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Re: Sinus QUESTION

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Madison has had 15 nasal surgerys and she is 21/2 currently shes in the

hospital and they sedated her for a PIC line well her stats went down to 87 so

they

tried to deep suction her they couldnt make it past the back of the nostril

because of polyps my advice is onece they have surgery they have it again and

again so if that CT scan doesnt show excessive polyps be insistent that you try

everything Flonase Nasonex EVERYTHING because surgery sucks... they say they

need subsequent surgeries like every 3 months...Also you try a water pic my

two yr old loves have her nose washed out with it ask your ent...Most of the

time they do have bacteria growng Madison has psedomonus (cant spell it) but

they

only tell after they take a specimen. Over all it sucks...the breathing is

hard but just be lucky he knows to breathe out of his mouth...Maddie has not

figured that out

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Rosemary,

You'll be setting on pins and needles until you get those CT scan

results. Please let us know what they find. I'll be thinking about

you and Dylan.

Gale

> Hey........my little guy, Dylan (7), has grown more polps - he has

sinus

> surgery in February. In July we found them and have been treating

them with Nasal

> Cort - or the like.

>

> When he sleeps he breathes through his mouth! OMG - last night I

laid there

> watching his chest RETRACT!!! It was horrible and scary. I have

an appt. for

> him for a Cat Scan next week.

>

> He is on zithomax........Dylan has many oral motor issues and

sensory issues

> and for him taking meds is pure torture!! Tried EVERYTHING!

>

> I am concerned that he could have fungus growing behind polps -

would that

> show up on cat?

>

>

>

> Rosemary in NY with 3 children (13, 11 and 7)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>

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Sounds like Madison is having a hard time. Poor little girl.

Doesn't Madison go to the Madison, WI CF Care Center? I hope that

she is do better.

Gale

> Madison has had 15 nasal surgerys and she is 21/2 currently shes in

the

> hospital and they sedated her for a PIC line well her stats went

down to 87 so they

> tried to deep suction her they couldnt make it past the back of the

nostril

> because of polyps my advice is onece they have surgery they have it

again and

> again so if that CT scan doesnt show excessive polyps be insistent

that you try

> everything Flonase Nasonex EVERYTHING because surgery sucks... they

say they

> need subsequent surgeries like every 3 months...Also you try a

water pic my

> two yr old loves have her nose washed out with it ask your

ent...Most of the

> time they do have bacteria growng Madison has psedomonus (cant

spell it) but they

> only tell after they take a specimen. Over all it sucks...the

breathing is

> hard but just be lucky he knows to breathe out of his

mouth...Maddie has not

> figured that out

>

>

>

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Hi Rosemary,

had a ct scan a couple of years ago, and it showed he was full of

infection behind his polyp. His ENT wanted to try putting him on Bactroban

nasal saline (a tube of Bactroban ointment mixed with a bottle of plain

nasal saline) 2x a day--for 30 days, and it worked like a charm. He went

almost a year without a sinus infection. We just recently had to go another

round because he was keeping a sinus infection. I hope this will help you

some. :o)

Take care,

Deana mom to 13 ncf, and 7 wcf

----- Original Message -----

> Hey........my little guy, Dylan (7), has grown more polps - he has sinus

> surgery in February. In July we found them and have been treating them

with Nasal

> Cort - or the like.

>

> When he sleeps he breathes through his mouth! OMG - last night I laid

there

> watching his chest RETRACT!!! It was horrible and scary. I have an appt.

for

> him for a Cat Scan next week.

>

> He is on zithomax........Dylan has many oral motor issues and sensory

issues

> and for him taking meds is pure torture!! Tried EVERYTHING!

>

> I am concerned that he could have fungus growing behind polps - would that

> show up on cat?

>

>

>

> Rosemary in NY with 3 children (13, 11 and 7)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

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Wow and I thought was bad! I take it back! She's had 13 sinus surgeries

but that was in 15 years! And now she has gone 4 years without one. So maybe

some kids grow out of that, or I don't know what helped, maybe Tobi? Anyway, you

certainly have my sympathy!

love,

M

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> Madison has had 15 nasal surgerys and she is 21/2 currently

Am I reading this correctly? Madison is 30 mo old and she has had 15

surgeries. That is a surgery every 2 months. I thought my son was bad

having a surgery every 6 months last year.

jan

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