RE: Re: Advice on Antibiotics

[Guest guest]

In a message dated 10/22/2003 11:36:18 AM Central Daylight Time,

Najnest@... writes:

Just curious, my son has joint pain and frequently " hoobles' after

sitting too long or doing too much running. Any other child have

joint issues?

jan

Is he taking cipro? Deb A

[Guest guest]

Christian does and we have mentioned it to the doctors but they don't seem to

be impressed. He sounds like snap crackle pop all over his body. Elbows,

knees, back, you name it and it pops. sometimes they hurt too.

Tina Mom to Christian 11 yowcf (soon to be 12 on the 29th)

[Guest guest]

My daughter cannot take cipro because of joint pain.

T. Dunn

CTDUNN1@...

[Guest guest]

Tina, regarding Christian, one could try for an appointment or referral to a

pediatric arthritis specialist

or rheumatologist or both--this constant advocacy role

IS somewhat wearing, however!

Love to you and to yours,

n Rojas

Rojas591@...

Re: Re: Advice on Antibiotics

> Christian does and we have mentioned it to the doctors but they don't seem

to

> be impressed. He sounds like snap crackle pop all over his body. Elbows,

> knees, back, you name it and it pops. sometimes they hurt too.

>

>

>

> Tina Mom to Christian 11 yowcf (soon to be 12 on the 29th)

>

>

>

[Guest guest]

Same with my son! When he was 4 he was briefly on Cipro for a lung

infection and got such bad joint pain (it's commonly referred to as an

arthritic reaction) that he couldn't even get out of bed. So he's

considered to be " allergic " and isn't supposed to have it again.

Cipro isn't labeled for anyone under 10, but they seem to use it anyway for

CF kids.

Becky mom of Ricky 7 with CF and Andy 5 no CF

Re: Re: Advice on Antibiotics

My daughter cannot take cipro because of joint pain.

T. Dunn

CTDUNN1@...

[Guest guest]

Well, has been on cipro and Tobi now for a week. It has been really

difficult trying to figure out a viable schedule for all of these treatments

without feeling like she is hooked up to a machine all day. We have not

had any side effects, other than a mild bout of diarrhea for a day, from the

cipro. I am a little bit surprised about being on Tobi for 3 months straight.

According to the Tobi directions, it should not be taken for more than 28 days

in a row. Or pehaps I am misunderstanding and by 3 months you mean 28 on 28 off

and then 28 on, that could equal 3 months ( I'm an english major, not a math

major!) uses the face mask with the tobi. I know it is not as effective as

using the mouth piece, but it tastes so nasty, so thats a battle I would rather

not fight, as long as I win the war and she does her treatments.

Speaking of treatments, its time for pulmozyme

Everyone take care,

e, mom to 10 wcf and Ian 13 nocf

[Guest guest]

They're doing three straight months to aggressively treat the PA. As it is

her first culture of it. The pulm. and the cf clinic agreed that this was a

good way to battle it. When I read the insert I too questioned it, but they

assure me that it is okay and that it is proven safe and effective.

Patti