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Re: Digest Number 2704

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Hi my friends,

It's been a long time since I got in touch with you, really since early June. I had a good summer, though it was quite a summer trying to keep up with my job (publish or perish type thing) and then having physical therapy three times a week and a minor surgery. I was away for a bit too.

I am real low today, have done nothing but cry. I don't look too well, what with the prednisone and Arava and colchicine and synthroid and atenolol and a collapsed nose bridge and all the rest... As many of you know, prednisone gives us a moon face and lots of extra pounds. Well, the thing is my mother doesn't loose any opportunity to let me know that I've gained a lot of weight, that I have a big butt, that I am fat and all the rest. Some months ago I told her to stay off the subject that I felt bad enough about my appearance and asked her if she didn't realize that I was sick. She didn't mention my looks again until last week, when she started the whole thing over again. Today, when she phoned me, she eventually got around to remind me about my weight and my butt and I told her off. I asked her if she wasn't aware how much pain her comments cause me, if she wan't aware that I realize how I struggle with my looks, if she wasn't aware that I am sick and why didn't she tank God that I was alive, instead of berating me because I am not beautiful. It's an awful thing to say, but I hate my mother. At least, for today I do. How can people be so cruel?

Thanks for being there. I think when people have cancer they get a lot of understanding, if they loose their hair, nobody goes around remarking on their appearance. But with this, people, including her, think it's an ailment, and that we are lazy gluttons. The isolation of this disease is something else.

from Miami

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--- tutumambo@... wrote:

> Hi my friends,

> It's been a long time since I got in touch with you,

> really since early June.

> I had a good summer, though it was quite a summer

> trying to keep up with my

> job (publish or perish type thing) and then having

> physical therapy three

> times a week and a minor surgery. I was away for a

> bit too.

> I am real low today, have done nothing but

> cry. I don't look too

> well, what with the prednisone and Arava and

> colchicine and synthroid and

> atenolol and a collapsed nose bridge and all the

> rest... As many of you know,

> prednisone gives us a moon face and lots of extra

> pounds. Well, the thing is

> my mother doesn't loose any opportunity to let me

> know that I've gained a lot

> of weight, that I have a big butt, that I am fat and

> all the rest. Some

> months ago I told her to stay off the subject that I

> felt bad enough about my

> appearance and asked her if she didn't realize that

> I was sick. She didn't

> mention my looks again until last week, when she

> started the whole thing over

> again. Today, when she phoned me, she eventually

> got around to remind me

> about my weight and my butt and I told her off. I

> asked her if she wasn't

> aware how much pain her comments cause me, if she

> wan't aware that I realize

> how I struggle with my looks, if she wasn't aware

> that I am sick and why

> didn't she tank God that I was alive, instead of

> berating me because I am not

> beautiful. It's an awful thing to say, but I hate

> my mother. At least, for

> today I do. How can people be so cruel?

> Thanks for being there. I think when people have

> cancer they get a lot of

> understanding, if they loose their hair, nobody goes

> around remarking on

> their appearance. But with this, people, including

> her, think it's an

> ailment, and that we are lazy gluttons. The

> isolation of this disease is

> something else.

> from Miami

>

>

Oh, , poor you!! Please talk to us more

often and vent if necessary, we are all here for you.

Don't let her insensitive remarks get to you! She

probably is not being malicious, just thoughtless, but

when you are already feeling down it is REALLY hard to

deal with. You know what sort of a person you are

inside, try and concentrate on that. Take care, love

Liz

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