev and our OWN ROSEMARY! n--so go ahead, women--be embarrassed--too bad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Bev, privately, I thanked and everyone I could, too, honest! Still, you are just special, that's it! Love, n new news http://www.cristina.org/ The phone number was correct, and Rosemary is a love to send this to us; Bev, as usual, is right on--thank you, Rosemary! Love to this organisation, Bev and our OWN ROSEMARY! n--so go ahead, women--be embarrassed--too bad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 I called my old doctor from NY so that he could talk to my doctors here in IA. My ARNP is supposed to call me tomorrow or friday to let me know what they discussed and came up with. I am hoping that they can figure out something to do for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 I will pray that the news you get will be good news and that you will finally have the answer to all your questions. Just knowing what is going on and the options available can do so much to reduce the stress. Please keep us informed and good luck. Warmly, Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 , That sounds like good news. I hope they all get their heads together after reviewing your records and come up with a good plan for you. Keep us up to date on what you find out. With love, hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI Note: All advice or comments are based on personal experience or opinion, and should not be substituted for consultation with a medical professional. Quote Link to comment Share on other sites More sharing options...
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