HELP!!! Does Die-Off Include Violent Screaming?????

November 26, 2006

Oh my God! What the h*** is going on with my son? I know I mentioned

earlier that he had this new " scream " but my God!!!! He is screaming in

his crib NON-STOP, since bedtime. I took him out and let him sit in bed

with me to watch TV, and he got a bit better. Then as soon as he went

back into bed, the HORRIBLE screaming (really does HURT my ears)

begins. I know this is not terrible 2/3 behaviors, as he has never done

this before. Never! He also seems to feel pretty warm (maybe a mild

fever?), and there is a rash in his " upper " groin area too that wasn't

there before. I saw it at bedtime. I did give him the charcoal (still

not sure if it is legal brand....can someone please answer that?) but

didnt' seem to help at all. I only gave him plain turkey burger

w/garlic for dinner and apple cider, just to be safe, so it shouldn't

be the food, unless the carrots are still bothering him. He has had

about 5 formed stools today, so they look ok too I think.

I AM REALLY WORRIED ABOUT HIM, and dh is ready to take him to the ER.

He seems to be in pain.....so please let me know what I should do!!!!!

November 26, 2006

OK, he has calmed down a bit for now....finally! I didn't think he

would ever quit screaming. I have never heard him scream like that!

My husband is losing it, BUT he finally is on board with something we

are doing for Ben (many doubts about DAN docs, therapies, etc). I fly

solo on most everything here, and do all the research, make the

decisions on Ben, as my dh gets way too overloaded on it (as I am

finding a lot of the daddys are). Any of you go through that too?

Anyway, he does think this will be THE thing to bring Ben back to us.

I pray he is right. ;-)

Patti - I just got your email, so thanks! Ugh, what a horrible

evening. I'm going to go soak my head! Gosh, I hope things are headed

up from here! :-)

oh, and I did pick up Candex from the store yesterday. WHen do I

start it up? I also got the Scdophilus from GI Pro Health...I

thought Elaine said to start no sooner than 5 days on the diet? Is

that right? We started the enzymes yesterday (Kirkman DPP-IV one)

with 1/2 tp 3/4 cap on his meals. DOes that sound right?

Just want to make sure I am doing this right..... ;-)

Thanks,

In pecanbread , " v_parker7 " wrote:

>

> Oh my God! What the h*** is going on with my son? I know I

mentioned

> earlier that he had this new " scream " but my God!!!! He is

screaming in

> his crib NON-STOP, since bedtime. I took him out and let him sit in

bed

> with me to watch TV, and he got a bit better. Then as soon as he

went

> back into bed, the HORRIBLE screaming (really does HURT my ears)

> begins. I know this is not terrible 2/3 behaviors, as he has never

done

> this before. Never! He also seems to feel pretty warm (maybe a mild

> fever?), and there is a rash in his " upper " groin area too that

wasn't

> there before. I saw it at bedtime. I did give him the charcoal

(still

> not sure if it is legal brand....can someone please answer that?)

but

> didnt' seem to help at all. I only gave him plain turkey burger

> w/garlic for dinner and apple cider, just to be safe, so it

shouldn't

> be the food, unless the carrots are still bothering him. He has had

> about 5 formed stools today, so they look ok too I think.

>

> I AM REALLY WORRIED ABOUT HIM, and dh is ready to take him to the

ER.

> He seems to be in pain.....so please let me know what I should

do!!!!!

>

November 26, 2006

,

Sorry you are going through a rough time right now. It is very scarey when

our children scream and we don't know what is going on and whether or not to

take them to the ER, etc. I am glad to hear he has calmed down.

You might want to back off on the enzymes somewhat to an even smaller amount

and work your way up from there. Make sure not to add more than one supplement

at a time (give several days in between each addition) to make he can tolerate

them. If you add too many new things at once, you won't know what might be

causing a problem. Also, with each supplement start off with a small amount and

gradually increase over a period of time to make sure he can tolerate it.

In answer to another question you asked earlier (I am the one who said my twin

boys still do not tolerate carrots very well but do fine with the butternut or

acorn squash) I just cook my squash very well and then mash it. I don't always

puree it in the blender as long as I can mash it up really well.

Praying your son gets to feeling better soon.

Dana

Garrett and

SCD 5 1/2 months

Celiac, Developmental Delays

v_parker7 wrote: