Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 YES, It will be said by most ...IT wonderful .. The earlier you start it , the better they will be as they grow & they will be able to be adjusted to their growth , so that isn't a problem. Her treatments will be more even for her & you sure will be better . Let her see & feel it & even you put it on , have films, books, toys etc for her to do/see .Make it a special movie time or whatever makes her happy. Just plan that as a special time .You will get lots of tips from the vest folks as well as the list folks here. they have been there & done that sooooooooooooo enjoy. My granddaughter does that & it has kept her well She is now 19+ 7 skiing as I write, up in mountains of N.C. GO FOR IT!! Love & hugs, grandmomBEV A Vest Question Hi Everyone, Merry Christmas !!!! My daughters doctor wants to get her the vest. I need to know a little bit about it. I would like to get some feed back. Is a good thing? Does it work? Please bear with me. I am new to this group. I can use all the help I can get. Thank you all. Robin Mother of 2 1 with CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 HI Robin, My daughter got her vest last spring and we think it is great!!!! still complains about doing it some but it is much better than fighting her to get manual percussion done. We used to have to wrestle her down for PT, now we just have to put the vest on her. We always sit with her and tell stories or watch tv. How old is you daughter? I hope this helps you make your decision. Mom of 5 with CF and one on the way A Vest Question Hi Everyone, Merry Christmas !!!! My daughters doctor wants to get her the vest. I need to know a little bit about it. I would like to get some feed back. Is a good thing? Does it work? Please bear with me. I am new to this group. I can use all the help I can get. Thank you all. Robin Mother of 2 1 with CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 The vest is fantastic. SOOOOO easy. My 2 yr old hated it at first so we started by just putting it on him without turning it on. Then slowly progressed up to 20 minutes. Now he loves to do it since it means watching Sesame Street. It is great since my husband and I can start the vest up and get things done around the house. Saves us a lot of time and stress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 I don't know how old your daughter is, but my grandaughter got hers a few months ago and she is 8 and loves it. When she stays with me she knows exactly how to do it! The thing is a little bit of hassle to travel with as we hauled it to Hawaii this summer, but made it fine as a carry on. Other than everone asking what it was! The vest seems to do a great job ashas been working fine for Kati. She seems to not mind it as bad as mom doing it. Good luck, but I think she'll love it! Debbie A Vest Question Hi Everyone, Merry Christmas !!!! My daughters doctor wants to get her the vest. I need to know a little bit about it. I would like to get some feed back. Is a good thing? Does it work? Please bear with me. I am new to this group. I can use all the help I can get. Thank you all. Robin Mother of 2 1 with CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Robin, And a merry christmas to you also!I got Tyler the vest when he was about 5 or so, i'm not too sure, he was young though.(Well, he still is, he'll only be 9 in March), but what a Godsend!!I had no idea all that time i was doing it by hand it probably wasn't even very effective.It gives ty a sense of independence and control(BIG,BIG kid- with-cf issue!).I've moved it more times than i could count, but thats the beauty of it, they can do so much while doing the vest.He plays on his computer, plays his plaaystation or gameboy, can play cards, lots of things.AND, iit frees ME up a little.PLUS i know its getting done right.Wouldn't have it any other way.Thank goodness for whomever thought of that wonderful idea! Welcome to the list by the way! Patty, mom to Tyler,8,wcf and 2 wocf in the sunshine state! > Hi Everyone, > Merry Christmas !!!! > My daughters doctor wants to get her the vest. I need to know a > little bit about it. I would like to get some feed back. > Is a good thing? Does it work? Please bear with me. I am new to this > group. I can use all the help I can get. Thank you all. > > Robin > Mother of 2 > 1 with CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Hi Robin, My daughter (19 wcf) has had the Vest since she was 13. It has been a good thing for her. Her PFT's have only declined a small amount. It gets difficult to do cpt on kids when they get older and this way she can do her breathing treatments and Vest at the same time. so I am voting yes, but I don't know how old your daughter is. I know people who have kids 2 and up with vests so it is for just about everyone. love, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Hi everyone, I have some questions about the vest as well. We've from Australia and I have never seen or heard about this vest until I read your e-mails. Are they available throughout the world? Are they really expensive? What age can they be started? At the clinic the physio said she had been to a conference overseas and they don't use chest percussion like we do here with little ones. She said they were using exercises on a big blow up ball. I volunteered to come in so they could teach the others and learn the new techniques but that was over 6 weeks ago and I can't seem to get anyone motivated. WHat a waste of money to go and not bother to share the new information with anyone. Does anyone know anything about this? Jack went into the clinic last week and was really well - lungs are still clear, weight gain is good. Which is just terrific. Fiona mo Jack 11mths wcf > >Reply-To: cfparents >To: cfparents >Subject: A Vest Question >Date: Sat, 20 Dec 2003 05:52:18 -0000 > >Hi Everyone, >Merry Christmas !!!! >My daughters doctor wants to get her the vest. I need to know a >little bit about it. I would like to get some feed back. >Is a good thing? Does it work? Please bear with me. I am new to this >group. I can use all the help I can get. Thank you all. > >Robin >Mother of 2 >1 with CF > _________________________________________________________________ Hot chart ringtones and polyphonics. Go to http://ninemsn.com.au/mobilemania/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 I agree with everything you said, its great! amy mom to nathan 2.5 with cf & vest! Re: A Vest Question The vest is fantastic. SOOOOO easy. My 2 yr old hated it at first so we started by just putting it on him without turning it on. Then slowly progressed up to 20 minutes. Now he loves to do it since it means watching Sesame Street. It is great since my husband and I can start the vest up and get things done around the house. Saves us a lot of time and stress. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 look at thevest.com A Vest Question >Date: Sat, 20 Dec 2003 05:52:18 -0000 > >Hi Everyone, >Merry Christmas !!!! >My daughters doctor wants to get her the vest. I need to know a >little bit about it. I would like to get some feed back. >Is a good thing? Does it work? Please bear with me. I am new to this >group. I can use all the help I can get. Thank you all. > >Robin >Mother of 2 >1 with CF > _________________________________________________________________ Hot chart ringtones and polyphonics. Go to http://ninemsn.com.au/mobilemania/default.asp ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 The vest is great. Its is greatest invention since sliced bread! I love it!!!!!! The vest company employs the NICEST PEOPLE!!!!!!!! Its effective, productive (no pun intended) and EXPENSIVE!!!!!!!!!!! Make sure you have a DME rider... (durable medical equipment)........... Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Its funny, i never even knew about the vest until i had crippled childrens to cover what medicaid did not, all the sudden the vest came out of nowhere and saved my life(so to speak).The co who gave me the vest said it runs $15,000, and they used to call all the time to check #s on the back to make sure he was using it like he was ordered, if not they said they would come take it back.That like i said was a few years back, and they dont call anymore, havent forr quite awhile.Hope you can get your hands on one, they really are great! Patty > look at thevest.com > A Vest Question > >Date: Sat, 20 Dec 2003 05:52:18 -0000 > > > >Hi Everyone, > >Merry Christmas !!!! > >My daughters doctor wants to get her the vest. I need to know a > >little bit about it. I would like to get some feed back. > >Is a good thing? Does it work? Please bear with me. I am new to this > >group. I can use all the help I can get. Thank you all. > > > >Robin > >Mother of 2 > >1 with CF > > > > _________________________________________________________________ > Hot chart ringtones and polyphonics. Go to > http://ninemsn.com.au/mobilemania/default.asp > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
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