Guest guest Posted September 8, 2000 Report Share Posted September 8, 2000 > In a message dated 9/6/2000 10:55:56 PM Eastern Daylight Time, > katherin@... writes: > > I was wondering how > the experience has gone for those patients who live outside NC? I'd > like to hear from anyone who has had problems once they have returned > home. Thanks Hello... I had the MGB on August 10 and traveled by plane from Illinois. I've had no problems whatsoever. I was concerned about nausea while flying, because I've always had a problem with it, even after taking Dramamine. I wore the patch for the flight to and from Durham. [The patch (Transderm Scop) is prescribed for the surgery] I had NO nausea and our flights were not smooth as far as turbulence goes. I know you were looking for responses from people who HAVE had problems, but decided to respond anyway! Tricia in IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 9/22/2000 8:35:42 AM Eastern Daylight Time, Lecruella@... writes: << Joyce >> Welcome to the group Joyce!! Cathy Morrow in Lenoir, NC BMI 42 A journey of a thousand miles begins with a single step Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Dear , Got your welcome and thanks. I am new to computers and is there a chat room you can go to or do you send e-mails only? Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 DC Sorry to hear that your younger sister has RP. There are a few who have tried the natural treatments but don't know how they have done. Most of us have had to resort to the meds to keep us under control. Please feel free to post and ask questions that is what we are here for. Don't always know the answers but will help you find them. Lots of love Glenda I am a new member whose younger sister was just diagnosed withPolychondritis. She's had a few flare ups in her ears so far, but nothing major yet. Does anyone have advice or knowledge about natural treatments or supplements that help regulate the immune system? From what I've read, this is considered an auto-immune disease. Does regular exercise and good nutrition help? Luckily, my sister doesn't have to work and can rest at home when she needs to. Is Pc related to stress? Thanks. DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Val, Welcome to the group! This is such a great place to come for questions and support. mom of Jaelyn 21 months w/cf and Makenzie 6 w/o cf. New member I have been reading the e-mails from this board for a while but just now I have time to introduce myself. I am the mum of a 10 months old boy with CF, his name is torin. I am from Brazil and my husband from USA and we met at the internet, ICQ, 3 years ago. Such odd situation to find the love of my life...I would never thought about us being the carrier of some genetic mutation. But I belive that fate put as together and fate gave us our wonderful and spoiled baby. we live in GA, and I have no family or friends here. I miss my family a lot and I had no idea how to take care of a baby...and a baby w/cf is sorta a chalanger to me. I needed to quit my job coz we decide to wait till torin is 2 years old to put him at day care. Torin had meconiun ileus ( I have no idea how to write it), and went to surgery 6 hours after birth. after the surgery was the first time in my life I heard about CF. But the next day they were not thinking it was cf...well, it took them almost 2 months to confirm the Dx, firt they did 1 sweat test ( 65) and them 3 genetic test , believe or not they lost the firt 2. then they called a GI Doc, wonderful person and the first one in that nicu to do something to really help my son. we left the nicu when my baby was 43 days. and no one really explain to us what cf was...I got in the internet to learn, get scared...8 months later...I know a little bit about cf ...and about how to take care of my baby...everything is so new..to nurse him, to feed him, neb him, medication, etc.......we are luck he've had no real problem since we left the hospital and is such a happy , spoiled child. well..be ready to listen from me...I have so many doubts... see u soon val ( mom of Torin 10 m with cf and 1 tooth) ps: I am sorry about my english...hope you all are able to understand me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hello, I'm the mom of two children (6 & 9) that started the SCD on August 1st. Quote Link to comment Share on other sites More sharing options...
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