Cheryl./hospital gown

[Guest guest]

Cheryl,

I designed Jammies for the hospital too. had a lot of poopy overflow

diapers from all the antibiotics when she was in, as well as the wet overflow.

She also vomited a lot from the reflux so that made a mess too. The ones I

designed are easier to remove when you have a mess. I cannot sew and do not

have a machine, so I had to pay a seemstress to make one up for me and it cost

way too much to make more than one. I hope you have good luck with it.

Re: 's finally home

Hi Cheryl,

Zach's doc just called and told us Zach has Psuedonomas. This is

our first time. The doc says we will do 28 days of TOBI and

reculture. If it is still there we are going in for IV's. This

scares me, but I do want this treated agressively.

Any advice you can give me for handling a 21 month old in a hospital

would be greatly appreciated and I hope I never have to use the

advice!

Sara - mommy of Zach almost 21 months

> Hi all, Well..both Matty and mommy have survived the first hospital

> admission. He cultured PA and had the 10 days of IV antibiotics.

We

> got home a day early, which was great. He must have had about 8-9

IVs

> done on him while in the hospital. He lost another one on Friday

> morning so the doctors said go home. We were pleased.

was able

> to trick or treat with his brothers. It's just so nice to sleep

in my

> own bed. He is on inhaled Tobi, which is added to his ventilin and

> polmicort. I haven't heard him cough in a while now, it's nice.

We go

> back to clinic on the 14th, they said they would do another culture

> then, fingers crossed its clear.

>

> I met so many wonderful people and children at the hospital. I

took

> trick or treating at the hospital before we left for

home. It

> was an opportunity to see all the children who are in the

hospital, it

> was nice to see them all out enjoying themselves, if that's even

> possible in the hospital. It was also sad though, a lot of them

did not

> look so good. It makes me think sometimes that I am lucky that

Matty

> has CF and not something else. Don't get me wrong though, CF

sucks.

> It's just so scary to see these young kids with tubes and wires

and meds

> everywhere. It's a sad thing to see.

>

> Enough depressing talk, hope everyone is doing well. I am hoping

for a

> good finish to this year. Trying to get thru each day, being

thankful

> for the things I have and appreciating everything and everyone in

my

> life.

>

> Cheryl, mom to 3 boys, Zac 7 yrs wocf, Jake 3 yrs. wocf, Matty 21

mos.

> wcf

>

>

>