Re: behavior

[Guest guest]

Are you seeing anything positive, poop-wise?

Was he already taking all of the same supplements pre-SCD? I'm just asking

because I'm wondering if you're sure he's tolerating EVERY ingredient in the

Spectrum Complete? Since it has GSE in it, that doesn't allow you to rotate

that particular anti-fungal with others..... I know other parents say the kids

need to take a break from them, or yeast get resistant.

I would..... and I'm going to sound like a broken record here.... pull the

supplements and see how he does for a few weeks, then add them back one at a

time. That's the only way to remove that variable. I know you may not want

to.... we worry, of course, that our kids aren't getting enough

vitamins/minerals/amino acids, etc, etc. But, if the gut is damaged, who knows

how much of that is going where it's supposed to go anyway?

I would also suggest you stop using peanut butter. Too many beginners (and yes,

you are still beginners) have had problems that got better after removing

peanut butter.... it makes Mimi feel like NO one should be using peanut butter

until much, much later, if at all.

It's also TOO SOON for broccoli. That is a cabbage family veg.... and not for

beginners. Too difficult to digest. Remember.... anything we can't easily digest

will feed the bad bugs!

Patti

behavior

Hi,

We are almost one month into this diet.

My 5 year old ASD son has been constantly chewing on his shirt for the past

two to three weeks & pinching. And word from school is he is not listening

and being aggressive to his aide (who has been with him for 2 years) and

other kids. His behavior has gotten quite bad since we started this diet,

although he seems happier (giggly, smiling for pictures etc).

So, what to do? I'm not sure if this is common or if I should re-do the

intro diet and slowly bring back foods again?

I feel like I am letting him down somehow.....

Currently he eats:

honey

Nut flour (almond) in cookies etc

Nut butter (almond/peanut)

eggs

meats

brocolli/peas/zuchini/bananas/apples/pears/carrots/spaghetti squash

all cooked and peeled

He is on the following supplements:

MB12 shot

Spectrum Complete Multi vit capsules

CLO, Complete Omega

Lactobacillus Acidophilus

Vitamin C powder (when I remember)

Thanks,

Tumpa Reinhardt

To the world you may be one person, to one person you are the

world~Anonymous

[Guest guest]

It could be die off. My son had negative behavior when we started the diet. He

is doing great now.

Sue

7 yr old, 7mths SCD, learning issues

[Guest guest]

If it were me, I'd do the intro just for a day or two. The behavioral

issues could be die off. I always prefer to do an intro if I'm kind of

uncertain though. It would be a good time to pull the supplements, and you

can reintroduce the other foods much more quickly because he's already had

them...maybe one each day. I agree with Patty in pulling the peanutbutter.

We had some issues due to the peanutbutter about six weeks into the diet.

We waited a couple of months, and it was no problem.

Meleah

behavior

> Hi,

>

> We are almost one month into this diet.

> My 5 year old ASD son has been constantly chewing on his shirt for the

> past

> two to three weeks & pinching. And word from school is he is not listening

> and being aggressive to his aide (who has been with him for 2 years) and

> other kids. His behavior has gotten quite bad since we started this diet,

> although he seems happier (giggly, smiling for pictures etc).

> So, what to do? I'm not sure if this is common or if I should re-do the

> intro diet and slowly bring back foods again?

> I feel like I am letting him down somehow.....

>

> Currently he eats:

> honey

> Nut flour (almond) in cookies etc

> Nut butter (almond/peanut)

> eggs

> meats

> brocolli/peas/zuchini/bananas/apples/pears/carrots/spaghetti squash

> all cooked and peeled

>

> He is on the following supplements:

> MB12 shot

> Spectrum Complete Multi vit capsules

> CLO, Complete Omega

> Lactobacillus Acidophilus

> Vitamin C powder (when I remember)

>

> Thanks,

>

> Tumpa Reinhardt

>

> To the world you may be one person, to one person you are the

> world~Anonymous

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Yes, he is pooping more regulary now (still needs an enema at times). He

used to withhold/constipation.

I will remove the peanut butter, brocolli (his favourite veggie ( ) and

all supplements today.

These supplements were pre SCD. I did give him some magnesium today to see

if that would calm him down.

He was only getting Spectrum Complete 2-3 times a week (he hated drinking

the juice).

I hope something gives because his aides are about to quit on him.

Tumpa

Re: behavior

Are you seeing anything positive, poop-wise?

Was he already taking all of the same supplements pre-SCD? I'm just asking

because I'm wondering if you're sure he's tolerating EVERY ingredient in the

Spectrum Complete? Since it has GSE in it, that doesn't allow you to rotate

that particular anti-fungal with others..... I know other parents say the

kids need to take a break from them, or yeast get resistant.

I would..... and I'm going to sound like a broken record here.... pull the

supplements and see how he does for a few weeks, then add them back one at a

time. That's the only way to remove that variable. I know you may not want

to.... we worry, of course, that our kids aren't getting enough

vitamins/minerals/amino acids, etc, etc. But, if the gut is damaged, who

knows how much of that is going where it's supposed to go anyway?

I would also suggest you stop using peanut butter. Too many beginners (and

yes, you are still beginners) have had problems that got better after

removing peanut butter.... it makes Mimi feel like NO one should be using

peanut butter until much, much later, if at all.

It's also TOO SOON for broccoli. That is a cabbage family veg.... and not

for beginners. Too difficult to digest. Remember.... anything we can't

easily digest will feed the bad bugs!

Patti

behavior

Hi,

We are almost one month into this diet.

My 5 year old ASD son has been constantly chewing on his shirt for the

past

two to three weeks & pinching. And word from school is he is not listening

and being aggressive to his aide (who has been with him for 2 years) and

other kids. His behavior has gotten quite bad since we started this diet,

although he seems happier (giggly, smiling for pictures etc).

So, what to do? I'm not sure if this is common or if I should re-do the

intro diet and slowly bring back foods again?

I feel like I am letting him down somehow.....

Currently he eats:

honey

Nut flour (almond) in cookies etc

Nut butter (almond/peanut)

eggs

meats

brocolli/peas/zuchini/bananas/apples/pears/carrots/spaghetti squash

all cooked and peeled

He is on the following supplements:

MB12 shot

Spectrum Complete Multi vit capsules

CLO, Complete Omega

Lactobacillus Acidophilus

Vitamin C powder (when I remember)

Thanks,

Tumpa Reinhardt

To the world you may be one person, to one person you are the

world~Anonymous

[Guest guest]

Since SCD changes the metabolism so dramatically, you never know.... that

*could* explain why some supps might then create issues that weren't there

before. I am always looking at the supps, I know.

I do think pulling them for a bit is a good idea. You need to eliminate as many

variables as possible.

I know you hate to take away a veggie he loves... but lets just see how he does

for a little while without it. I do think the fact that you see a bit of

improvement in BMs is a positive sign, but we don't want to push it.

I often remind parents that as they begin SCD, and the bacterial colonies

die-off, they leave behind tender, new tissue that needs to heal... and must be

treated gently. Keeping all foods as easy to digest as possible doesn't tax the

gut too much at this vulnerable time.

I would definitely do epsom salts baths.... and/or lotion or spray form.

Giving magnesium alone is not a bad idea..... what form is it? Magnesium

citrate would be great if he still tends to be somewhat constipated.

Again, I ask.... is he getting any yogurt or probiotics??? Yeast will take over

if not. Some of the silly, hyper-agressive, shirt-chewing behavior might sound

like yeasty behavior to some. Hopefully other parents will comment. ??

I'm always trying to put myself in the kid's place, too..... a lot of changes

are going on for them. In some kids, the diet they were on pre-SCD just kept

them in a sort of sedated fog. When that fog begins to lift, all the sensory

input might be a little overwhelming. Who knows?? One kid can respond quite

differently from another.

I hope the epsom salts baths will help calm him.... that usually helps a lot.

Keep me posted.

Patti

RE: behavior

Yes, he is pooping more regulary now (still needs an enema at times). He

used to withhold/constipation.

I will remove the peanut butter, brocolli (his favourite veggie ( ) and

all supplements today.

These supplements were pre SCD. I did give him some magnesium today to see

if that would calm him down.

He was only getting Spectrum Complete 2-3 times a week (he hated drinking

the juice).

I hope something gives because his aides are about to quit on him.

Tumpa

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[Guest guest]

In talking to my son's aba therapist today...she is incredible...she pointed

out a valuable thing to me. These kids are going to go through the same

phases that nt kids go through...and they need to go through these

steps...but it seems strange to us because they are so much older. For

example, iel is 3 1/2 yrs. now. He has just started mimmicking his

18mth. old brothers behavior in the last couple of weeks. He mimmicks

Mark's crying, baby babble, mannerisms, ect. It's really been bothering me.

He used to have sever echolalia...repeating words of other...until he

started finally speaking on his own about six to eight months ago. He had a

great vocabulary, but couldn't formulate any words from his own thought

process. Well, that's gone for the most party even though he usually only

says two to three word sentences. Now, we're seeing this mimmicking of

behavior, and it really has been bothering me. I brought it up to Kristi,

and she told me not to be concerned. He's finally doing something that he

should've done two to three years ago. That's why it does look odd to us.

I do think that the behaviors that you're seeing are due to some degree to

something involving the diet. However, just remember that his

behavior...maybe the agressiveness...could be him finally moving on to some

new developmental stages. I wouldn't call iel agressive, but he is

finally doing what I would expect from a two year old...pushing down his

baby brother and stuff like that...and a month ago, he didn't want to have

anything to do with the baby. He wouldn't take a step near Mark, and

freiked out of the baby came near him. Now, he will interact with him, and

mimmicks him. Anyway, keep this kind of thing in mind.

Meleah

RE: behavior

>

>

> Yes, he is pooping more regulary now (still needs an enema at times). He

> used to withhold/constipation.

> I will remove the peanut butter, brocolli (his favourite veggie ( ) and

> all supplements today.

> These supplements were pre SCD. I did give him some magnesium today to

> see

> if that would calm him down.

> He was only getting Spectrum Complete 2-3 times a week (he hated drinking

> the juice).

>

> I hope something gives because his aides are about to quit on him.

>

> Tumpa

>

> Recent Activity

> a.. 19New Members

> Visit Your Group

>

[Guest guest]

Thanks for the e-mail.

It seems like Cole is regressing ....but I know it will get better....

Re: behavior

In talking to my son's aba therapist today...she is incredible...she

pointed

out a valuable thing to me. These kids are going to go through the same

phases that nt kids go through...and they need to go through these

steps...but it seems strange to us because they are so much older. For

example, iel is 3 1/2 yrs. now. He has just started mimmicking his

18mth. old brothers behavior in the last couple of weeks. He mimmicks

Mark's crying, baby babble, mannerisms, ect. It's really been bothering

me.

He used to have sever echolalia...repeating words of other...until he

started finally speaking on his own about six to eight months ago. He had

a

great vocabulary, but couldn't formulate any words from his own thought

process. Well, that's gone for the most party even though he usually only

says two to three word sentences. Now, we're seeing this mimmicking of

behavior, and it really has been bothering me. I brought it up to Kristi,

and she told me not to be concerned. He's finally doing something that he

should've done two to three years ago. That's why it does look odd to us.

I do think that the behaviors that you're seeing are due to some degree to

something involving the diet. However, just remember that his

behavior...maybe the agressiveness...could be him finally moving on to

some

new developmental stages. I wouldn't call iel agressive, but he is

finally doing what I would expect from a two year old...pushing down his

baby brother and stuff like that...and a month ago, he didn't want to have

anything to do with the baby. He wouldn't take a step near Mark, and

freiked out of the baby came near him. Now, he will interact with him, and

mimmicks him. Anyway, keep this kind of thing in mind.

Meleah

RE: behavior

>

>

> Yes, he is pooping more regulary now (still needs an enema at times). He

> used to withhold/constipation.

> I will remove the peanut butter, brocolli (his favourite veggie ( )

and

> all supplements today.

> These supplements were pre SCD. I did give him some magnesium today to

> see

> if that would calm him down.

> He was only getting Spectrum Complete 2-3 times a week (he hated

drinking

> the juice).

>

> I hope something gives because his aides are about to quit on him.

>

> Tumpa

>

> Recent Activity

> a.. 19New Members

> Visit Your Group

>

[Guest guest]

Personally-- and this is variant SCD, not the official version-- I would try

pulling out the nuts and carrots, which are high oxalate. (Besides that, nuts

at least are very high on the allergic-reaction lists for ordinary people.) My

son did very poorly on our first round of SCD, and better on round two, minus

nuts, eggs, and carrots. If that doesn't help, test eggs, which are not high

oxalate, but could be an allergy issue for many. If you do retry the intro diet,

you could put squash instead of carrots in the soup; Elaine mentioned that

squash was generally well tolerated, and it is low oxalate.

My son has always had behavioral reactions to foods and other interventions

(chelation, etc) and you are right, it is very hard when others give up on your

kid. You just have to do whatever you can to make his behaviors a temporary

issue that most forget when the good things happen. I was always frustrated at

parents who did nothing biomedical, and then refused to have their kids moved

(from mainstream classes, or to lower functioning placements) due to behaviors,

but I found myself behaving a bit that way too, when I knew the behavior was

temporary and improvement was not far away. Print out some testimonials from

those who saw improvement on diet, help the aide come up with ways to protect

herself (like sitting across a desk from him, which helped with my son) and

assure them that you are doing everything you can to make this temporary.

Lorilyn

behavior

Hi,

We are almost one month into this diet.

My 5 year old ASD son has been constantly chewing on his shirt for the past

two to three weeks & pinching. And word from school is he is not listening

and being aggressive to his aide (who has been with him for 2 years) and

other kids. His behavior has gotten quite bad since we started this diet,

although he seems happier (giggly, smiling for pictures etc).

So, what to do? I'm not sure if this is common or if I should re-do the

intro diet and slowly bring back foods again?

I feel like I am letting him down somehow.....

Currently he eats:

honey

Nut flour (almond) in cookies etc

Nut butter (almond/peanut)

eggs

meats

brocolli/peas/zuchini/bananas/apples/pears/carrots/spaghetti squash

all cooked and peeled

He is on the following supplements:

MB12 shot

Spectrum Complete Multi vit capsules

CLO, Complete Omega

Lactobacillus Acidophilus

Vitamin C powder (when I remember)

Thanks,

Tumpa Reinhardt

To the world you may be one person, to one person you are the

world~Anonymous

[Guest guest]

Personally, I can't recommend that anyone try doing the low-oxylate " version "

of SCD. We have recent reports that kids on low-oxylate diets have not done

well.... and that there may be any number of other factors playing into what

appears to be a problem with oxylates, including the possibility of deficient

Vitamin K, according to Tamaro's research.

At any rate, just so all list members know, the moderators do NOT advocate a

low-oxylate approach..... at all. Individual sensitivities to particular foods

is a personal matter, of course, and a separate issue.

Patti

Re: behavior

Personally-- and this is variant SCD, not the official version-- I would try

pulling out the nuts and carrots, which are high oxalate. (Besides that, nuts at

least are very high on the allergic-reaction lists for ordinary people.) My son

did very poorly on our first round of SCD, and better on round two, minus nuts,

eggs, and carrots. If that doesn't help, test eggs, which are not high oxalate,

but could be an allergy issue for many. If you do retry the intro diet, you

could put squash instead of carrots in the soup; Elaine mentioned that squash

was generally well tolerated, and it is low oxalate.

My son has always had behavioral reactions to foods and other interventions

(chelation, etc) and you are right, it is very hard when others give up on your

kid. You just have to do whatever you can to make his behaviors a temporary

issue that most forget when the good things happen. I was always frustrated at

parents who did nothing biomedical, and then refused to have their kids moved

(from mainstream classes, or to lower functioning placements) due to behaviors,

but I found myself behaving a bit that way too, when I knew the behavior was

temporary and improvement was not far away. Print out some testimonials from

those who saw improvement on diet, help the aide come up with ways to protect

herself (like sitting across a desk from him, which helped with my son) and

assure them that you are doing everything you can to make this temporary.

Lorilyn

Recent Activity

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[Guest guest]

>

> Personally, I can't recommend that anyone try doing the low-oxylate " version "

of SCD.

We have recent reports that kids on low-oxylate diets have not done well....

and that there

may be any number of other factors playing into what appears to be a problem

with

oxylates, including the possibility of deficient Vitamin K, according to

Tamaro's

research.

>

> At any rate, just so all list members know, the moderators do NOT advocate a

low-

oxylate approach..... at all. Individual sensitivities to particular foods is a

personal matter,

of course, and a separate issue.

>

> Patti

>

I so agree Patti. The low oxalate diet is just theory at this point, has not

been sufficiently

tested over a sufficient period and has had some negative effects. The VSL#3 is

illegal on

SCD as well. The LOD also eliminates some very important and nutritous

vegetables.

Nuts are not a " must " on SCD . They are an excellent base for many baked goods.

We have

always been cautioned not to overdo nut consumption and whole nuts and nut

pieces are

not introduced until later in the diet. We respect, as you mention, that there

are people

with a genuine allergy to both tree nuts and peanuts which are actuallylegumes.

Carol F.

SCD, 6 years, celiac