Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 In a message dated 12/19/2003 11:55:52 PM Eastern Standard Time, palt1234@... writes: Paxil is one such drug-- it has helped many, but many have also had major problems with this drug I was on Paxil CR months ago and I was disappointed because it REALLY helped me to feel better mentally but physically for some odd reason it made my pain that much more WORSE, it was unbearable.. so I had to come off.. It's the one thing that actually helped my anxiety in yrs but the physical side affects were so bad I had no choice but to stop. I was very disappointed Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 I AGREE!!!! I was on Paxil, Prozac, Wellbutrin, Effexor, etc...... so was my husband..... we felt soooo poisoned after years of this stuff... made us alot worse!!! When we turned to natural.... started detoxing, cleansing, nourishing, rebuilding.... THEN we saw a dramatic turnaround in our health!!!!! The colon and brain are connected!!!!! Start cleansing the colon and you will a big difference in the functioning of the brain. I can help. sue massie, CNHP Nature's Garden of Health 732 933-4011 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Well, I think we can all agree that everyone is individual in what drugs work for them and what doesn't... One thing that I hear a lot and have experienced firsthand is that Effexor is a very strong drug. I am a micro doser and hardly tolerate most drugs so it just terrifies me to hear of such high doses. Effexor at 25 mgs often gave me strange neurological symptoms such as tracers running down the edge of my line of vision. I was told by my old psycho- pharmacologist that this is a side effect in some people but usually at higher doses. I also found that Effexor at that small dose helped my anxiety beautifully. It took me months of taking 1/4 then 1/2 etc... to work up to a full 25 mg and stayed there for a year or so. Eventually it stopped helping and I tapered off of it. I have had little help from much else except Prozac, which has been the tried and true thing for me at a tiny does of 5-10 mgs for years and years...now have added 1/4 of a 75 mg Wellbutrin and that seems Ok but when I try to raise it I feel very spacey. I think that the key to most of these things is to try to get a Dr who will start at a low dose and work up rather than a huge dose and then cut it when you have a horrible reaction! I have thought for a long time that the dosing studies run by drug companies lean towards a higher dose rather than a lower dose as the norm. These people are in the business of selling drugs so it pays to see how much you can tolerate rather than what is the smallest amount that will help. One thing I know is that its best not to just stop Effexor...it has to be tapered down. My new psycho pharmacologist says that the cure shouldn't be worse than the sickness, and is real big on getting patients off of things that don't seem to be working. He doesn't believe in going through a lot of pain to get to a point where something maybe works...I'm thankful for that because I can't afford to feel much worse ;-) Good luck. Melina Re: [ ] HELP!!!!! In a message dated 12/19/2003 11:55:52 PM Eastern Standard Time, palt1234@... writes: Paxil is one such drug-- it has helped many, but many have also had major problems with this drug I was on Paxil CR months ago and I was disappointed because it REALLY helped me to feel better mentally but physically for some odd reason it made my pain that much more WORSE, it was unbearable.. so I had to come off.. It's the one thing that actually helped my anxiety in yrs but the physical side affects were so bad I had no choice but to stop. I was very disappointed Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I would just like to say a word of caution to people. Many doctors are assuming that people with emotional liability and insomnia problems and fatigue are depressed, and need antidepressants, and rather than running any kinds of tests to confirm this, are just prescribing antidepressants randomly in hopes of finding ones that work. I was unfortunate to have a psychiatrist who did that to me. He prescribed Remeron, and I ended up in the hospital from seretonin syndrome within 48 hours, from the lowest possible dose of it. And to make matters worse, they did not recognize it at first. They thought I was just having panic attack problems. I could have died from this. And it caused neurological damage that has taken me over a year to overcome that has been a nightmare. After the hospitalization, I went to a bioneurofeedback therapist, and she told me that many people are being wrongly prescribed antidepressants, and the side effects they often experience are because they are not actually suffering with seretonin deficiencies. The brain is adaptable for most people, however, and sometimes adjusts over time, and people assume that their antidepressant is beginning to work, when in fact they are just causing adaptation changes in neurotransmitters that were not needed in the first place. But once those changes take place, then they find themselves stuck with them because of the addictive nature of them. She told me that she could have predicted that I would not tolerate antidepressants at all, because my brain wave patterns don't show depression. Instead, she told me that I need anti-seizure medication to help lower the excess high beta wave activity that I have. Depression is characterized by excess theta wave activity, with decreased alpha and high beta wave activity. Because most antidepressants raise high beta wave activity, they can cause an increase in micro-seizure spikes in people who already have excess high beta wave activity. Many people who have problems with insomnia and sleep disturbances have excess high beta wave activity, and probably should not take most antidepressants. Ironically, doctors prescribe antidepressants as a treatment for insomnia and other problems that can have other causes than depression, and the horror stories of people's experiences with antidepressants is something I've heard over and over again in the years that I've been on a number of psychology and depression oriented e-mail lists. I had emotional liability, insomnia, fatigue, and an overreactive autonomic system. And it was mistaken for depression. It turns out that I have overactive NMDA receptor sites, and that instead of seretonin, I need increased GABA, and NMDA antagonists. Antidepressants specifically address seretonin, and in some cases norepinephrine and dopamine. But they don't address GABA or NMDA problems. I also have some seizure-like activity, with temporal lobe micro-seizures and the types of spindle activity typically found in people who suffer with migraines. But in my case, I don't have migraines because I am not seretonin deficient. And I seem to have some sort of ongoing neurological damage. Since finding out that I had Lyme, it all begins to make sense. There are tests that can (and should!) be done before a person takes ANY antidepressant, to check for low seretonin or norepinephrine levels, before antidepressants are taken. And EEG's (or preferably qEEG's) can determine brain wave pattern problems that could complicate antidepressant treatment. In fact, many bioneurofeedback therapists can predict before hand how a person would respond to different neurological medications, including antidepressants. An fMRI can predict within the first few days of antidepressant use whether an antidepressant will work. Better yet, an fMRI BEFORE taking antidepressants, can tell whether a person actually suffers from depression or not. (SPECT scans can also be used to show this.) And because of the possibility of having life-threatening reactions to antidepressants, or causing neurological damage from their use, or suffering with other serious and disabling side effects, it is unconscionable that most doctors don't run any of these tests. Instead they treat patients like guinea pigs, trying one antidepressant after another, without realizing that those antidepressants can cause the very damage they are intended to treat, if not other worse damage. It is like playing Russian Roulette with patients lives. And the risk of side effects with antidepressants is significant. Why take an unnecessary medication, even if your body may eventually adapt to using it? Why risk causing neurological damage that can be disabling? In my case, my body would not have adapted quickly enough. And I was fortunate that someone finally recognized what was going on. But I could have been unlucky. I could have died. People sometimes do develop disabling problems from antidepressant use, such as dystonia, tardive dyskinesia, suicidal behavior, irrational behavior (which can vary from apathy, to irresponsible behavior to serious risk-taking behavior, to bordering on bizarre), to psychotic episodes, to seizures, development of panic attack problems, and a myriad of health problems, both neurological as well as affecting other areas of the body. On top of this, a year or so ago I remember reading a research abstract that found increased incidence of breast cancer in women who used antidepressants. In most cases, the increased rates occurred with as little as two months of antidepressant use, and with five years of use the breast cancer rate was sky high. Also there has been speculation that antidepressants may cause an increase in brain tumors, because they prevent cell apoptosis. I also remember reading that long-term use of antidepressants (specifically Prozac, but they concluded that other antidepressants might cause the same problem) can cause the brain to decrease in size, and a study that found that the increased production of neurons in the brain that antidepressants have been attributed with, showed that those new neurons were disorganized in the same patterns as those found in autistic patients. And they are now predicting that antidepressants may contribute to earlier onset of Parkinson's and increases in Alzheimer's in the elderly because of the way antidepressants whip the brain into overproduction of neurotransmitters, which can eventually burn the neurons out. They have also found that antidepressants can actually increase the suicide rate, rather than decreasing it. And antidepressants have been linked with violent behavior. Pharmaceutical companies have been sued and lost repeatedly in court systems in the US and other countries because of falsifying information to the FDA for drug approval, and labeling antidepressants as non-addictive, when clinical use has clearly shown addictive problems in some people. They have been fined by the FDA for trying to manipulate doctors into prescribing antidepressants for off-label use. They have been fined for false advertising on TV and in magazine ads. They have repeatedly used illegal tactics to sell antidepressants, and have caused incredible damage to the lives of millions of people by their hard sell tactics. For all the good that antidepressants have done, they have done far worse to a lot of people. They are not innocent little pills that people can take when they lack sufficient coping skills or have insufficient adrenal function to be able to cope with problems, or have other non-seretonin related neurological problems. But all too often I hear people who have taken them and had no problems, recommending them to everyone as though they are Tylenol for a headache. And all too often I hear of doctors,who should know better, treating them the same way. But doctors are indoctrinated in the propaganda that the pharmaceutical companies use to promote the sale of them. I'm not saying don't use antidepressants at all. But I do believe that they should be used with far more caution, and by far fewer people than currently use them. lindaj@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 My son Jayden has had the Hanger cranial band for two weeks now. The only issue we had at first was his cheeks got some abrasions and the band needed an adjustment then he was fine. NOW....omg. Yesterday he was fine. Today when I took off his helmet to wash it and give him a bath his ENTIRE head (even the area on the top that is OPEN and shows his hair) is covered in blisters/boils that are red and seem to be filled with liquid or puss. ALL OVER. He screamed when I took the band off. I called the on call line but all they could tell me was to leave it off till we see his orthotist. Has anyone ever had something like this happen? I have heard he may get a blister or irritation on the " high " places where the band was holding his head but this is EVERYWHERE and it looks disgusting! Some of the blisters have popped and look so painful. Its just odd that there was nothing at all yesterday and today his entire head is covered in them. Any thoughts? Suggestions??? Please help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 I'm so sorry to hear this. It sounds like either an allergic reaction or infection of some type. I would take him to the ped too. The poor guy. Hopefully if someone else has seen this they will reply. I would probably try neosporin on the head to help it heal, but still try to see your ped. Some babies are allergic to the foam. I know starband has 2 types of foam, and the one called aliplast (sp?) is the one that is more hypoallergenic. I'm not sure about Hanger. I've also heard of one or two babies wearing a thin " sock " on the head. I think it is a cotton stocking they use to smooth the hair when they scan the head. You might check the old messages for this. -christine sydney 2.5 yrs starband grad > > My son Jayden has had the Hanger cranial band for two weeks now. > The only issue we had at first was his cheeks got some abrasions and > the band needed an adjustment then he was fine. NOW....omg. Yesterday > he was fine. Today when I took off his helmet to wash it and give him a > bath his ENTIRE head (even the area on the top that is OPEN and shows > his hair) is covered in blisters/boils that are red and seem to be > filled with liquid or puss. ALL OVER. He screamed when I took the band > off. I called the on call line but all they could tell me was to leave > it off till we see his orthotist. Has anyone ever had something like > this happen? I have heard he may get a blister or irritation on > the " high " places where the band was holding his head but this is > EVERYWHERE and it looks disgusting! Some of the blisters have popped > and look so painful. Its just odd that there was nothing at all > yesterday and today his entire head is covered in them. Any thoughts? > Suggestions??? Please help! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 Antonia, i am so sorry for you and your son, i don't have much advice but was wonderingwhat you washed the band with? Maybe he had a reaction to the cleanser you used or thecleanser reacted with the foam in the helmet? My son has also had his hanger helmet for two week and we have been cleaning it with alcohol and once a day washing it with 's and and making sure it super dry. Also do you think he got two hot? Wish i had better advice but maybe someone will have more advice, good luck and hang in there. From: Antonia <mommy2jaylina@...>Subject: Help!!!!!To: Plagiocephaly Date: Sunday, October 5, 2008, 11:43 PM My son Jayden has had the Hanger cranial band for two weeks now. The only issue we had at first was his cheeks got some abrasions and the band needed an adjustment then he was fine. NOW....omg. Yesterday he was fine. Today when I took off his helmet to wash it and give him a bath his ENTIRE head (even the area on the top that is OPEN and shows his hair) is covered in blisters/boils that are red and seem to be filled with liquid or puss. ALL OVER. He screamed when I took the band off. I called the on call line but all they could tell me was to leave it off till we see his orthotist. Has anyone ever had something like this happen? I have heard he may get a blister or irritation on the "high" places where the band was holding his head but this is EVERYWHERE and it looks disgusting! Some of the blisters have popped and look so painful. Its just odd that there was nothing at all yesterday and today his entire head is covered in them. Any thoughts? Suggestions? ?? Please help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 This is very rare - I can't say that I've heard of a rash like this honestly! It could be some sort of allergic reaction - though I don't remember anyone having an allergic reaction to a hanger. What did you clean it with? Maybe he was reacting to that??? I am so sorry Jayden is going thru all this!!! Just keep it off... I hope the ortho can help you!!! Jen and Luli - 2.5 years old Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ Help!!!!! My son Jayden has had the Hanger cranial band for two weeks now. The only issue we had at first was his cheeks got some abrasions and the band needed an adjustment then he was fine. NOW....omg. Yesterday he was fine. Today when I took off his helmet to wash it and give him a bath his ENTIRE head (even the area on the top that is OPEN and shows his hair) is covered in blisters/boils that are red and seem to be filled with liquid or puss. ALL OVER. He screamed when I took the band off. I called the on call line but all they could tell me was to leave it off till we see his orthotist. Has anyone ever had something like this happen? I have heard he may get a blister or irritation on the "high" places where the band was holding his head but this is EVERYWHERE and it looks disgusting! Some of the blisters have popped and look so painful. Its just odd that there was nothing at all yesterday and today his entire head is covered in them. Any thoughts? Suggestions??? Please help! McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 I am SHOCKED that the ortho told you to clean with J & J in the band - that's totally against protocal! The shampoo can get in the foam and stay there then leaching out to the babies skin. Industry standards are that ti ONLY e cleaned with rubbing alchohol... and that 91% is best. Reconfirm those instructions... We had a hanger and the sheet they gave us clearly says to only clean with alcohol. Of course, Hanger can be lacking in the consistancy dept... maybe the ortho didn't know better? Jen and Luli - 2.5 years old Left tort - Right Plagio - Hanger Band Grad - CA http://www.babiesonline.com/babies/j/jens5th/ Re: Help!!!!! I too use s and s to clean the helmet following with rubbing alcohol. His orthotist actually gave us intructions to CLEAN WITH BABY shampoo and follow with alcohol. I guess it could be that he got hot, but...I mean that is pretty much unpreventable! I just think it's odd this happened two weeks into the band and these boils are ALL over his entire head. The on call person at Hanger said to leave the helmet off till I get in for the next available appointment. I was just wondering if anyone else had dealt with this crazy stuff. I feel so bad cause he keeps rubbing his head and whining and he is always the best baby. McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 I'm so sorry to hear your little one is uncomfortable. We were also instructed to never use soap on the hanger band - just the isopropyl alcholol. Not sure if the J & J could cause the rash, but our ortho always implies that using soap can cause a rash b/c of the interaction with foam; so perhaps 2 weeks of soap build-up could have caused this. But boils and puss? That does sound more like an allergic reaction to the foam itself... Keep us posted and I hope it gets better soon! kristine (mom to ava; 3 mos in hanger band) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 I am so sorry that you are going through all of this. My prayers will be with your little one for a swift recovery. Hopefully it is an easy fix and you can resume treatment soon. Tammy From: kp7523 <kris345@...>Subject: Re: Help!!!!!Plagiocephaly Date: Monday, October 6, 2008, 12:44 PM I'm so sorry to hear your little one is uncomfortable. We were also instructed to never use soap on the hanger band - just the isopropyl alcholol. Not sure if the J & J could cause the rash, but our ortho always implies that using soap can cause a rash b/c of the interaction with foam; so perhaps 2 weeks of soap build-up could have caused this. But boils and puss? That does sound more like an allergic reaction to the foam itself...Keep us posted and I hope it gets better soon!kristine (mom to ava; 3 mos in hanger band) Quote Link to comment Share on other sites More sharing options...
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