Jump to content
RemedySpot.com

Re: Re: new to this/patty

Rate this topic


Guest guest

Recommended Posts

Patty,

I am so sorry for laughing, but I was picturing your scooter incident and

ended up snickering a little. (Laughing with you - not at you :)))))

I have one better, try walking out to get the mail. Its in the a.m. so of

course I have the big robe and house shoes (funny picture in itself) . My yard

goes downhill, snowy (am I painting a vivid enough picture for you?) I hit ice

and the rest is history. Slid right out into the drive with my robe everywhere

besides where it was supposed to be. Yup, my kids thought it was really funny -

Mom laying in the driveway showing everyone her drawers. lol (of course, I

tried to jump up and compose myself which was even funnier, considering one of

my houseshoes landed across the yard) Too funny.

And like you the next day I felt it. Hey, but 10 years from now, that will be

the kids favorite stories to tell. Oh, and your not getting old if you can

still laugh about it :)

Vondie

Re: new to this

Hi,(i didn't see your name :) )

My son also has delta f508, but i cant rmember if its twin or with

something else.To be honest, they never told me, I asked(probably so

I'd have something else to dwell on,lol).They said everyone is so

unique that the mutation would not really be indicative of how his

health will be.Maybe they told me that because they thought he had

the worst, I dunno!Oh well, so far his health has been pretty good,

and he's almost 9.Just had his 1st iv treatment, and got gallbladder

out, pretty good for 9 yrs, eh?Its funny, cuz i tried to call cf

nurse yesterday(gone for holiday til 2nd of Jan), to find out what

his mutation is.I have heard it said that your childs mutations are

mild, but in this book I read that you may not w/ R117 be facing the

GI problems such as one like my son does.

Sorry I'm babbling, I just woke up.I fell off my 3 yr olds scooter

yesterday, feel like 100 yrs old(Kids couldnt POSSIBLY take me

serious now, I had to look so funny airborne, than rolling thru

street when i fell, hee hee! LOLOLOL)...still hurts to laugh, OMG I'm

getting old I think.

Any ways, glad we have one more person to talk to on this group, hope

to hear more about you later.

Patty, mom to Tyler,8,wcf and 2 lil ones wocf, in the Sunshine State

> hi everyone - i am new, i hope i am doing this right. i have a

> barely 3 month old baby, , who was diagnosed with " mild " Cf -

> she has the delta F508 and R117H mutation - does anyone else have

> this? she tested 29 for the sweat test, is gaining weight and is

> otherwise asymptomatic, so far. does anyone else have this

mutation,

> is it really mild? i am so scared, she is the light of my life.

we

> had no clue we were carriers. if anybody could please write me, i

> would appreciate it so much.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

Link to comment
Share on other sites

Hey! When you can survive a scooter spill and an ice exposure without

broken bones or ending up in the hospital it is truly a miracle and you both

must be younger than I am because if either one of these things happened to

me I would be in traction. Plus they would have to call a tow truck to get

me up. That in itself would be hilarious.

Tina W.

Re: Re: new to this/patty

Patty,

I am so sorry for laughing, but I was picturing your scooter incident and

ended up snickering a little. (Laughing with you - not at you :)))))

I have one better, try walking out to get the mail. Its in the a.m. so of

course I have the big robe and house shoes (funny picture in itself) . My

yard goes downhill, snowy (am I painting a vivid enough picture for you?) I

hit ice and the rest is history. Slid right out into the drive with my robe

everywhere besides where it was supposed to be. Yup, my kids thought it was

really funny - Mom laying in the driveway showing everyone her drawers. lol

(of course, I tried to jump up and compose myself which was even funnier,

considering one of my houseshoes landed across the yard) Too funny.

And like you the next day I felt it. Hey, but 10 years from now, that

will be the kids favorite stories to tell. Oh, and your not getting old if

you can still laugh about it :)

Vondie

Re: new to this

Hi,(i didn't see your name :) )

My son also has delta f508, but i cant rmember if its twin or with

something else.To be honest, they never told me, I asked(probably so

I'd have something else to dwell on,lol).They said everyone is so

unique that the mutation would not really be indicative of how his

health will be.Maybe they told me that because they thought he had

the worst, I dunno!Oh well, so far his health has been pretty good,

and he's almost 9.Just had his 1st iv treatment, and got gallbladder

out, pretty good for 9 yrs, eh?Its funny, cuz i tried to call cf

nurse yesterday(gone for holiday til 2nd of Jan), to find out what

his mutation is.I have heard it said that your childs mutations are

mild, but in this book I read that you may not w/ R117 be facing the

GI problems such as one like my son does.

Sorry I'm babbling, I just woke up.I fell off my 3 yr olds scooter

yesterday, feel like 100 yrs old(Kids couldnt POSSIBLY take me

serious now, I had to look so funny airborne, than rolling thru

street when i fell, hee hee! LOLOLOL)...still hurts to laugh, OMG I'm

getting old I think.

Any ways, glad we have one more person to talk to on this group, hope

to hear more about you later.

Patty, mom to Tyler,8,wcf and 2 lil ones wocf, in the Sunshine State

> hi everyone - i am new, i hope i am doing this right. i have a

> barely 3 month old baby, , who was diagnosed with " mild " Cf -

> she has the delta F508 and R117H mutation - does anyone else have

> this? she tested 29 for the sweat test, is gaining weight and is

> otherwise asymptomatic, so far. does anyone else have this

mutation,

> is it really mild? i am so scared, she is the light of my life.

we

> had no clue we were carriers. if anybody could please write me, i

> would appreciate it so much.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

Link to comment
Share on other sites

Tina,

Actually, I am surprised I didnt need the aid of a tow truck to get up. I

guess you would have had to see how many times I tried and fell again. lol

Cant be to non chalant about it when you cant get back to your feet. I am

laughing my butt off. Hey, laughter is good medicine. (I hope me admitting to

everyone something totally embarrassing makes someone feel better today!)

hahahaha

But I have to ask, Patty did your kids help you? Come to think of it mine

didnt. They just stood in the window and laughed. What does that say?

Re: new to this

Hi,(i didn't see your name :) )

My son also has delta f508, but i cant rmember if its twin or with

something else.To be honest, they never told me, I asked(probably so

I'd have something else to dwell on,lol).They said everyone is so

unique that the mutation would not really be indicative of how his

health will be.Maybe they told me that because they thought he had

the worst, I dunno!Oh well, so far his health has been pretty good,

and he's almost 9.Just had his 1st iv treatment, and got gallbladder

out, pretty good for 9 yrs, eh?Its funny, cuz i tried to call cf

nurse yesterday(gone for holiday til 2nd of Jan), to find out what

his mutation is.I have heard it said that your childs mutations are

mild, but in this book I read that you may not w/ R117 be facing the

GI problems such as one like my son does.

Sorry I'm babbling, I just woke up.I fell off my 3 yr olds scooter

yesterday, feel like 100 yrs old(Kids couldnt POSSIBLY take me

serious now, I had to look so funny airborne, than rolling thru

street when i fell, hee hee! LOLOLOL)...still hurts to laugh, OMG I'm

getting old I think.

Any ways, glad we have one more person to talk to on this group, hope

to hear more about you later.

Patty, mom to Tyler,8,wcf and 2 lil ones wocf, in the Sunshine State

> hi everyone - i am new, i hope i am doing this right. i have a

> barely 3 month old baby, , who was diagnosed with " mild " Cf -

> she has the delta F508 and R117H mutation - does anyone else have

> this? she tested 29 for the sweat test, is gaining weight and is

> otherwise asymptomatic, so far. does anyone else have this

mutation,

> is it really mild? i am so scared, she is the light of my life.

we

> had no clue we were carriers. if anybody could please write me, i

> would appreciate it so much.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

Link to comment
Share on other sites

You know, I think maybe I should start a book of memories (especially funny

ones). Like the time my boys decided to make the linolium really slick for

their remote control cars. They slicked it up with dish soap and water. Didnt

tell me, I walked in and guess what happened after that. Got lots of funnies.

It would be funny to give them when they are older.

Re: new to this

Hi,(i didn't see your name :) )

My son also has delta f508, but i cant rmember if its twin or with

something else.To be honest, they never told me, I asked(probably so

I'd have something else to dwell on,lol).They said everyone is so

unique that the mutation would not really be indicative of how his

health will be.Maybe they told me that because they thought he had

the worst, I dunno!Oh well, so far his health has been pretty good,

and he's almost 9.Just had his 1st iv treatment, and got gallbladder

out, pretty good for 9 yrs, eh?Its funny, cuz i tried to call cf

nurse yesterday(gone for holiday til 2nd of Jan), to find out what

his mutation is.I have heard it said that your childs mutations are

mild, but in this book I read that you may not w/ R117 be facing the

GI problems such as one like my son does.

Sorry I'm babbling, I just woke up.I fell off my 3 yr olds scooter

yesterday, feel like 100 yrs old(Kids couldnt POSSIBLY take me

serious now, I had to look so funny airborne, than rolling thru

street when i fell, hee hee! LOLOLOL)...still hurts to laugh, OMG I'm

getting old I think.

Any ways, glad we have one more person to talk to on this group, hope

to hear more about you later.

Patty, mom to Tyler,8,wcf and 2 lil ones wocf, in the Sunshine State

> hi everyone - i am new, i hope i am doing this right. i have a

> barely 3 month old baby, , who was diagnosed with " mild " Cf -

> she has the delta F508 and R117H mutation - does anyone else have

> this? she tested 29 for the sweat test, is gaining weight and is

> otherwise asymptomatic, so far. does anyone else have this

mutation,

> is it really mild? i am so scared, she is the light of my life.

we

> had no clue we were carriers. if anybody could please write me, i

> would appreciate it so much.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...