Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Often, people listen to " how " a person says something instead of listening to " what " the person is saying. Dr. Wallach is correct in that selenium (Se) and essential fatty acids (EFA's), especially Omega-3 EFA's are crucial for treating the symptoms found in CF -- and numerous studies show pwcf have a Se and Omega-3 deficiency (and some CF carriers too). During magnesium deficiency, you are more likely to have deficiencies of the antioxidants: A, C, E, Se, Coenzyme Q10, and glutatione (GSH). That's why my son takes daily a complete bioavailable multivitamin/mineral tablet, along with additional water soluble A and E; C, Se, magnesium, MSM, and biotin. Biotin (vitamin H) is necessary for utilizing EFA's. Kim Mom of (24 with CF and asthma) and (21 asthma no CF) > http://educate-yourself.org/cn/cysticfibrosisbywallach03sep03.shtml > > > Stupid beyond belief! But, if you go for reading idiocy, here it is! > > What is sad, is that people take this stuff seriously! > > n, cross-eyed by now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2003 Report Share Posted December 26, 2003 Deb: EFA = essential fatty acids. Essential fatty acids are the omega 9, 6, 3's -- of which omega 3 is the most important in CF for lessening inflammation. Kim > In a message dated 12/20/2003 11:34:06 AM Central Standard Time, > kimpayne@c... writes: > EFA's. > Kim what are EFA'S???? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Deb, Balance is important... so all the EFA's are important... But for anyone who has inflammatory issues (CF, asthma, arthritis, heart disease, etc.), you want to lessen intake of omega 9 and 6 and increase omega 3. You can do this by eating less chicken, pork, beef (unless it's free-range, grass fed) and stop eating foods that are made with all oils except olive and canola. That means no foods containing or cooked with shortening, lard, margarine -- no food product that says it contains cottonseed oil, soybean oil, safflower or sunflower (unless it says high oleic sunflower or high oleic safflower), etc. You need to increase intake of canola, olive oil and fatty fish such as salmon, herring, sardines, mackerel... eat walnuts, flax seed meal and/or flax seed oil, dark green veggies (purslane is recommended by Dr. S in the Omega Diet), and you can take DHA capsules. But don't rush out to buy just any old capsules labeled " fish oil. " Not all are created equal, and some contain the bad oils to preserve the DHA -- or don't contain vitamin E as a preservative. A vitamin E preservative is necessary since the oil quickly becomes rancid without it. GNC's DHA is okay, as is the " premier " DHA manufactured by Martek. Go to http://www.martekbio.com to read their CF research, part of which was funded by the CFF. GNC markets two types of DHA: one bottle contains 250 mg. DHA and 100 mg. EPA (this is what my son and I take); another GNC DHA contains 200 mg. DHA per capsule. The two bottles look pretty identical but the DHA-only bottle is labeled as " Goldminds " and the ingredient label on the back tells you the difference. We buy it during the first 7-days of each month to take advantage of GNC's gold card 20% discount. I can tell a huge difference in my skin when I stop taking it. My skin isn't as soft and I get these teeny rough bumps on the back of my arms. But when I take the DHA and get my daily flax seed, my skin feels as soft as a baby's bottom! Kim > In a message dated 12/26/2003 6:23:18 PM Central Standard Time, > kimpayne@c... writes: > Deb: > > EFA = essential fatty acids. Essential fatty acids are the omega 9, > 6, 3's -- of which omega 3 is the most important in CF for lessening > inflammation. > > Kim > So it is Ok to get 6 and 9 Omega?? I thought 3 was better for you?? Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 This is all so confusing.I dont even know what to feed my kids anymore.I thought they need extra margarine and fatty stuff.I was told not to worry about " heart smart " , but to concentrate on keeping his protein and fat up.Unfortun ately here in St Pete our cf group is not part of the childrens hospital so we dont have an actual dietician.Its the same cf nurse doing EVERYTHING!!!Needless to say you all are the ones i listen to when it comes to what the heck to feed evryone;might i add each seems to have their own special diet, i feel more and more like a short order cook. :) Is there somewhere I can go online to find an ideal diet for cfers Patty, mom to ty,8wcf and 2wocf > > In a message dated 12/26/2003 6:23:18 PM Central Standard Time, > > kimpayne@c... writes: > > Deb: > > > > EFA = essential fatty acids. Essential fatty acids are the omega 9, > > 6, 3's -- of which omega 3 is the most important in CF for lessening > > inflammation. > > > > Kim > > So it is Ok to get 6 and 9 Omega?? I thought 3 was better for you?? Deb A > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Patty, I understand your confusion! Sure, this sounds like the " heart smart " type of diet, and it probably sounds like it's going against what CF doctors and dieticians advocate (high fat, high protein). The problem is that there is a HUGE difference in the type of fats people eat. There are good fats and bad fats, and yes, people with CF *do* need to worry about the type of fats they eat -- just like the rest of us. Lots of parents have discovered that once they stopped pushing a high, high fat diet (i.e., hot dogs, lunch meat, peanut butter, bacon, sausage, margarine, butter, cheese, cream, pepperoni pizza, etc.) that their kids did better digestive-wise. It's because once you take away these bad types of fats, inflammation in the gut may go down. This doesn't mean that some pwcf have to take away these foods forever. My son avoids as much " bad fat " as possible whenever he begins a productive cough. To him, the beginning of a productive cough signals that inflammation is on the rise in his body. Inflammation is what is so damaging to the lungs and other organs -- and yes, even to the heart and blood vessels, which is why heart disease starts as an inflammatory process. Doctors will tell you that pwcf don't have to worry about their hearts... probably because most pwcf died before reaching the age where heart disease was a problem. Just think of CF in terms of inflammation -- a cascade of events and you want to squelch the inflammation as much as possible. Some people have been able to greatly decrease their enzyme dose by changing the type of foods (and fats) they eat. Some can lower their enzyme dose by changing diet along with adding taurine (an amino acid that helps emulsify and absorb the fats you eat -- and is partially responsible for giving poop its classic brown color!). Pwcf are low in taurine and are low in the omega 3 essential fatty acid known as DHA. Some people have also found greater digestive help by supplementing with the herb, crataegus (also known as hawthorn). Three years ago, Gould began a yahoogroup specifically for discussing the advantages and protocol for crataegus. A specific flavonoid (quercitin) in crataegus is being studied by researchers for having a corrective effect on the CFTR. A Swedish study suggests that CF carriers are also low in DHA. Other studies suggest that there are greater incidences of asthma among female CF carriers than non-CF carriers, and CF carriers (male and female) have more instances of chronic sinusitis (which is basically, chronic inflammation at the onset). You might want to get the book, " The Omega Diet, " by Dr. Artemis Simopolus. It's a wonderful resource and many of us swear by it. Though CF isn't particularily referenced in the book, knowing that the cascade of events in CF are based upon inflammation, the dietary recommendations in the book are excellent guidelines. Kim Mom of (24 with CF and asthma) and (21 asthma no CF) > > > In a message dated 12/26/2003 6:23:18 PM Central Standard Time, > > > kimpayne@c... writes: > > > Deb: > > > > > > EFA = essential fatty acids. Essential fatty acids are the omega > 9, > > > 6, 3's -- of which omega 3 is the most important in CF for > lessening > > > inflammation. > > > > > > Kim > > > So it is Ok to get 6 and 9 Omega?? I thought 3 was better for > you?? Deb A > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Deb, You can take magnesium (no sooner than) two hours after antibiotics. Or... you can take magnesium (no sooner than) seven hours BEFORE Cipro, and (no sooner than) about four hours before all other antibiotics. So basically... it's just easier to remember to take antibiotics first, then wait at least two hours before taking Mg. If your girls are on Zithromax, they can do it like does. He takes his magnesium with breakfast and lunch (generally, most people can take 200 mg. Mg at one dose). Then he takes his Zithromax at night before bed. This way the Mg and Zithromax are safely spaced far apart. Kim > Kim > OH Ya I want to feel like that again!!! I forget what it feels like! LOL > Thanks again Kim! Hey I have another question and I know you have told me that > many times but do you take antibiotics first before magnesium? or is it magnesium > before antibiotics. Deb A Quote Link to comment Share on other sites More sharing options...
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