Re: CF in the OTHER child, too??...Nope!

[Guest guest]

Hi there,

No, healthy children or adults do not culture Pseudomonas Aeroginosas

in their respiratory system. Maybe in burns, urinary tract infections

or external ear infections.

There are other types of Pseudomonas, not aeroginosas, that healthy

people may culture but mostly there has to be an underlying cause, as

cancer, HIV, etc.

On the other hand the culture of PA's is just as good as the lab tech

that does it. Because, PA's are everywhere, i.e. moist and warm,

sputums can be contaminated just as easily. Have the doctor repeat

the culture.

My daughter is 10, was diagnosed at almost 9 and was just as " normal "

as you can imagine, a cold here and there, but never much of a

problem. Until a pneumonia that would not go away, and subsequent

lung damage. But she is pancreatic sufficient, so check it out

further.

Good luck,

> Hi, everyone. I haven't posted or checked messages in several

> months, but I'm in need of some info, so I'm back!

>

> I'll try to make this short. . . (big breath) . . .

>

> My 6 year old, Emma was diagnosed in January. She is so much

> healthier now and we're adjusting to things very well.

>

> To complicate things, Emma's dx came about 4 weeks after my dad was

> diagnosed with Cancer. It was a long, hard-fought battle, but he

> passed away two weeks ago.

>

> Now for phase 3. . . my three year old son went to the ped. last

week

> for throat, nose, cough problems. (He has some chronic ENT

issues.)

> They did a sputum. culture to check for strep, and the culture

came

> back with a report of HEAVY PSEUDOMONAS AURIGINOSA! The ped. was

> confused. To make a long story short, we were drug into the doc.

> yesterday, who correlated with Emma's CF doctor and on's ENT,

> who both were perplexed. He was sweat tested and came back normal

at

> 14 twice. He does have all the sinus symptoms, the chronic cough,

> reflux (Nissen), gets c-diff on occasion , but NO gastro problems.

>

> They drew blood for the Ambry test, which will be back in a few

> weeks. As for now, they have to figure out whether the Pseudomonas

> is in the sinuses or the chest and a game plan to get rid of it.

I'm

> SOOOOO confused and wondered if I could get some insight. Here's

> what I'm wondering:

>

> 1. In a case of siblings having CF, don't they typically present

the

> same symptoms since they have they exact same mutations and

> enviroment? Emma is pancreatic insufficient and has weight gain

> problems. on is chubby.

>

> 2. Have you ever heard of a sweat test being SO negative with a CF

> diagnosis anyway? I do know it is possible, but at that low a

number?

>

> 3. What about Pseudomonas in kids without CF? Ever come across

that?

>

> Any insight would be greatly appreciated. I'm one who likes to be

up

> with my own research before I dive into what they have to say.

>

> Thanks a bunch!

>

> in AR