Re: rectal prolapse/response

[Guest guest]

Hi, this is such a difficult thing to have along with cystic fibrosis! Your

doctor

is suggesting a change to an enzyme (rx) to Creon; you can look that one up

on

you browser by brand name and compare it with the one he has been on. I

will

be a little blung here; I have had surgery for this, as has my youngest

adult " kid, "

for rectal prolapse. It seemed to be a combination of diet (in our case,

less fat),

enzyme balancing and surgery--also we were each prescribed Lactulose syrup

to prevent " pushing " if the stools become hard; Lactulose or equivalent is

also

available in an artificially sweetened suspension (which is what I take).

This will

work out; it is very arduous for all of you, but by the time he is in first

grade,

this should be an event that only rarely occurs--we all fervently hope.

Love to you and yours,

n Rojas, wcf, 66, mom of 3 very mature adults (43,39+ and, 38 (wcf);

the older two are carriers.

rectal prolapse

> hello all: with the wealth of knowledge in this group my wife and i were

> hoping for some help. we are way past the stage of shock and boo hooing

finding

> out our son has cystic fibrosis. he's 3 and a half. our current

dilemma is

> that yesterday he had his second rectal prolapse in the last 5 months.

the

> first time we both went bonkers. " that thing is sticking out of our

son's... "

> we headed immediately to the emergency room after conferring with his

> pediatrician who seemed like it was a normal thing. Mom and dad thought

differently

> of course. Yesterday it happened again and even though dad, me, had to

keep a

> little distance and offer moral support to my wife she gently guided the

> " alien protrubence " back to where it belongs. we spoke to the cf docs

today and

> they want to change his enzymes from pancrease mt10's to " crelon " ? (sp.).

they

> think it may be a sing of malabsorption. we are both confused and don't

want

> to face the possibility of him going and getting this surgically repaired.

> He was admitted 7 times in the first year and a half for blow outs, etc

and has

> been fine since with minor viruses taken care of at home. any info you

all

> could provide would be appreciated.

>

> thanks,

>

> doug and kathy stanley mom and dad to patrick 3 w/cf.

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

Well, that WAS supposed to be " blunt! " You will get used to this!

Love,

n

rectal prolapse

>

>

> > hello all: with the wealth of knowledge in this group my wife and i

were

> > hoping for some help. we are way past the stage of shock and boo hooing

> finding

> > out our son has cystic fibrosis. he's 3 and a half. our current

> dilemma is

> > that yesterday he had his second rectal prolapse in the last 5 months.

> the

> > first time we both went bonkers. " that thing is sticking out of our

> son's... "

> > we headed immediately to the emergency room after conferring with his

> > pediatrician who seemed like it was a normal thing. Mom and dad thought

> differently

> > of course. Yesterday it happened again and even though dad, me, had to

> keep a

> > little distance and offer moral support to my wife she gently guided the

> > " alien protrubence " back to where it belongs. we spoke to the cf docs

> today and

> > they want to change his enzymes from pancrease mt10's to " crelon " ?

(sp.).

> they

> > think it may be a sing of malabsorption. we are both confused and

don't

> want

> > to face the possibility of him going and getting this surgically

repaired.

> > He was admitted 7 times in the first year and a half for blow outs, etc

> and has

> > been fine since with minor viruses taken care of at home. any info you

> all

> > could provide would be appreciated.

> >

> > thanks,

> >

> > doug and kathy stanley mom and dad to patrick 3 w/cf.

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

[Guest guest]

Doug/Kathy

Our daughter Leanne was diagnosed at 2.5 when she had three rectal prolapse

episodes within a two week period. Our primary physician, was has since been

replaced, kept passing her on physicals. She was gaining weight and growing.

No problems, he said. How wrong he was.

Anyway, Leanne is 5.5 and doing well (knock wood). She is in kindergarten

and has not had a prolapse since those dark days in 2001. She was on

lactulose for a few weeks in 01, and eventually all went back to normal. She

takes daily doses of Creon 5. 4 pills with major meals, 3 with snacks. No

side effects or problems.

Best of luck.

Dave and Lesley Poltowicz mom and dad to Lynn (10y ncf) and Leanne 5 (wcf)

Re: rectal prolapse/response

Hi, this is such a difficult thing to have along with cystic fibrosis! Your

doctor

is suggesting a change to an enzyme (rx) to Creon; you can look that one up

on

you browser by brand name and compare it with the one he has been on. I

will

be a little blung here; I have had surgery for this, as has my youngest

adult " kid, "

for rectal prolapse. It seemed to be a combination of diet (in our case,

less fat),

enzyme balancing and surgery--also we were each prescribed Lactulose syrup

to prevent " pushing " if the stools become hard; Lactulose or equivalent is

also

available in an artificially sweetened suspension (which is what I take).

This will

work out; it is very arduous for all of you, but by the time he is in first

grade,

this should be an event that only rarely occurs--we all fervently hope.

Love to you and yours,

n Rojas, wcf, 66, mom of 3 very mature adults (43,39+ and, 38 (wcf);

the older two are carriers.

rectal prolapse

> hello all: with the wealth of knowledge in this group my wife and i were

> hoping for some help. we are way past the stage of shock and boo hooing

finding

> out our son has cystic fibrosis. he's 3 and a half. our current

dilemma is

> that yesterday he had his second rectal prolapse in the last 5 months.

the

> first time we both went bonkers. " that thing is sticking out of our

son's... "

> we headed immediately to the emergency room after conferring with his

> pediatrician who seemed like it was a normal thing. Mom and dad thought

differently

> of course. Yesterday it happened again and even though dad, me, had to

keep a

> little distance and offer moral support to my wife she gently guided the

> " alien protrubence " back to where it belongs. we spoke to the cf docs

today and

> they want to change his enzymes from pancrease mt10's to " crelon " ? (sp.).

they

> think it may be a sing of malabsorption. we are both confused and don't

want

> to face the possibility of him going and getting this surgically repaired.

> He was admitted 7 times in the first year and a half for blow outs, etc

and has

> been fine since with minor viruses taken care of at home. any info you

all

> could provide would be appreciated.

>

> thanks,

>

> doug and kathy stanley mom and dad to patrick 3 w/cf.

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>