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RE: schools - ugh!!!!!!!!!!!

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You have certainly done all you can with that person. Sooooooooooooo, Now

you can do the following:

Write a letter & with all the info that you have here & anything else that

happened . All her language...about the coughing, etc.

THEN , ADD THE MEETING WITH THE PRINCIPAL, and that conversation.

SEND THIS TO THE SCHOOL BOARD REP FROM YOUR AREA OR EACH SCHOOL BOARD MEMBER

.. copy IT TO THE PRINCIPAL & THAT SUB......ATTACH A COPY OF THE 504 YOU HAVE

FILED. REMIND THEM IN THE LETTER THAT IS A LEGAL DOCUMENT.

i would also add that I would be monitoring their classes the rest of their

years attending that school ,so they had better not treat your kids wrongly

because of this letter. The next letter will be to the TV stations & the

State Education Secretary.. & the governor..... Now most wouldn't send the

letter. I would...............

But write it...it will make you feel better too.

Things like that send my Irsh fighting blood way up over the TOP.

I taught school 20+ years......I never allowed things like that in my

classes..............That is sooooooo wrong!!

O.K. ,

Now its your turn back up on that soap box.You earned it .

i have more of those school booklets if you want to send with your

letter(hehe) or send one to each teacher in school & the school board!

LOVE & HUGS, grandmoMBEV

schools - ugh!!!!!!!!!!!

Hey guys,

Well, I finally have a little time to write. So far, my boys are doing

well. They are on antibiotics for two weeks for a lung thing. Seems like

they always do things together - even if it is getting sick. Then they

passed it to me. So now I am running around trying to stay away from them

and not give it back again. I am sure you all know what I am talking about.

Yesterday I had to drag myself up to the school - again. I am getting so

tired of dealing with this school. They have me to the point of wanting to

smack someone. It is a constant argument with them. Teachers that wont pay

attention to anything. I have come to the conclusion that they dont care -

I mean its not their kids so not their problem. Dont get me wrong, there

are a few that I love to death. We are dealing with " if you leave class to

go to the nurse or the bathroom, you get a tardy. Three tardies you get

after school detention " . I DONT THINK SO! This argument is ongoing. Yes,

we have the 504 plan in place. Not that it does any good.

Last week we had to go to the school over being called a baby in

front of the entire class. I dont know how to shorten this story. Lets

see - substitute teacher. Tells the class they can talk among thereselves.

Of course they get loud. She yells at them (no biggie). She says I dont

want to hear you talk, breath, clear your throat or even cough. Well,

can't help it and coughs (most kids w/cf do). She gets on to him, he

tells her he cant help it, he has a condition that makes him cough. She

says " Fine, if he wants to be a baby about it, then let the baby cough " , in

front of the class. A friend of his stood up and told her not to talk to

him like that, that he had a disease that makes him cough. She told him to

shut up and sit down. So - you can imagine how _issed off I was when he

got home. I called up there to tell her to stay there I was on my way.

Everyone was already gone. (probably a good thing) The next morning we

took it a step above the principal. This was the principals response -

" Kids shouldn't run home every time they are called a name - this is

something they need to learn to deal with - it will happen all through their

lives. " Excuse me, but I think she is full of something, I am just trying

to find a nice word for it. I said " true, they may grow up with it in their

lives - but NOT from a teacher in their school " . Needless to say the other

man we were in front of agreed with me. We filed a complaint and she

probably wont be back in the school again. There was more to the story -

cussing in class and putting kids down for their beliefs. Just an all

around bad deal.

The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

I am really serious when I say she does not like me anymore. I am trying

not to be overbearing, overprotecting, etc.... But, I am at my wits end

with the whole deal.

They dont get their meds on time half the time (but they cant carry them

themselves). They get each others meds (inhalers), which I have explained

to them that cant keep happening - there is the cross contamination issue.

I dont know. I have taken all the books, tapes etc..... to them.

I have just come to the conclusion that a majority of people dont care

when it does not concern them or their families.

Sorry, just had to gripe for awhile. Didn't mean for it to be so long

winded.

Vondie

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Vondie,

I agree, UGH!!!!!!!!!!!!!!I agree w/ you in standing up for your

young adult.Good for you.Go get 'em!!!!!

Patty, mom to ty 8wcf and 2wocf

> Hey guys,

> Well, I finally have a little time to write. So far, my boys

are doing well. They are on antibiotics for two weeks for a lung

thing. Seems like they always do things together - even if it is

getting sick. Then they passed it to me. So now I am running

around trying to stay away from them and not give it back again. I

am sure you all know what I am talking about.

> Yesterday I had to drag myself up to the school - again. I am

getting so tired of dealing with this school. They have me to the

point of wanting to smack someone. It is a constant argument with

them. Teachers that wont pay attention to anything. I have come to

the conclusion that they dont care - I mean its not their kids so

not their problem. Dont get me wrong, there are a few that I love

to death. We are dealing with " if you leave class to go to the

nurse or the bathroom, you get a tardy. Three tardies you get after

school detention " . I DONT THINK SO! This argument is ongoing.

Yes, we have the 504 plan in place. Not that it does any good.

> Last week we had to go to the school over being called a

baby in front of the entire class. I dont know how to shorten this

story. Lets see - substitute teacher. Tells the class they can

talk among thereselves. Of course they get loud. She yells at

them (no biggie). She says I dont want to hear you talk, breath,

clear your throat or even cough. Well, can't help it and

coughs (most kids w/cf do). She gets on to him, he tells her he cant

help it, he has a condition that makes him cough. She says " Fine,

if he wants to be a baby about it, then let the baby cough " , in

front of the class. A friend of his stood up and told her not to

talk to him like that, that he had a disease that makes him cough.

She told him to shut up and sit down. So - you can imagine how

_issed off I was when he got home. I called up there to tell her to

stay there I was on my way. Everyone was already gone. (probably a

good thing) The next morning we took it a step above the

principal. This was the principals response - " Kids shouldn't run

home every time they are called a name - this is something they need

to learn to deal with - it will happen all through their lives. "

Excuse me, but I think she is full of something, I am just trying to

find a nice word for it. I said " true, they may grow up with it in

their lives - but NOT from a teacher in their school " . Needless to

say the other man we were in front of agreed with me. We filed a

complaint and she probably wont be back in the school again. There

was more to the story - cussing in class and putting kids down for

their beliefs. Just an all around bad deal.

> The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

> I am really serious when I say she does not like me anymore. I

am trying not to be overbearing, overprotecting, etc.... But, I am

at my wits end with the whole deal.

> They dont get their meds on time half the time (but they cant

carry them themselves). They get each others meds (inhalers), which

I have explained to them that cant keep happening - there is the

cross contamination issue. I dont know. I have taken all the

books, tapes etc..... to them.

> I have just come to the conclusion that a majority of people

dont care when it does not concern them or their families.

> Sorry, just had to gripe for awhile. Didn't mean for it to be

so long winded.

> Vondie

>

>

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I cannot believe teachers talk to any kids like that. I am in shock.

Though I hated school for that too. No matter how many times my

parents went to the school, or how many times I had to tell the teacher

that I cough and this and that, it was always forgotten. Keep yelling

at those teachers, your kids don't have to deal with that. CF or no

CF. That's awful.

Coughing at school is such a silly thing, the way that it makes kids

feel I mean. Now that I am an adult coughing is just that, and I never

worry about it. Or rarely worry. But as a kid I remember it being

horrifying. I was always hacking away at the most inappropriate times,

like during a quiet time reading, or a presentation, or an assembly.

It made me feel so self-conscious and strange. I hated it. So for a

teacher to add to that is just unbelievable. Makes me mad. Are these

people not supposed to be adults. Adults don't call kids babies.....

> Hey guys,

>   Well, I finally have a little time to write.  So far, my boys are

> doing well.  They are on antibiotics for two weeks for a lung thing. 

> Seems like they always do things together - even if it is getting

> sick.  Then they passed it to me.  So now I am running around trying

> to stay away from them and not give it back again.  I am sure you all

> know what I am talking about. 

>   Yesterday I had to drag myself up to the school - again.  I am

> getting so tired of dealing with this school.  They have me to the

> point of wanting to smack someone.  It is a constant argument with

> them.  Teachers that wont pay attention to anything.  I have come to

> the conclusion that they dont care - I mean its not their kids so not

> their problem.  Dont get me wrong, there are a few that I love to

> death.  We are dealing with " if you leave class to go to the nurse or

> the bathroom, you get a tardy.  Three tardies you get after school

> detention " .  I DONT THINK SO!  This argument is ongoing.  Yes, we have

> the 504 plan in place.  Not that it does any good. 

>   Last week we had to go to the school over being called a baby

> in front of the entire class.  I dont know how to shorten this story. 

> Lets see - substitute teacher.  Tells the class they can talk among

> thereselves.  Of course they get loud.  She yells at them  (no

> biggie).  She says I dont want to hear you talk, breath, clear your

> throat or even cough.  Well, can't help it and coughs (most

> kids w/cf do). She gets on to him, he tells her he cant help it, he

> has a condition that makes him cough.  She says " Fine, if he wants to

> be a baby about it, then let the baby cough " , in front of the class. 

> A friend of his stood up and told her not to talk to him like that,

> that he had a disease that makes him cough.  She told him to shut up

> and sit down.    So - you can imagine how _issed off I was when he got

> home.  I called up there to tell her to stay there I was on my way. 

> Everyon! e was already gone.  (probably a good thing)  The next

> morning we took it a step above the principal.  This was the

> principals response - " Kids shouldn't run home every time they are

> called a name - this is something they need to learn to deal with - it

> will happen all through their lives. "   Excuse me, but I think she is

> full of something, I am just trying to find a nice word for it.  I

> said " true, they may grow up with it in their lives - but NOT from a

> teacher in their school " .  Needless to say the other man we were in

> front of  agreed with me.  We filed a complaint and she probably wont

> be back in the school again.  There was more to the story - cussing in

> class and putting kids down for their beliefs.  Just an all around bad

> deal. 

>   The principal has this philosophy of taking up for the teachers

> automatically, wtihout listening to the kids at all. 

>   I am really serious when I say she does not like me anymore.  I am

> trying not to be overbearing, overprotecting, etc....  But, I am at my

> wits end with the whole deal. 

>   They dont get their meds on time half the time (but they cant carry

> them themselves).  They get each others meds (inhalers), which I have

> explained to them that cant keep happening - there is the cross

> contamination issue.  I dont know.  I have taken all the books, tapes

> etc..... to them. 

>   I have just come to the conclusion that a majority of people dont

> care when it does not concern them or their families. 

>   Sorry, just had to gripe for awhile.  Didn't mean for it to be so

> long winded.

>   Vondie

>

>

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I dont know from what state you come from but if I were you just threaten

with saying school board and lawyers and you'll see you get results asap. It's

an extreme but in this era you have to for the sake of our kids.

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Vondie,

This is awful. I can't give you any advice as we don't need 504 plans

here and we have had great teachers. But no adult should have to speak

like that to children. It obviously makes her feel superior to belittle

children. I hope he wont have anyone do that to him again.

(Australia)

schools - ugh!!!!!!!!!!!

Hey guys,

Well, I finally have a little time to write. So far, my boys are

doing well. They are on antibiotics for two weeks for a lung thing.

Seems like they always do things together - even if it is getting sick.

Then they passed it to me. So now I am running around trying to stay

away from them and not give it back again. I am sure you all know what

I am talking about.

Yesterday I had to drag myself up to the school - again. I am getting

so tired of dealing with this school. They have me to the point of

wanting to smack someone. It is a constant argument with them.

Teachers that wont pay attention to anything. I have come to the

conclusion that they dont care - I mean its not their kids so not their

problem. Dont get me wrong, there are a few that I love to death. We

are dealing with " if you leave class to go to the nurse or the bathroom,

you get a tardy. Three tardies you get after school detention " . I DONT

THINK SO! This argument is ongoing. Yes, we have the 504 plan in

place. Not that it does any good.

Last week we had to go to the school over being called a baby

in front of the entire class. I dont know how to shorten this story.

Lets see - substitute teacher. Tells the class they can talk among

thereselves. Of course they get loud. She yells at them (no biggie).

She says I dont want to hear you talk, breath, clear your throat or even

cough. Well, can't help it and coughs (most kids w/cf do). She

gets on to him, he tells her he cant help it, he has a condition that

makes him cough. She says " Fine, if he wants to be a baby about it,

then let the baby cough " , in front of the class. A friend of his stood

up and told her not to talk to him like that, that he had a disease that

makes him cough. She told him to shut up and sit down. So - you can

imagine how _issed off I was when he got home. I called up there to

tell her to stay there I was on my way. Everyone was already gone.

(probably a good thing) The next morning we took it a step above the

principal. This was the principals response - " Kids shouldn't run home

every time they are called a name - this is something they need to learn

to deal with - it will happen all through their lives. " Excuse me, but

I think she is full of something, I am just trying to find a nice word

for it. I said " true, they may grow up with it in their lives - but NOT

from a teacher in their school " . Needless to say the other man we were

in front of agreed with me. We filed a complaint and she probably wont

be back in the school again. There was more to the story - cussing in

class and putting kids down for their beliefs. Just an all around bad

deal.

The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

I am really serious when I say she does not like me anymore. I am

trying not to be overbearing, overprotecting, etc.... But, I am at my

wits end with the whole deal.

They dont get their meds on time half the time (but they cant carry

them themselves). They get each others meds (inhalers), which I have

explained to them that cant keep happening - there is the cross

contamination issue. I dont know. I have taken all the books, tapes

etc..... to them.

I have just come to the conclusion that a majority of people dont care

when it does not concern them or their families.

Sorry, just had to gripe for awhile. Didn't mean for it to be so long

winded.

Vondie

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Oh, Vondie!

this is unbelievable and unacceptable!!!! If it were me and I had done all that

you have done I would call a lawyer and scare the cr@p out of them!!!! I would

even consider taking it to the media. I am sorry if the principal doesn't like

you, but she doesn't have to, she just needs to follow the law! (it seems as

though she is not doing that, if the 504 is not being followed!!!) And kids can

run home and tell you any damn thing that happened at school if they want to,

how is the principal's business anyway what you child tells you!!!!? To mix up

the kids meds is just plain wrong. are they mixing up other kids meds? This is

serious! OOOHHH I would be raising HECK right about now! I am sorry you are

having to go through this.

schools - ugh!!!!!!!!!!!

Hey guys,

Well, I finally have a little time to write. So far, my boys are doing

well. They are on antibiotics for two weeks for a lung thing. Seems like they

always do things together - even if it is getting sick. Then they passed it to

me. So now I am running around trying to stay away from them and not give it

back again. I am sure you all know what I am talking about.

Yesterday I had to drag myself up to the school - again. I am getting so

tired of dealing with this school. They have me to the point of wanting to

smack someone. It is a constant argument with them. Teachers that wont pay

attention to anything. I have come to the conclusion that they dont care - I

mean its not their kids so not their problem. Dont get me wrong, there are a

few that I love to death. We are dealing with " if you leave class to go to the

nurse or the bathroom, you get a tardy. Three tardies you get after school

detention " . I DONT THINK SO! This argument is ongoing. Yes, we have the 504

plan in place. Not that it does any good.

Last week we had to go to the school over being called a baby in

front of the entire class. I dont know how to shorten this story. Lets see -

substitute teacher. Tells the class they can talk among thereselves. Of course

they get loud. She yells at them (no biggie). She says I dont want to hear

you talk, breath, clear your throat or even cough. Well, can't help it

and coughs (most kids w/cf do). She gets on to him, he tells her he cant help

it, he has a condition that makes him cough. She says " Fine, if he wants to be

a baby about it, then let the baby cough " , in front of the class. A friend of

his stood up and told her not to talk to him like that, that he had a disease

that makes him cough. She told him to shut up and sit down. So - you can

imagine how _issed off I was when he got home. I called up there to tell her to

stay there I was on my way. Everyone was already gone. (probably a good thing)

The next morning we took it a step above the principal. This was the principals

response - " Kids shouldn't run home every time they are called a name - this is

something they need to learn to deal with - it will happen all through their

lives. " Excuse me, but I think she is full of something, I am just trying to

find a nice word for it. I said " true, they may grow up with it in their lives

- but NOT from a teacher in their school " . Needless to say the other man we

were in front of agreed with me. We filed a complaint and she probably wont be

back in the school again. There was more to the story - cussing in class and

putting kids down for their beliefs. Just an all around bad deal.

The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

I am really serious when I say she does not like me anymore. I am trying

not to be overbearing, overprotecting, etc.... But, I am at my wits end with

the whole deal.

They dont get their meds on time half the time (but they cant carry them

themselves). They get each others meds (inhalers), which I have explained to

them that cant keep happening - there is the cross contamination issue. I dont

know. I have taken all the books, tapes etc..... to them.

I have just come to the conclusion that a majority of people dont care when

it does not concern them or their families.

Sorry, just had to gripe for awhile. Didn't mean for it to be so long

winded.

Vondie

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YES. i still think , as i said in earlier post That the letter needs to go

to school board members & cc to the principal so she knows ANYTHING she does

will be watched . YES, It is a legal document............NO child or parent

should have anymore on their shoulders .It is enough in day to day living.

LOVE & HUGS to you & precious the children!!

GrandmomBEV

Re: schools - ugh!!!!!!!!!!!

I dont know from what state you come from but if I were you just threaten

with saying school board and lawyers and you'll see you get results asap.

It's

an extreme but in this era you have to for the sake of our kids.

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I'd hate to see what would happen to that teacher and that principal

if about ten CF parents went to visit them! Wouldn't that be

something!

Gale

> Oh, Vondie!

> this is unbelievable and unacceptable!!!! If it were me and I had

done all that you have done I would call a lawyer and scare the cr@p

out of them!!!! I would even consider taking it to the media. I am

sorry if the principal doesn't like you, but she doesn't have to, she

just needs to follow the law! (it seems as though she is not doing

that, if the 504 is not being followed!!!) And kids can run home and

tell you any damn thing that happened at school if they want to, how

is the principal's business anyway what you child tells you!!!!? To

mix up the kids meds is just plain wrong. are they mixing up other

kids meds? This is serious! OOOHHH I would be raising HECK right

about now! I am sorry you are having to go through this.

>

>

> schools - ugh!!!!!!!!!!!

>

>

> Hey guys,

> Well, I finally have a little time to write. So far, my boys

are doing well. They are on antibiotics for two weeks for a lung

thing. Seems like they always do things together - even if it is

getting sick. Then they passed it to me. So now I am running around

trying to stay away from them and not give it back again. I am sure

you all know what I am talking about.

> Yesterday I had to drag myself up to the school - again. I am

getting so tired of dealing with this school. They have me to the

point of wanting to smack someone. It is a constant argument with

them. Teachers that wont pay attention to anything. I have come to

the conclusion that they dont care - I mean its not their kids so not

their problem. Dont get me wrong, there are a few that I love to

death. We are dealing with " if you leave class to go to the nurse or

the bathroom, you get a tardy. Three tardies you get after school

detention " . I DONT THINK SO! This argument is ongoing. Yes, we

have the 504 plan in place. Not that it does any good.

> Last week we had to go to the school over being called a

baby in front of the entire class. I dont know how to shorten this

story. Lets see - substitute teacher. Tells the class they can talk

among thereselves. Of course they get loud. She yells at them (no

biggie). She says I dont want to hear you talk, breath, clear your

throat or even cough. Well, can't help it and coughs (most

kids w/cf do). She gets on to him, he tells her he cant help it, he

has a condition that makes him cough. She says " Fine, if he wants to

be a baby about it, then let the baby cough " , in front of the class.

A friend of his stood up and told her not to talk to him like that,

that he had a disease that makes him cough. She told him to shut up

and sit down. So - you can imagine how _issed off I was when he

got home. I called up there to tell her to stay there I was on my

way. Everyone was already gone. (probably a good thing) The next

morning we took it a step above the principal. This was the

principals response - " Kids shouldn't run home every time they are

called a name - this is something they need to learn to deal with -

it will happen all through their lives. " Excuse me, but I think she

is full of something, I am just trying to find a nice word for it. I

said " true, they may grow up with it in their lives - but NOT from a

teacher in their school " . Needless to say the other man we were in

front of agreed with me. We filed a complaint and she probably wont

be back in the school again. There was more to the story - cussing

in class and putting kids down for their beliefs. Just an all around

bad deal.

> The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

> I am really serious when I say she does not like me anymore. I

am trying not to be overbearing, overprotecting, etc.... But, I am

at my wits end with the whole deal.

> They dont get their meds on time half the time (but they cant

carry them themselves). They get each others meds (inhalers), which

I have explained to them that cant keep happening - there is the

cross contamination issue. I dont know. I have taken all the books,

tapes etc..... to them.

> I have just come to the conclusion that a majority of people

dont care when it does not concern them or their families.

> Sorry, just had to gripe for awhile. Didn't mean for it to be

so long winded.

> Vondie

>

>

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Vondie,

I am a former teacher and I can't believe a teacher, even a sub, would talk

like that to a child. Also, for the princlpal to think it is okay is

appalling. If you have a 504 plan in place, the staff can not violate or

ignore it. It is the law. I am not sure what state you live in, but with

your 504 plan you should have recieved a copy of parental rights. In that

document there are guidelines for parents to file greivences. Find out what

you need to do, then go to the administration office and tell them you want

to file a grievance because your child's 504 is being ignored. Since you

can take them to court, this will probably get their attention. Take

advantage because here are laws to protect your children. You will be

surprised at how fast things change once the school hears lawsuit. Well, at

least as far as the 504 goes.

Good luck,

Colleen

Mom to Elyse almost 3 w/cf

schools - ugh!!!!!!!!!!!

Hey guys,

Well, I finally have a little time to write. So far, my boys are doing

well. They are on antibiotics for two weeks for a lung thing. Seems like

they always do things together - even if it is getting sick. Then they

passed it to me. So now I am running around trying to stay away from them

and not give it back again. I am sure you all know what I am talking about.

Yesterday I had to drag myself up to the school - again. I am getting

so tired of dealing with this school. They have me to the point of wanting

to smack someone. It is a constant argument with them. Teachers that wont

pay attention to anything. I have come to the conclusion that they dont

care - I mean its not their kids so not their problem. Dont get me wrong,

there are a few that I love to death. We are dealing with " if you leave

class to go to the nurse or the bathroom, you get a tardy. Three tardies

you get after school detention " . I DONT THINK SO! This argument is

ongoing. Yes, we have the 504 plan in place. Not that it does any good.

Last week we had to go to the school over being called a baby in

front of the entire class. I dont know how to shorten this story. Lets

see - substitute teacher. Tells the class they can talk among thereselves.

Of course they get loud. She yells at them (no biggie). She says I dont

want to hear you talk, breath, clear your throat or even cough. Well,

can't help it and coughs (most kids w/cf do). She gets on to him, he

tells her he cant help it, he has a condition that makes him cough. She

says " Fine, if he wants to be a baby about it, then let the baby cough " , in

front of the class. A friend of his stood up and told her not to talk to

him like that, that he had a disease that makes him cough. She told him to

shut up and sit down. So - you can imagine how _issed off I was when he

got home. I called up there to tell her to stay there I was on my way.

Everyone was already gone. (probably a good thing) The next morning we

took it a step above the principal. This was the principals response -

" Kids shouldn't run home every time they are called a name - this is

something they need to learn to deal with - it will happen all through their

lives. " Excuse me, but I think she is full of something, I am just trying

to find a nice word for it. I said " true, they may grow up with it in their

lives - but NOT from a teacher in their school " . Needless to say the other

man we were in front of agreed with me. We filed a complaint and she

probably wont be back in the school again. There was more to the story -

cussing in class and putting kids down for their beliefs. Just an all

around bad deal.

The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

I am really serious when I say she does not like me anymore. I am

trying not to be overbearing, overprotecting, etc.... But, I am at my wits

end with the whole deal.

They dont get their meds on time half the time (but they cant carry them

themselves). They get each others meds (inhalers), which I have explained

to them that cant keep happening - there is the cross contamination issue.

I dont know. I have taken all the books, tapes etc..... to them.

I have just come to the conclusion that a majority of people dont care

when it does not concern them or their families.

Sorry, just had to gripe for awhile. Didn't mean for it to be so long

winded.

Vondie

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Vondie,

It really tries your patience doesn't it. My daughter has had several

teachers like that over the years, so she has gotten so she doesn't tell the

teachers about her cf. The school nurse knows but that is all unless she

tells someone else.

This year she got a doctors note for physical education class because she

had a new PE teacher that on the second day of school when it was 95 degrees

C. outside had them running laps and doing push ups and stuff on the black

top outside. Then when they came into the building he would not let them

get any water to drink. The class period was 50 minutes in length.

The note she took said that due to her illness that would

participate according to her discretion. You have to know my Steph, but she

has never used her disease to not have to do something. The teacher made a

big deal about it in front of the class. Embarrassed her! She finally told

him that she had CF, and of course he didn't know what that was. She

printed off some stuff and took it to him a few days later so he could be

familiar with what it was. He said to her in class " You don't look sick. "

He later apologized to her and said that his wife really jumped his case for

doing this. He was an x-military person and I think he thought he was still

in the army. I don't know!!

When Natalia shared her philosophy with us, Steph took a copy of it to

school and gave it to him to read. She said this is what it is like to have

this disease. So I know how hard it is to deal with these teachers and

counselors. Very frustrating and maddening. Keep up the good work.

Tina W., mother of Steph, 18yo wcf

schools - ugh!!!!!!!!!!!

Hey guys,

Well, I finally have a little time to write. So far, my boys are doing

well. They are on antibiotics for two weeks for a lung thing. Seems like

they always do things together - even if it is getting sick. Then they

passed it to me. So now I am running around trying to stay away from them

and not give it back again. I am sure you all know what I am talking about.

Yesterday I had to drag myself up to the school - again. I am getting

so tired of dealing with this school. They have me to the point of wanting

to smack someone. It is a constant argument with them. Teachers that wont

pay attention to anything. I have come to the conclusion that they dont

care - I mean its not their kids so not their problem. Dont get me wrong,

there are a few that I love to death. We are dealing with " if you leave

class to go to the nurse or the bathroom, you get a tardy. Three tardies

you get after school detention " . I DONT THINK SO! This argument is

ongoing. Yes, we have the 504 plan in place. Not that it does any good.

Last week we had to go to the school over being called a baby in

front of the entire class. I dont know how to shorten this story. Lets

see - substitute teacher. Tells the class they can talk among thereselves.

Of course they get loud. She yells at them (no biggie). She says I dont

want to hear you talk, breath, clear your throat or even cough. Well,

can't help it and coughs (most kids w/cf do). She gets on to him, he

tells her he cant help it, he has a condition that makes him cough. She

says " Fine, if he wants to be a baby about it, then let the baby cough " , in

front of the class. A friend of his stood up and told her not to talk to

him like that, that he had a disease that makes him cough. She told him to

shut up and sit down. So - you can imagine how _issed off I was when he

got home. I called up there to tell her to stay there I was on my way.

Everyone was already gone. (probably a good thing) The next morning we

took it a step above the principal. This was the principals response -

" Kids shouldn't run home every time they are called a name - this is

something they need to learn to deal with - it will happen all through their

lives. " Excuse me, but I think she is full of something, I am just trying

to find a nice word for it. I said " true, they may grow up with it in their

lives - but NOT from a teacher in their school " . Needless to say the other

man we were in front of agreed with me. We filed a complaint and she

probably wont be back in the school again. There was more to the story -

cussing in class and putting kids down for their beliefs. Just an all

around bad deal.

The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

I am really serious when I say she does not like me anymore. I am

trying not to be overbearing, overprotecting, etc.... But, I am at my wits

end with the whole deal.

They dont get their meds on time half the time (but they cant carry them

themselves). They get each others meds (inhalers), which I have explained

to them that cant keep happening - there is the cross contamination issue.

I dont know. I have taken all the books, tapes etc..... to them.

I have just come to the conclusion that a majority of people dont care

when it does not concern them or their families.

Sorry, just had to gripe for awhile. Didn't mean for it to be so long

winded.

Vondie

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Sounds to me like a nice letter from a lawyer, on their very nice letter head of

course, might be required. Not to sue you understand, ;-) but to make them

aware that their actions are being recorded and will be considered as

discriminating against a person with a disability.

Dawn mom of 4, 7 and under, the youngest wcf

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I'm in Canada so I don't know what a 504 is but it sounds like this teacher is a

bully - and that is not tolerable in anyone! And as far as kids running home and

" telling " - that is what we teach kids to do - if an adult acts inappropriately

tell!

Does the principle have e mail? If so what if you posted it and we all wrote to

her.

This kind of treatment of your children is WRONG!

I hope you get some action soon.

Carolyn

Mark & Colleen Mancilla wrote:

Vondie,

I am a former teacher and I can't believe a teacher, even a sub, would talk

like that to a child. Also, for the princlpal to think it is okay is

appalling. If you have a 504 plan in place, the staff can not violate or

ignore it. It is the law. I am not sure what state you live in, but with

your 504 plan you should have recieved a copy of parental rights. In that

document there are guidelines for parents to file greivences. Find out what

you need to do, then go to the administration office and tell them you want

to file a grievance because your child's 504 is being ignored. Since you

can take them to court, this will probably get their attention. Take

advantage because here are laws to protect your children. You will be

surprised at how fast things change once the school hears lawsuit. Well, at

least as far as the 504 goes.

Good luck,

Colleen

Mom to Elyse almost 3 w/cf

schools - ugh!!!!!!!!!!!

Hey guys,

Well, I finally have a little time to write. So far, my boys are doing

well. They are on antibiotics for two weeks for a lung thing. Seems like

they always do things together - even if it is getting sick. Then they

passed it to me. So now I am running around trying to stay away from them

and not give it back again. I am sure you all know what I am talking about.

Yesterday I had to drag myself up to the school - again. I am getting

so tired of dealing with this school. They have me to the point of wanting

to smack someone. It is a constant argument with them. Teachers that wont

pay attention to anything. I have come to the conclusion that they dont

care - I mean its not their kids so not their problem. Dont get me wrong,

there are a few that I love to death. We are dealing with " if you leave

class to go to the nurse or the bathroom, you get a tardy. Three tardies

you get after school detention " . I DONT THINK SO! This argument is

ongoing. Yes, we have the 504 plan in place. Not that it does any good.

Last week we had to go to the school over being called a baby in

front of the entire class. I dont know how to shorten this story. Lets

see - substitute teacher. Tells the class they can talk among thereselves.

Of course they get loud. She yells at them (no biggie). She says I dont

want to hear you talk, breath, clear your throat or even cough. Well,

can't help it and coughs (most kids w/cf do). She gets on to him, he

tells her he cant help it, he has a condition that makes him cough. She

says " Fine, if he wants to be a baby about it, then let the baby cough " , in

front of the class. A friend of his stood up and told her not to talk to

him like that, that he had a disease that makes him cough. She told him to

shut up and sit down. So - you can imagine how _issed off I was when he

got home. I called up there to tell her to stay there I was on my way.

Everyone was already gone. (probably a good thing) The next morning we

took it a step above the principal. This was the principals response -

" Kids shouldn't run home every time they are called a name - this is

something they need to learn to deal with - it will happen all through their

lives. " Excuse me, but I think she is full of something, I am just trying

to find a nice word for it. I said " true, they may grow up with it in their

lives - but NOT from a teacher in their school " . Needless to say the other

man we were in front of agreed with me. We filed a complaint and she

probably wont be back in the school again. There was more to the story -

cussing in class and putting kids down for their beliefs. Just an all

around bad deal.

The principal has this philosophy of taking up for the teachers

automatically, wtihout listening to the kids at all.

I am really serious when I say she does not like me anymore. I am

trying not to be overbearing, overprotecting, etc.... But, I am at my wits

end with the whole deal.

They dont get their meds on time half the time (but they cant carry them

themselves). They get each others meds (inhalers), which I have explained

to them that cant keep happening - there is the cross contamination issue.

I dont know. I have taken all the books, tapes etc..... to them.

I have just come to the conclusion that a majority of people dont care

when it does not concern them or their families.

Sorry, just had to gripe for awhile. Didn't mean for it to be so long

winded.

Vondie

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In a message dated 12/9/2003 10:06:06 PM Eastern Standard Time,

mntecrlo@... writes:

> We are dealing with " if you leave class to go to the nurse or the bathroom,

> you get a tardy. Three tardies you get after school detention " . I DONT

> THINK SO! This argument is ongoing. Yes, we have the 504 plan in place. Not

> that it does any good.

>

Does your 504 plan state it??????? Go to top of your school district - then

the Board of Ed of your state. I wonder if you would be better off getting

them classified OTI - other health impaired. If the teachers are stupid about a

504 maybe an IEP would clarify it for them?

Any corrspondence with the school send Certified mail return receipt

requested and keep copies of EVERYTHING in a file.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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She says " Fine, if he wants to be a baby about it, then let the baby

cough " , in front of the class. A friend of his stood up and told her

not to talk to him like that, that he had a disease that makes him

cough. She told him to shut up and sit down.

I'd document everything and go to the Superintendant next time.

There is no excuse for this.

jan

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Go to the Superintentent IMMEDIATELY!!!!!!!!!!! That is awful for SO many

reasons............copy the law and your 504 and/or IEP-highlight it and specify

the violations that the teachers has committed

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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