RE: Rectal prolapse & CF

[Guest guest]

Hi Amy,

That is how my son was dx with CF. He had rectal prolapse and the Dr. said

lets test him just to rule it out. Well it obviously wasn't ruled out. He was

a little over 3 and had been potty trained about 5 months.

One suggestion my DR. had was to put his feet on a stool when he goes to the

bathroom. We only had about 6 or 7 prolapses. After going on enzymes they

seem to have stopped.

Good luck I know it is trying when this happens.

mom to Josh 9 1/2 wcf and Cohrn's disease and 4 1/2 who la di

das through life

[Guest guest]

Amy,

This is probably one of the main reasons why we pushed our doctor to find

out what was wrong with Steph. When she was just learning to go on the

potty and until she was diagnosed at age 5, we had many many episodes of

rectal prolapse. What happens is that they still feel like they need to go

and push an that is what happens. With , what we did is talked to

her about not pushing when she thinks she has to go. She would take a book

or a video game or something and just sit on the toilet or the potty chair

until the pushing sensation would subside. Sometimes she would spend 15 or

20 minutes just looking at books or playing a game. I also think that there

are certain foods that cause a type of diarrhea that makes this worse.

She learned to control this. To this day, when she goes to the bathroom,

along goes a book. She just turned 18 yesterday.

There is light at the end of the tunnel. Best wishes to your son and hope

this episode in the cf disease book passes soon.

Tina W., mother of Steph, 18yo wcf

Rectal prolapse & CF

Hi,

I have a 3 year old son with CF, diagnosed at birth (meconium ileus). He's

had infrequent rectal prolapses since about age one. He's been on enzymes

since birth & shows no signs of malabsorption (50th percentile weight &

height). The CF doc added pepcid to the daily routine about a year ago &

the prolapses seemed to decrease. We didn't see one for about six months or

so until the recent introduction of going on the potty. We've had about six

occurrences in the last 3 weeks. My son is able to tell me when he feels

the prolapse. He tries not to push hard to keep it from happening. We keep

him well hydrated & give lots of fibrous foods. Has anyone else been

through this? Our doctor has not had this issue with any other of the CF

patients. I can't help but think it's somehow related to the meconium ileus

obstruction.

Thanks,

Amy, mom to mac, 3 w/cf & owen, 1 nocf (PGD baby)

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