Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 hello all: with the wealth of knowledge in this group my wife and i were hoping for some help. we are way past the stage of shock and boo hooing finding out our son has cystic fibrosis. he's 3 and a half. our current dilemma is that yesterday he had his second rectal prolapse in the last 5 months. the first time we both went bonkers. " that thing is sticking out of our son's... " we headed immediately to the emergency room after conferring with his pediatrician who seemed like it was a normal thing. Mom and dad thought differently of course. Yesterday it happened again and even though dad, me, had to keep a little distance and offer moral support to my wife she gently guided the " alien protrubence " back to where it belongs. we spoke to the cf docs today and they want to change his enzymes from pancrease mt10's to " crelon " ? (sp.). they think it may be a sing of malabsorption. we are both confused and don't want to face the possibility of him going and getting this surgically repaired. He was admitted 7 times in the first year and a half for blow outs, etc and has been fine since with minor viruses taken care of at home. any info you all could provide would be appreciated. thanks, doug and kathy stanley mom and dad to patrick 3 w/cf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 This is a very scary thing. The last time it happened to my daughter, we thought we were going to have to have surgery because it wouldn't go back in. This was right before we found out she had CF. The thing that she learned to do was to read a book or play a video game while she is going to the bathroom and to not push. She just lets it come out by itself. This is hard to teach a small child, but it has worked for my daughter. She sometimes can be in the bathroom for a half hour or 45 minutes. I don't really think it takes her this long to go, but she is busy reading her book. Good luck with this. Hope this is only a memory soon. Tina W., mother of Steph, 18yo wcf rectal prolapse hello all: with the wealth of knowledge in this group my wife and i were hoping for some help. we are way past the stage of shock and boo hooing finding out our son has cystic fibrosis. he's 3 and a half. our current dilemma is that yesterday he had his second rectal prolapse in the last 5 months. the first time we both went bonkers. " that thing is sticking out of our son's... " we headed immediately to the emergency room after conferring with his pediatrician who seemed like it was a normal thing. Mom and dad thought differently of course. Yesterday it happened again and even though dad, me, had to keep a little distance and offer moral support to my wife she gently guided the " alien protrubence " back to where it belongs. we spoke to the cf docs today and they want to change his enzymes from pancrease mt10's to " crelon " ? (sp.). they think it may be a sing of malabsorption. we are both confused and don't want to face the possibility of him going and getting this surgically repaired. He was admitted 7 times in the first year and a half for blow outs, etc and has been fine since with minor viruses taken care of at home. any info you all could provide would be appreciated. thanks, doug and kathy stanley mom and dad to patrick 3 w/cf. Quote Link to comment Share on other sites More sharing options...
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