Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 He gets an epsom salt rub every evening (Kirman brand). I will increase that though. I bought some epsom salt for his bath from Costco and he threw up the next day both times I used it pre SCD. He had never done this before, I wonder if it something in the salt. I do give him Lactobacillus Acidophilus 1 pill/day. I tried homemade yogurt with milk but I want to keep him off dairy so I am looking to buy some non-dairy starter and make coconut yogurt (haven't found a recipe yet...and I have every SCD diet recipe book). Thanks for all your help. This is a tough one for me....it really hurts to see everyone (not my family) " giving up " on your child for something he can't control. Tumpa Re: behavior Since SCD changes the metabolism so dramatically, you never know.... that *could* explain why some supps might then create issues that weren't there before. I am always looking at the supps, I know. I do think pulling them for a bit is a good idea. You need to eliminate as many variables as possible. I know you hate to take away a veggie he loves... but lets just see how he does for a little while without it. I do think the fact that you see a bit of improvement in BMs is a positive sign, but we don't want to push it. I often remind parents that as they begin SCD, and the bacterial colonies die-off, they leave behind tender, new tissue that needs to heal... and must be treated gently. Keeping all foods as easy to digest as possible doesn't tax the gut too much at this vulnerable time. I would definitely do epsom salts baths.... and/or lotion or spray form. Giving magnesium alone is not a bad idea..... what form is it? Magnesium citrate would be great if he still tends to be somewhat constipated. Again, I ask.... is he getting any yogurt or probiotics??? Yeast will take over if not. Some of the silly, hyper-agressive, shirt-chewing behavior might sound like yeasty behavior to some. Hopefully other parents will comment. ?? I'm always trying to put myself in the kid's place, too..... a lot of changes are going on for them. In some kids, the diet they were on pre-SCD just kept them in a sort of sedated fog. When that fog begins to lift, all the sensory input might be a little overwhelming. Who knows?? One kid can respond quite differently from another. I hope the epsom salts baths will help calm him.... that usually helps a lot. Keep me posted. Patti RE: behavior Yes, he is pooping more regulary now (still needs an enema at times). He used to withhold/constipation. I will remove the peanut butter, brocolli (his favourite veggie ( ) and all supplements today. These supplements were pre SCD. I did give him some magnesium today to see if that would calm him down. He was only getting Spectrum Complete 2-3 times a week (he hated drinking the juice). I hope something gives because his aides are about to quit on him. Tumpa Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Do you think the epsom salt rub helps him? I would increase it if you think it helps... maybe a little before he leaves for school? Hmmmm.... don't know why he threw up after the epsom salts baths. Did he drink the bathwater?? I honestly don't know of a recipe for coconut yogurt. I know someone out there has done it successfully. I have some hesitancy about using coconut milk for growing the probiotics, though.... because coconut milk (and oil) have a natural anti-fungal and anti-bacterial quality, I just wonder if it would discourage the probiotics from flourishing? I would probably suggest you try it with nut milk instead. I'm sorry the school staff has not been able to roll with this.... it's their JOB to be flexible to changes in the kids and to come up with new strategies for helping him and just coping with it. They aren't acting very professionally if they are just throwing their hands in the air and saying they can't help him. Don't they have ANY ideas for giving him a sensory break.... in a quiet corner somewhere.... or, some other sensory activities that might help? You might need to insist they bring in another OT that has a clue. Don't feel like this is all your fault .... or that it's all on YOU to fix it all. THEY need to step up! I mean, hopefully he won't always be this way.... and you can explain to them that this is part of the healing process with this diet.... that kids sometimes have a rough time at first. But until then, they need to develop some ideas for soothing and calming him, too. Does he like to listen to music with headphones? Are the overhead fluorescents bothering him? Is he getting enough physical activity at school? Does he need some time in a swing? Or on a big bouncy ball or something? I'm just saying.... I can think of a dozen things they might try.... and THEY can think of some, too..... doggone it! As the kid changes, the program needs to change! Patti RE: behavior-Patti He gets an epsom salt rub every evening (Kirman brand). I will increase that though. I bought some epsom salt for his bath from Costco and he threw up the next day both times I used it pre SCD. He had never done this before, I wonder if it something in the salt. I do give him Lactobacillus Acidophilus 1 pill/day. I tried homemade yogurt with milk but I want to keep him off dairy so I am looking to buy some non-dairy starter and make coconut yogurt (haven't found a recipe yet...and I have every SCD diet recipe book). Thanks for all your help. This is a tough one for me....it really hurts to see everyone (not my family) " giving up " on your child for something he can't control. Tumpa Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Hi Patti, They have a swing, trampoline, heavy balls, theraputty you name it they bring it in for Cole. At this point, everything aggravates him. Good news is his program supervisor believes in this diet so she is doing her best. When i said people giving up I meant his aides (who know all this too, I think they are just worn out with the behavior). No he did not drink the water, that is what confused me. And he was not in it long either. I wil try some nut milk yogurt (can I use a dairy starter or will that be too much casein etc?). My hubby bought me every appliance you can think of for this diet.. He was the one pushing this diet for about a year. I hesitated with being pregnant and having some medical issues at that time. Thanks, Tumpa Original Message----- From: pecanbread [mailto:pecanbread ]On Behalf Of Patti Sent: October 25, 2006 10:07 AM To: pecanbread Subject: Re: behavior-Patti Do you think the epsom salt rub helps him? I would increase it if you think it helps... maybe a little before he leaves for school? Hmmmm.... don't know why he threw up after the epsom salts baths. Did he drink the bathwater?? I honestly don't know of a recipe for coconut yogurt. I know someone out there has done it successfully. I have some hesitancy about using coconut milk for growing the probiotics, though.... because coconut milk (and oil) have a natural anti-fungal and anti-bacterial quality, I just wonder if it would discourage the probiotics from flourishing? I would probably suggest you try it with nut milk instead. I'm sorry the school staff has not been able to roll with this.... it's their JOB to be flexible to changes in the kids and to come up with new strategies for helping him and just coping with it. They aren't acting very professionally if they are just throwing their hands in the air and saying they can't help him. Don't they have ANY ideas for giving him a sensory break.... in a quiet corner somewhere.... or, some other sensory activities that might help? You might need to insist they bring in another OT that has a clue. Don't feel like this is all your fault .... or that it's all on YOU to fix it all. THEY need to step up! I mean, hopefully he won't always be this way.... and you can explain to them that this is part of the healing process with this diet.... that kids sometimes have a rough time at first. But until then, they need to develop some ideas for soothing and calming him, too. Does he like to listen to music with headphones? Are the overhead fluorescents bothering him? Is he getting enough physical activity at school? Does he need some time in a swing? Or on a big bouncy ball or something? I'm just saying.... I can think of a dozen things they might try.... and THEY can think of some, too..... doggone it! As the kid changes, the program needs to change! Patti RE: behavior-Patti He gets an epsom salt rub every evening (Kirman brand). I will increase that though. I bought some epsom salt for his bath from Costco and he threw up the next day both times I used it pre SCD. He had never done this before, I wonder if it something in the salt. I do give him Lactobacillus Acidophilus 1 pill/day. I tried homemade yogurt with milk but I want to keep him off dairy so I am looking to buy some non-dairy starter and make coconut yogurt (haven't found a recipe yet...and I have every SCD diet recipe book). Thanks for all your help. This is a tough one for me....it really hurts to see everyone (not my family) " giving up " on your child for something he can't control. Tumpa Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 I have no idea if the starter with dairy is " too much casein " for him. Each person is different. That is up to you. I would only recommend the non-dairy starter for those who are HIGHLY reactive to the slightest trace of cow milk.... only you can decide that. It's really only a trace. Well... I'm glad to hear that there are lots of options for him at school. Maybe the teacher/director needs to have a sit-down with the aides. I would hope they are not expressing their frustration with HIM..... and if they need more help and support right now, the school needs to figure out a way to rotate the aides more frequently, so one person doesn't have to deal with it for too long. I wish I could beam our district's behavior specialist over to observe your situation at school... he is SO good... so helpful. Worth his weight in gold. best, Patti RE: behavior-Patti Hi Patti, They have a swing, trampoline, heavy balls, theraputty you name it they bring it in for Cole. At this point, everything aggravates him. Good news is his program supervisor believes in this diet so she is doing her best. When i said people giving up I meant his aides (who know all this too, I think they are just worn out with the behavior). No he did not drink the water, that is what confused me. And he was not in it long either. I wil try some nut milk yogurt (can I use a dairy starter or will that be too much casein etc?). My hubby bought me every appliance you can think of for this diet.. He was the one pushing this diet for about a year. I hesitated with being pregnant and having some medical issues at that time. Thanks, Tumpa Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 That's the sad thing. The school systems usually don't have a clue. Our aba therapist battles this constantly. Most of those in the school system don't believe that an asd child can recover, and they consider it a great day if the child makes it through without having a melt down, can stack some blocks, ect. That's not a great day in my book. My child can totally recover, and I believe that 100% even though no one else does(or very few others around us). You have to believe that, too. I know that there are some children on the spectrum who are so severe, have let so much time pass untreated, or whatever that their recover is not complete or very, very difficult. However, you just push that school district to do what you know your son needs. If you'd like, I'll talk to our aba therapist next week, and see if she has any specific ideas of how to help your son at school with the issues at hand. I can probe her for some ideas on how to get the school to do what you want if you'd like. She is a master at that around here because she's battled them for several years. Meleah RE: behavior-Patti > > > He gets an epsom salt rub every evening (Kirman brand). I will increase > that > though. > I bought some epsom salt for his bath from Costco and he threw up the > next > day both times I used it pre SCD. > He had never done this before, I wonder if it something in the salt. > I do give him Lactobacillus Acidophilus 1 pill/day. > I tried homemade yogurt with milk but I want to keep him off dairy so I > am > looking to buy some non-dairy starter and make coconut yogurt (haven't > found > a recipe yet...and I have every SCD diet recipe book). > Thanks for all your help. > This is a tough one for me....it really hurts to see everyone (not my > family) " giving up " on your child for something he can't control. > > Tumpa > > Recent Activity > a.. 19New Members > Visit Your Group > Quote Link to comment Share on other sites More sharing options...
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