RE: New Update

[Guest guest]

Hey All

I wanted to thank everyone who wrote to me....

I still feel crappy but am eating chicken noodle.Brad's coming home on pass

today to get his disability forms and some groceries.

TO answer some questions;;;

1. I do not see a CF specialist...just a regular pulmo doc (the CF centers

around here basically turfed me...Brads not getting great care either but thats

a whole other SPOTTY story ( as is his chest x-ray))

2. We have looked into getting cultures sent elsewhere but UNC and Duke will

not except them unless your a DOc there and CF cultures need to be in the lab

within 4 hours.

3. The tylenol has kept the fevers down to a managable level and the

phenergan has kept me from vomiting every 5 mins now.

4. My doc is generally pretty good.He does an awsome bronch. The care is 100%

better than at the Uni's I went to around here.

5. For those of you that still go to these UNi's PLEASE don't bring my name

up. I know you mean well but the docs and I did not leave on loving terms and

one particular doc is a royal jerk and has already started in on Brad with the

crappy care.Didn't bother to look at his x-ray until a week after his appt and

low and behold he has shadows all over his lungs and now his function is down

and the shadows won't clear....so that ticks me off...they told him he just

needed to exercise more...like that cures a fever.

I love you guys and basically you're where I go to to blow off steam ( and I

really sound like a train whistle......LOL).

I will be calling on Monday to get an apt...the doc won't direct admit me or

do home IV's unless he sees me.

Becki

YOUR FAVORITE LilGooberGirl

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