Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 In a message dated 08/05/2002 6:22:58 PM Central Daylight Time, Rpolychondritis writes: 13 Date: Mon, 5 Aug 2002 11:05:45 -0700 (PDT) Subject: Energy Levels About energy levels, I am pretty sure my relative lack of energy is due to the rp, not the meds. I was ill for quite a long time before rp was diagnosed (during which time I have since found out, a lot of my friends thought I was not long for this world!) anyway I had NO energy, I felt tired all the time. Mind you, I was having breathing problems all the time! However since I have been on methotrexate I have felt SO much better. Imuran I found did make me tired. Since I added plaquenil to the metho/pred mix I can stay pretty well all week. Metho by itself seems to run out a couple of days before the day I take the next dose. High doses of pred do give you higher levels of energy so when you drop down your body takes time to adjust. It does take quite a time to get the meds right, I think and because we are different there is no exact combination. Actually, I feel really blessed that approaching 60 I feel 100 percent better than when approaching 50!!! Liz, See? I KNEW you'd shed some light on this problem. I, too, was tired YEARS before being diagnosed with RP. I kept telling the doctors there was something wrong. Now, I'm on Imuran and STILL really tired. Dr. Buckner suggested Methotrexate, but I've heard it makes you really sick, so I would think that would not be a good thing. I, also, am approaching 60 but I don't think I'm feeling better than when I approached 50. Can anyone on Imuran answer this for me? I take two tablets daily. Do you ever get to a point where you can start lowering the dosage? Or do you pretty much have to stay at the dosage where you are? Clear as mud? Thanks for your input. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 > Liz, > See? I KNEW you'd shed some light on this problem. > I, too, was tired YEARS > before being diagnosed with RP. I kept telling the > doctors there was > something wrong. Now, I'm on Imuran and STILL > really tired. Dr. Buckner > suggested Methotrexate, but I've heard it makes you > really sick, so I would > think that would not be a good thing. I, also, am > approaching 60 but I don't > think I'm feeling better than when I approached 50. > > Can anyone on Imuran answer this for me? I take two > tablets daily. Do you > ever get to a point where you can start lowering the > dosage? Or do you > pretty much have to stay at the dosage where you > are? Clear as mud? > > Thanks for your input. > > Love, > > Hi , I'm on Imuran also and have been for at least a year, I believe. I take three tablets daily. I can't lower my dose as long as I am getting Remicade. You have to be on something like MTX or Imuran or it can cause problems. My doctor doesn't want to mess with any of my med's until I can get off prednisone....if thats even possible. I don't know if Imuran makes me have less energy. I'm like you about telling doctors for years that I had no energy (among other things) and something was not right. Of course, they didn't listen. Take care! Love, squeek ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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