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Often, people listen to " how " a person says something instead of listening to

" what " the person is saying.

Dr. Wallach is correct in that selenium (Se) and essential fatty acids (EFA's),

especially Omega-3 EFA's are crucial for treating the

symptoms found in CF -- and numerous studies show pwcf have a Se and Omega-3

deficiency (and some CF carriers too).

During magnesium deficiency, you are more likely to have deficiencies of the

antioxidants: A, C, E, Se, Coenzyme Q10, and

glutatione (GSH).

That's why my son takes daily a complete bioavailable multivitamin/mineral

tablet, along with additional water soluble A and E; C, Se,

magnesium, MSM, and biotin. Biotin (vitamin H) is necessary for utilizing EFA's.

Kim

Mom of (24 with CF and asthma) and (21 asthma no CF)

> http://educate-yourself.org/cn/cysticfibrosisbywallach03sep03.shtml

>

>

> Stupid beyond belief! But, if you go for reading idiocy, here it is!

>

> What is sad, is that people take this stuff seriously!

>

> n, cross-eyed by now!

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Deb:

EFA = essential fatty acids. Essential fatty acids are the omega 9,

6, 3's -- of which omega 3 is the most important in CF for lessening

inflammation.

Kim

> In a message dated 12/20/2003 11:34:06 AM Central Standard Time,

> kimpayne@c... writes:

> EFA's.

> Kim what are EFA'S???? Deb A

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Deb,

Balance is important... so all the EFA's are important... But for anyone who has

inflammatory issues (CF, asthma, arthritis, heart

disease, etc.), you want to lessen intake of omega 9 and 6 and increase omega 3.

You can do this by eating less chicken, pork, beef (unless it's free-range,

grass fed) and stop eating foods that are made with all oils

except olive and canola. That means no foods containing or cooked with

shortening, lard, margarine -- no food product that says it

contains cottonseed oil, soybean oil, safflower or sunflower (unless it says

high oleic sunflower or high oleic safflower), etc.

You need to increase intake of canola, olive oil and fatty fish such as salmon,

herring, sardines, mackerel... eat walnuts, flax seed

meal and/or flax seed oil, dark green veggies (purslane is recommended by Dr. S

in the Omega Diet), and you can take DHA

capsules.

But don't rush out to buy just any old capsules labeled " fish oil. " Not all are

created equal, and some contain the bad oils to preserve

the DHA -- or don't contain vitamin E as a preservative. A vitamin E

preservative is necessary since the oil quickly becomes

rancid without it.

GNC's DHA is okay, as is the " premier " DHA manufactured by Martek. Go to

http://www.martekbio.com to read their CF research,

part of which was funded by the CFF. GNC markets two types of DHA: one bottle

contains 250 mg. DHA and 100 mg. EPA (this is

what my son and I take); another GNC DHA contains 200 mg. DHA per capsule. The

two bottles look pretty identical but the

DHA-only bottle is labeled as " Goldminds " and the ingredient label on the back

tells you the difference. We buy it during the first

7-days of each month to take advantage of GNC's gold card 20% discount. I can

tell a huge difference in my skin when I stop taking it.

My skin isn't as soft and I get these teeny rough bumps on the back of my arms.

But when I take the DHA and get my daily flax seed,

my skin feels as soft as a baby's bottom!

Kim

> In a message dated 12/26/2003 6:23:18 PM Central Standard Time,

> kimpayne@c... writes:

> Deb:

>

> EFA = essential fatty acids. Essential fatty acids are the omega 9,

> 6, 3's -- of which omega 3 is the most important in CF for lessening

> inflammation.

>

> Kim

> So it is Ok to get 6 and 9 Omega?? I thought 3 was better for you?? Deb A

>

>

>

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This is all so confusing.I dont even know what to feed my kids

anymore.I thought they need extra margarine and fatty stuff.I was

told not to worry about " heart smart " , but to concentrate on keeping

his protein and fat up.Unfortun ately here in St Pete our cf group is

not part of the childrens hospital so we dont have an actual

dietician.Its the same cf nurse doing EVERYTHING!!!Needless to say

you all are the ones i listen to when it comes to what the heck to

feed evryone;might i add each seems to have their own special diet, i

feel more and more like a short order cook. :):)

Is there somewhere I can go online to find an ideal diet for cfers

Patty, mom to ty,8wcf and 2wocf

> > In a message dated 12/26/2003 6:23:18 PM Central Standard Time,

> > kimpayne@c... writes:

> > Deb:

> >

> > EFA = essential fatty acids. Essential fatty acids are the omega

9,

> > 6, 3's -- of which omega 3 is the most important in CF for

lessening

> > inflammation.

> >

> > Kim

> > So it is Ok to get 6 and 9 Omega?? I thought 3 was better for

you?? Deb A

> >

> >

> >

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Patty,

I understand your confusion! Sure, this sounds like the " heart smart "

type of diet, and it probably sounds like it's going against what CF

doctors and dieticians advocate (high fat, high protein).

The problem is that there is a HUGE difference in the type of fats

people eat. There are good fats and bad fats, and yes, people with CF

*do* need to worry about the type of fats they eat -- just like the

rest of us.

Lots of parents have discovered that once they stopped pushing a

high, high fat diet (i.e., hot dogs, lunch meat, peanut butter,

bacon, sausage, margarine, butter, cheese, cream, pepperoni pizza,

etc.) that their kids did better digestive-wise. It's because once

you take away these bad types of fats, inflammation in the gut may go

down.

This doesn't mean that some pwcf have to take away these foods

forever. My son avoids as much " bad fat " as possible whenever he

begins a productive cough. To him, the beginning of a productive

cough signals that inflammation is on the rise in his body.

Inflammation is what is so damaging to the lungs and other organs --

and yes, even to the heart and blood vessels, which is why heart

disease starts as an inflammatory process.

Doctors will tell you that pwcf don't have to worry about their

hearts... probably because most pwcf died before reaching the age

where heart disease was a problem. Just think of CF in terms of

inflammation -- a cascade of events and you want to squelch the

inflammation as much as possible.

Some people have been able to greatly decrease their enzyme dose by

changing the type of foods (and fats) they eat. Some can lower their

enzyme dose by changing diet along with adding taurine (an amino acid

that helps emulsify and absorb the fats you eat -- and is partially

responsible for giving poop its classic brown color!). Pwcf are low

in taurine and are low in the omega 3 essential fatty acid known as

DHA.

Some people have also found greater digestive help by supplementing

with the herb, crataegus (also known as hawthorn). Three years ago,

Gould began a yahoogroup specifically for discussing the

advantages and protocol for crataegus. A specific flavonoid

(quercitin) in crataegus is being studied by researchers for having a

corrective effect on the CFTR.

A Swedish study suggests that CF carriers are also low in DHA. Other

studies suggest that there are greater incidences of asthma among

female CF carriers than non-CF carriers, and CF carriers (male and

female) have more instances of chronic sinusitis (which is basically,

chronic inflammation at the onset).

You might want to get the book, " The Omega Diet, " by Dr. Artemis

Simopolus. It's a wonderful resource and many of us swear by it.

Though CF isn't particularily referenced in the book, knowing that

the cascade of events in CF are based upon inflammation, the dietary

recommendations in the book are excellent guidelines.

Kim

Mom of (24 with CF and asthma) and (21 asthma no CF)

> > > In a message dated 12/26/2003 6:23:18 PM Central Standard Time,

> > > kimpayne@c... writes:

> > > Deb:

> > >

> > > EFA = essential fatty acids. Essential fatty acids are the

omega

> 9,

> > > 6, 3's -- of which omega 3 is the most important in CF for

> lessening

> > > inflammation.

> > >

> > > Kim

> > > So it is Ok to get 6 and 9 Omega?? I thought 3 was better for

> you?? Deb A

> > >

> > >

> > >

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Deb,

You can take magnesium (no sooner than) two hours after antibiotics.

Or... you can take magnesium (no sooner than) seven hours BEFORE

Cipro, and (no sooner than) about four hours before all other

antibiotics.

So basically... it's just easier to remember to take antibiotics

first, then wait at least two hours before taking Mg.

If your girls are on Zithromax, they can do it like does. He

takes his magnesium with breakfast and lunch (generally, most people

can take 200 mg. Mg at one dose). Then he takes his Zithromax at

night before bed. This way the Mg and Zithromax are safely spaced far

apart.

Kim

> Kim

> OH Ya I want to feel like that again!!! I forget what it feels

like! LOL

> Thanks again Kim! Hey I have another question and I know you have

told me that

> many times but do you take antibiotics first before magnesium? or

is it magnesium

> before antibiotics. Deb A

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