Pain Management

[Guest guest]

Fred,

I am so sorry that the neuropathy is causing you such pain. It is very

hard to deal with. I had a really bad time before they put me on the

Elavil. Unfortunately, Elavil doesn't work on most people. I just happen

to be one of the ones it does work for. A neurologist who deals with

pain definetly sounds like what you need. I wish you were out where I

am as my pain management doctor is a neurologist and I could refer you

to him. Unfortunately, I live in CA. Have you tried calling your

insurance company for a l ist of pain doctors in your area? I know that

most insurance companies have such lists and it might help you get the

help you need. You could also call the state medical board for a list

of pain doctors in your area. I wish I could help ease your pain.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Fred,

I am so sorry to hear of your problems with finding an adequate pain

management from the doctors you are currently seeing for your

pancreatitis. Have you tried going to a teaching hospital/clinic,

someplace affiliated with a University? I have found out that they

are the best with dealing with illnesses such as what we have and are

more apt to know the latest in treatment. They are more up-to-date

with this illness and what it takes to affect meaningful relief from

the effects of this illness. It wasn't until I went to Tulane

Medical Center in new Orleans did I even get a diagnosis for what I

had been suffering with for, at the time, 25 years. It was also the

1st time I was given adequate treatment for it too.

Once again, I am so sorry to hear of your current problems with

getting the necessary pain meds to control your symptoms. However, I

don't think you will be able to get the relief you seek unless you

try this avenue of treatment.

Andre'

> hi kimber,

> i have a neurologist and take all sorts of stuff for the

neuropothy.

> it seems that high 3600 neurontin helps a little but the opiods are

> better but you need alot. i also have chronic and acute

pancreatitis

> and its getting so bad i dont know what to do. thanks for the email

> but the neurologists and endocrynologists bvoth say i need a pain

dr.

> but neither one knows any. the pain center doesnt treat nerve pain

or

> pancreatitis. im sure ill find a pain dr. but in the meantime im

> suffering and its srewing uop my life, thanks,fred

[Guest guest]

Fred,

You need to be totally honest with your physician who specializes in opiates.

He is only asking questions to figure out how to control your pain. I know

sometimes the questions are embarrasing but he is a physician so he's probably

heard all kinds of things. Did you say that you were on Elavil? What strength

do you take? My GI doc has increased mine to 75mg at bedtime. It has helped

tremendously.

Take Care

Patty Duley

[Guest guest]

Fred,

don't worry about complaining. We all need to do it from time to time.

That's part of the reason this board is for. I'm sorry the elavil

didn't work for you. Evidently, it doesn't work for a majority of people

with neuropathy. I just happen to be one of the rare persons that the

stuff works on. Have you seen a neurologist about the neuropathy? I

know that's the type of doctor I saw for mine. I hope you can find a

compassionate doctor who can help you deal with this problem.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Lucy,

You mention you have PC what is that exactly? Do you mean CP?

Just curious.

Patty Duley

[Guest guest]

Yes, I am so sorry I get so mixed up confused and can't remember a thing. I take

so many pain pills, antidepresents, and sleeping pills don't work I can't sleep

at nite. the pill gives me energy usually. I itch all over My face looks so bad

I am afraid to go outside my arms I pick until I have holes its bad I know I am

so depressed with this PC I don't know if I am coming or going. I have a surgery

coming up in Sept 1st to put my pump hose back in it fell out at the spine. I

don't know if you know about morphine pumps, sometimes they help and sometimes

the get too high and cause another side effect. Patty, I am so sorry I am

rambling on. I am very tired of this and don't know how much longer I can deal

with this. I have no job anymore can't do it. I had my own business for 17yrs

doing houscleaning. it was good money and we could sure use it now. Well I

guess I am venting also so sorry you had to listen. thanks for correcting me.

Lucy

[Guest guest]

Pain can be just abdominal pain. Just hurts.

Inconsistency is the biggest problem. Cant always

relate what I ate that might have caused digestion

problem.Then I get very anxious, feeling I cant

manage the abdominal pain. Example: I ate turkey

from Fresh Market, and then had pain next day,

not great digestion, but not too bad. Had to guess

it was preservatives in the turkey. I usually do

well eating meat and vegetable, some fresh fruit.

The hot weather doesnt help. I wake up in pain,

sometimes alleviated by going to bathroom, but that

could be up to two hours after I wake up.

Dont want meds, want to control what I eat better.

Thank You! Is there such a thing as too much protein?

> >Not looking for pain drugs,I know side effects

> >?Any thoughts on managing pain,

> >and being discouraged when in pain?

> >Does heating pad of hot water bottle, bath? help anyone

>

> What type of pain? The ways to manage it depends on the type of pain.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>