Help!!!!!

December 20, 2003

In a message dated 12/19/2003 11:55:52 PM Eastern Standard Time,

palt1234@... writes:

Paxil is one such drug-- it has helped many, but many have also had major

problems with this drug

I was on Paxil CR months ago and I was disappointed because it REALLY helped

me to feel better mentally but physically for some odd reason it made my pain

that much more WORSE, it was unbearable.. so I had to come off.. It's the one

thing that actually helped my anxiety in yrs but the physical side affects

were so bad I had no choice but to stop. I was very disappointed

Robyn

December 20, 2003

I AGREE!!!!

I was on Paxil, Prozac, Wellbutrin, Effexor, etc......

so was my husband.....

we felt soooo poisoned after years of this stuff... made us alot worse!!!

When we turned to natural.... started detoxing, cleansing, nourishing,

rebuilding....

THEN we saw a dramatic turnaround in our health!!!!!

The colon and brain are connected!!!!! Start cleansing the colon and you will

a big difference in the functioning of the brain.

I can help.

sue massie, CNHP

Nature's Garden of Health

732 933-4011

December 20, 2003

Well, I think we can all agree that everyone is individual in what drugs

work for them and what doesn't...

One thing that I hear a lot and have experienced firsthand is that

Effexor is a very strong drug. I am a micro doser and hardly tolerate

most drugs so it just terrifies me to hear of such high doses.

Effexor at 25 mgs often gave me strange neurological symptoms such as

tracers running down the edge of my line of vision. I was told by my old

psycho- pharmacologist that this is a side effect in some people but

usually at higher doses. I also found that Effexor at that small dose

helped my anxiety beautifully. It took me months of taking 1/4 then 1/2

etc... to work up to a full 25 mg and stayed there for a year or so.

Eventually it stopped helping and I tapered off of it.

I have had little help from much else except Prozac, which has been the

tried and true thing for me at a tiny does of 5-10 mgs for years and

years...now have added 1/4 of a 75 mg Wellbutrin and that seems Ok but

when I try to raise it I feel very spacey.

I think that the key to most of these things is to try to get a Dr who

will start at a low dose and work up rather than a huge dose and then

cut it when you have a horrible reaction!

I have thought for a long time that the dosing studies run by drug

companies lean towards a higher dose rather than a lower dose as the

norm.

These people are in the business of selling drugs so it pays to see how

much you can tolerate rather than what is the smallest amount that will

help.

One thing I know is that its best not to just stop Effexor...it has to

be tapered down.

My new psycho pharmacologist says that the cure shouldn't be worse than

the sickness, and is real big on getting patients off of things that

don't seem to be working. He doesn't believe in going through a lot of

pain to get to a point where something maybe works...I'm thankful for

that because I can't afford to feel much worse ;-)

Good luck.

Melina

Re: [ ] HELP!!!!!

In a message dated 12/19/2003 11:55:52 PM Eastern Standard Time,

palt1234@... writes:

Paxil is one such drug-- it has helped many, but many have also had

major

problems with this drug

I was on Paxil CR months ago and I was disappointed because it REALLY

helped

me to feel better mentally but physically for some odd reason it made my

pain

that much more WORSE, it was unbearable.. so I had to come off.. It's

the one

thing that actually helped my anxiety in yrs but the physical side

affects

were so bad I had no choice but to stop. I was very disappointed

Robyn

December 22, 2003

I would just like to say a word of caution to people. Many doctors are

assuming that people with emotional liability and insomnia problems and

fatigue are depressed, and need antidepressants, and rather than running any

kinds of tests to confirm this, are just prescribing antidepressants

randomly in hopes of finding ones that work. I was unfortunate to have a

psychiatrist who did that to me. He prescribed Remeron, and I ended up in

the hospital from seretonin syndrome within 48 hours, from the lowest

possible dose of it. And to make matters worse, they did not recognize it at

first. They thought I was just having panic attack problems. I could have

died from this. And it caused neurological damage that has taken me over a

year to overcome that has been a nightmare.

After the hospitalization, I went to a bioneurofeedback therapist, and she

told me that many people are being wrongly prescribed antidepressants, and

the side effects they often experience are because they are not actually

suffering with seretonin deficiencies. The brain is adaptable for most

people, however, and sometimes adjusts over time, and people assume that

their antidepressant is beginning to work, when in fact they are just

causing adaptation changes in neurotransmitters that were not needed in the

first place. But once those changes take place, then they find themselves

stuck with them because of the addictive nature of them.

She told me that she could have predicted that I would not tolerate

antidepressants at all, because my brain wave patterns don't show

depression. Instead, she told me that I need anti-seizure medication to help

lower the excess high beta wave activity that I have. Depression is

characterized by excess theta wave activity, with decreased alpha and high

beta wave activity. Because most antidepressants raise high beta wave

activity, they can cause an increase in micro-seizure spikes in people who

already have excess high beta wave activity. Many people who have problems

with insomnia and sleep disturbances have excess high beta wave activity,

and probably should not take most antidepressants. Ironically, doctors

prescribe antidepressants as a treatment for insomnia and other problems

that can have other causes than depression, and the horror stories of

people's experiences with antidepressants is something I've heard over and

over again in the years that I've been on a number of psychology and

depression oriented e-mail lists.

I had emotional liability, insomnia, fatigue, and an overreactive autonomic

system. And it was mistaken for depression. It turns out that I have

overactive NMDA receptor sites, and that instead of seretonin, I need

increased GABA, and NMDA antagonists. Antidepressants specifically address

seretonin, and in some cases norepinephrine and dopamine. But they don't

address GABA or NMDA problems. I also have some seizure-like activity, with

temporal lobe micro-seizures and the types of spindle activity typically

found in people who suffer with migraines. But in my case, I don't have

migraines because I am not seretonin deficient. And I seem to have some sort

of ongoing neurological damage. Since finding out that I had Lyme, it all

begins to make sense.

There are tests that can (and should!) be done before a person takes ANY

antidepressant, to check for low seretonin or norepinephrine levels, before

antidepressants are taken. And EEG's (or preferably qEEG's) can determine

brain wave pattern problems that could complicate antidepressant treatment.

In fact, many bioneurofeedback therapists can predict before hand how a

person would respond to different neurological medications, including

antidepressants. An fMRI can predict within the first few days of

antidepressant use whether an antidepressant will work. Better yet, an fMRI

BEFORE taking antidepressants, can tell whether a person actually suffers

from depression or not. (SPECT scans can also be used to show this.)

And because of the possibility of having life-threatening reactions to

antidepressants, or causing neurological damage from their use, or suffering

with other serious and disabling side effects, it is unconscionable that

most doctors don't run any of these tests. Instead they treat patients like

guinea pigs, trying one antidepressant after another, without realizing that

those antidepressants can cause the very damage they are intended to treat,

if not other worse damage. It is like playing Russian Roulette with patients

lives. And the risk of side effects with antidepressants is significant.

Why take an unnecessary medication, even if your body may eventually adapt

to using it? Why risk causing neurological damage that can be disabling? In

my case, my body would not have adapted quickly enough. And I was fortunate

that someone finally recognized what was going on. But I could have been

unlucky. I could have died. People sometimes do develop disabling problems

from antidepressant use, such as dystonia, tardive dyskinesia, suicidal

behavior, irrational behavior (which can vary from apathy, to irresponsible

behavior to serious risk-taking behavior, to bordering on bizarre), to

psychotic episodes, to seizures, development of panic attack problems, and a

myriad of health problems, both neurological as well as affecting other

areas of the body.

On top of this, a year or so ago I remember reading a research abstract that

found increased incidence of breast cancer in women who used

antidepressants. In most cases, the increased rates occurred with as little

as two months of antidepressant use, and with five years of use the breast

cancer rate was sky high. Also there has been speculation that

antidepressants may cause an increase in brain tumors, because they prevent

cell apoptosis. I also remember reading that long-term use of

antidepressants (specifically Prozac, but they concluded that other

antidepressants might cause the same problem) can cause the brain to

decrease in size, and a study that found that the increased production of

neurons in the brain that antidepressants have been attributed with, showed

that those new neurons were disorganized in the same patterns as those found

in autistic patients. And they are now predicting that antidepressants may

contribute to earlier onset of Parkinson's and increases in Alzheimer's in

the elderly because of the way antidepressants whip the brain into

overproduction of neurotransmitters, which can eventually burn the neurons

out. They have also found that antidepressants can actually increase the

suicide rate, rather than decreasing it. And antidepressants have been

linked with violent behavior.

Pharmaceutical companies have been sued and lost repeatedly in court systems

in the US and other countries because of falsifying information to the FDA

for drug approval, and labeling antidepressants as non-addictive, when

clinical use has clearly shown addictive problems in some people. They have

been fined by the FDA for trying to manipulate doctors into prescribing

antidepressants for off-label use. They have been fined for false

advertising on TV and in magazine ads. They have repeatedly used illegal

tactics to sell antidepressants, and have caused incredible damage to the

lives of millions of people by their hard sell tactics. For all the good

that antidepressants have done, they have done far worse to a lot of people.

They are not innocent little pills that people can take when they lack

sufficient coping skills or have insufficient adrenal function to be able to

cope with problems, or have other non-seretonin related neurological

problems. But all too often I hear people who have taken them and had no

problems, recommending them to everyone as though they are Tylenol for a

headache. And all too often I hear of doctors,who should know better,

treating them the same way. But doctors are indoctrinated in the propaganda

that the pharmaceutical companies use to promote the sale of them.

I'm not saying don't use antidepressants at all. But I do believe that they

should be used with far more caution, and by far fewer people than currently

use them.

lindaj@...

October 5, 2008

My son Jayden has had the Hanger cranial band for two weeks now.

The only issue we had at first was his cheeks got some abrasions and

the band needed an adjustment then he was fine. NOW....omg. Yesterday

he was fine. Today when I took off his helmet to wash it and give him a

bath his ENTIRE head (even the area on the top that is OPEN and shows

his hair) is covered in blisters/boils that are red and seem to be

filled with liquid or puss. ALL OVER. He screamed when I took the band

off. I called the on call line but all they could tell me was to leave

it off till we see his orthotist. Has anyone ever had something like

this happen? I have heard he may get a blister or irritation on

the " high " places where the band was holding his head but this is

EVERYWHERE and it looks disgusting! Some of the blisters have popped

and look so painful. Its just odd that there was nothing at all

yesterday and today his entire head is covered in them. Any thoughts?

Suggestions??? Please help!

October 5, 2008

I'm so sorry to hear this. It sounds like either an allergic reaction

or infection of some type. I would take him to the ped too. The poor

guy. Hopefully if someone else has seen this they will reply. I would

probably try neosporin on the head to help it heal, but still try to

see your ped.

Some babies are allergic to the foam. I know starband has 2 types of

foam, and the one called aliplast (sp?) is the one that is more

hypoallergenic. I'm not sure about Hanger. I've also heard of one or

two babies wearing a thin " sock " on the head. I think it is a cotton

stocking they use to smooth the hair when they scan the head. You

might check the old messages for this.

-christine

sydney 2.5 yrs starband grad

>

> My son Jayden has had the Hanger cranial band for two weeks now.

> The only issue we had at first was his cheeks got some abrasions and

> the band needed an adjustment then he was fine. NOW....omg. Yesterday

> he was fine. Today when I took off his helmet to wash it and give him a

> bath his ENTIRE head (even the area on the top that is OPEN and shows

> his hair) is covered in blisters/boils that are red and seem to be

> filled with liquid or puss. ALL OVER. He screamed when I took the band

> off. I called the on call line but all they could tell me was to leave

> it off till we see his orthotist. Has anyone ever had something like

> this happen? I have heard he may get a blister or irritation on

> the " high " places where the band was holding his head but this is

> EVERYWHERE and it looks disgusting! Some of the blisters have popped

> and look so painful. Its just odd that there was nothing at all

> yesterday and today his entire head is covered in them. Any thoughts?

> Suggestions??? Please help!

>

October 5, 2008

Antonia, i am so sorry for you and your son, i don't have much advice but was wonderingwhat you washed the band with? Maybe he had a reaction to the cleanser you used or thecleanser reacted with the foam in the helmet? My son has also had his hanger helmet for two week and we have been cleaning it with alcohol and once a day washing it with 's and and making sure it super dry. Also do you think he got two hot? Wish i had better advice but maybe someone will have more advice, good luck and hang in there. From: Antonia <mommy2jaylina@...>Subject: Help!!!!!To:

Plagiocephaly Date: Sunday, October 5, 2008, 11:43 PM