Better? or worse? Please take a look

December 2, 2008

Hi everyone- well we went to Zach's appt yesterday- and it was really

strange. He went from 13.8 to 15.2! I was very confused- because to

me his head looks better. The orthotist told me that I shouldn't go

off of the numbers- but it seems really strange to me that this whole

time the numbers have been going down- but now they went up? All his

numbers are worse- even his CVAI is higher? One thing that we noticed

last time is that his chin was down when we scanned- this time we made

sure he was looking straight--could that have caused it? Also- he grew

where we were trying to restrict the growth- the flat spot is on the

other side!!!!!

Another thing is- when we look in the mirror with him- his face looks

really off- and she said it was because his flat spots are still

causing the asymetrical effect. She said that as he gets older it will

get better- but she doesn't think he will ever be 100%. I understand

that no ones head is perfect but still.....

At first I was very upset- and so was my husband-then God kinda shook

us and we both said that we know he will be ok- and we even thought

about taking pics of my husbands head all different angles to compare.

Because we can not ever take the EXACT angle to compare- and some agles

he looks great and some- not so good....

She asked me if we were satisfied and I just told her that I was in no

hurry to get him out of the hat if we still have room for progress.

She said none of her patients ever wore the hat past 15 months- and he

will be 15 months Jan 9,. She said that after that there was not

really any room for progress because their heads are not really

moldable (sp) past then. I wanted to bring up all the wonderful

stories I have heard on this group and how CT will band up to 2 years-

but as you can understand I was too upset to argue.

Would you guys please take a look at my pictures and scan and Honestly

let me know what you think? The scan is from our appt nov-dec.

password is happy

Thanks for listen to me ramble- but I know you guys can understand and

relate.- I cried on the way home because the guilt started to set back

in- I just want my baby boy to have a happy life and not have to deal

with cruel people making comments.

I am looking forward to the responses.

God Bless

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