Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 > > Hello everyone! > I'm brand new to this board, and really, really overwhelmed! My > daughter, Eve, is being treated for heavy metal toxicity. We just > started seeing Dr. Hicks in Delavan, Wisconsin last month. So far > have just received her lab results...she has chronic inflammation of > the gut, a yeast overgrowth and almost no good flora. Additionally, > she has a relative need (on a scale of 0-10) of 10 for B12 and Folic > Acid, a 7 for Maganese and Gluthatione, a 5 for Niacin, a 4 for > Biotin, a 6 for Copper, and a 3 for vitamin C. Her amino acid > absorbtion is poor, but she has a 0 for a relative probability of a > disorder with Serotonin. I have read the book Children with Starving > Brains and have recently ordered 's book, although I have not > read it yet. I've been under the impression that you need to get the > child as healthy as possible before you chelate, This is incorrect and is one of the reasons many people consider so many DAN! doctors to be looters. > but am now seeing > and reading conflicting information...that waiting can be dangerous! Actually waiting isn't dangerous, it is the harmful and dangerous therapies most DAN! doctors charge you a lot for while you wait that are the risks. Simply waiting does slow down the child's progress rate when you do chelate but it isn't a horrible problem, or a " risk. " > Ugh! I guess my questions are these...1) Is/Has anyone using/used Dr. > Hicks? What do you think of him? I'm in Chicago and am willing to go > where ever is necessary for her. Naturally, I just want the best > care. Archived messages have mixed feelings about him. Just curious. > 2) At the risk of being repetitive for many of you, what is the major > philosophy of this group regarding chelation? Wait or go for it? Do it quickly, but properly. > DAN or not? Not in the sense of go to incompetent doctors and open your wallet just because they are on the list, but yes in the sense of many DAN! doctors actually do know what they are doing or are at least willing to be flexible and work with you to do the things other parents hvae found work well for these kids - like beginning chelation early with frequent low doses. You want an open minded competent doctor, the DAN! list is just one place to shop for that. > HELP! > Your new friend, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 You can try contacting either of these Parent Information Training Centers. They may have information about support groups in your area. Pam Lois Parents Helping Parents -- San Francisco 594 Monterey Boulevard San Francisco, CA 94127 (415) 841-8820 n Karian, Executive Director Exceptional Parents Unlimited 4120 North 1st Street Fresno, CA 93726 (209) 229-2000 E-mail: _epu1@..._ (mailto:epu1@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi! Have you been in contact with Valley/Mountain Regional Center? If I remember correctly, their main office is in Modesto. We are talking about Modesto, CA---right? That's the only Modesto I know of. They might be able to connect you with some local support groups and such. Pat-Mom to Josh and Sara (17 yo and 14 yo, both AS), in San s, CA indig0dragon <wordDrag0n@...> wrote: Greetings everyone! I just joined the board and wanted to say hello. I'm a mom to a 13-year-old boy who has aspergers and ocd. He was offically diagnosed this last year -- it took us years to find anyone who understood what was going on. My son has been enrolled in special ed and has autism inclusion, so he goes to regular classes with modification. He's getting an aide for his core classes here soon. So far his school experience has been miserable -- this year is a bit better but not better enough. However this if the first year he's made friends! We live in the Modesto area. I also have a two-year-old (three this month) son who was recently assessed and ruled out for autism. He has a receptive/expressive language disorder and a few slightly quirky behaviors but overall is extremely social and engaging. (which is why I thought odd they were assessing him for autism, but you never know!) I was searching the groups for other parents of kids with aspergers. The special education world and IEP's are so new to us and overwhelming at times no matter how prepared I think we are. Of course, my oldest boy we've been working with since he was two (he lost all language then and didn't get back until four) but took us years to find someone to know what was going on. It was such a huge relief to get the dx this summer - but now that is wearing off and I realize that's not a magic cure - it's just a start. Each kid is so very different and my boy has years of people not understanding him at school, feelings of failure, bullying, depression and aspergers and ocd to work through. His dad and I love him very much and we can only imagine how hard it is for him to get up everyday and do it again. We're working hard with his school and resource teachers to create a better environment for him, get him social training and skills he needs, work with his teachers and help get him his education and help him feel better about himself. I just never know if we are doing the right thing, if we are doing enough, if there's something more I should be doing or services from the school I should be aware of and push for. I know he'll always have Aspergers and OCD, he'll see the world differently than most. But I want him to be happy too, find his niche in the social world and enjoy his life and go after his passions/dreams. We don't have any parent support here -- I was searching to see if there was a parent support group in this area and found you all. Hi, nice to meet you, thanks for reading my book... I mean post . ~g Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Hi Pat! Yes, my oldest son is currently in the 'intake' process with them. My youngest son has been getting services from them for about six months now. Oh yes, Modesto CA. It never occurred to me to ask them about that. I had been asking my son's school. Thanks! On 12/4/06, PATRICIA MAIN <mainpatr@...> wrote: > > Hi! Have you been in contact with Valley/Mountain Regional Center? If I > remember correctly, their main office is in Modesto. We are talking about > Modesto, CA---right? That's the only Modesto I know of. They might be able > to connect you with some local support groups and such. > > Pat-Mom to Josh and Sara (17 yo and 14 yo, both AS), in San s, CA > > indig0dragon <wordDrag0n@... <wordDrag0n%40gmail.com>> wrote: > > Greetings everyone! I just joined the board and wanted to say hello. I'm > a mom to a 13-year-old boy who has aspergers and ocd. He was offically > diagnosed this last year -- it took us years to find anyone who > understood what was going on. > > My son has been enrolled in special ed and has autism inclusion, so he > goes to regular classes with modification. He's getting an aide for his > core classes here soon. So far his school experience has been miserable > -- this year is a bit better but not better enough. However this if the > first year he's made friends! > > We live in the Modesto area. > > I also have a two-year-old (three this month) son who was recently > assessed and ruled out for autism. He has a receptive/expressive > language disorder and a few slightly quirky behaviors but overall is > extremely social and engaging. (which is why I thought odd they were > assessing him for autism, but you never know!) > > I was searching the groups for other parents of kids with aspergers. The > special education world and IEP's are so new to us and overwhelming at > times no matter how prepared I think we are. > > Of course, my oldest boy we've been working with since he was two (he > lost all language then and didn't get back until four) but took us years > to find someone to know what was going on. It was such a huge relief to > get the dx this summer - but now that is wearing off and I realize > that's not a magic cure - it's just a start. Each kid is so very > different and my boy has years of people not understanding him at > school, feelings of failure, bullying, depression and aspergers and ocd > to work through. > > His dad and I love him very much and we can only imagine how hard it is > for him to get up everyday and do it again. We're working hard with his > school and resource teachers to create a better environment for him, get > him social training and skills he needs, work with his teachers and help > get him his education and help him feel better about himself. > > I just never know if we are doing the right thing, if we are doing > enough, if there's something more I should be doing or services from the > school I should be aware of and push for. I know he'll always have > Aspergers and OCD, he'll see the world differently than most. But I want > him to be happy too, find his niche in the social world and enjoy his > life and go after his passions/dreams. > > We don't have any parent support here -- I was searching to see if there > was a parent support group in this area and found you all. > > Hi, nice to meet you, thanks for reading my book... I mean post . > > ~g > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2006 Report Share Posted December 6, 2006 Thank you very much!! On 12/4/06, ppanda65@... <ppanda65@...> wrote: > > You can try contacting either of these Parent Information Training > Centers. > They may have information about support groups in your area. Pam > > Lois > Parents Helping Parents -- San Francisco > 594 Monterey Boulevard > San Francisco, CA 94127 > (415) 841-8820 > > > n Karian, Executive Director > Exceptional Parents Unlimited > 4120 North 1st Street > Fresno, CA 93726 > (209) 229-2000 > E-mail: _epu1@... <_epu1%40cybergate.com>_ (mailto: > epu1@... <epu1%40cybergate.com>) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Hi G! Welcome to our group and feel free to post whenever you like. I know it feels like you should always be doing something more. But pace yourself and give yourself a break for being " only " human. <GG> Sounds like you are doing everything that can be done! Roxanna ( ) New to the board Greetings everyone! I just joined the board and wanted to say hello. I'm a mom to a 13-year-old boy who has aspergers and ocd. He was offically diagnosed this last year -- it took us years to find anyone who understood what was going on. My son has been enrolled in special ed and has autism inclusion, so he goes to regular classes with modification. He's getting an aide for his core classes here soon. So far his school experience has been miserable -- this year is a bit better but not better enough. However this if the first year he's made friends! We live in the Modesto area. I also have a two-year-old (three this month) son who was recently assessed and ruled out for autism. He has a receptive/expressive language disorder and a few slightly quirky behaviors but overall is extremely social and engaging. (which is why I thought odd they were assessing him for autism, but you never know!) I was searching the groups for other parents of kids with aspergers. The special education world and IEP's are so new to us and overwhelming at times no matter how prepared I think we are. Of course, my oldest boy we've been working with since he was two (he lost all language then and didn't get back until four) but took us years to find someone to know what was going on. It was such a huge relief to get the dx this summer - but now that is wearing off and I realize that's not a magic cure - it's just a start. Each kid is so very different and my boy has years of people not understanding him at school, feelings of failure, bullying, depression and aspergers and ocd to work through. His dad and I love him very much and we can only imagine how hard it is for him to get up everyday and do it again. We're working hard with his school and resource teachers to create a better environment for him, get him social training and skills he needs, work with his teachers and help get him his education and help him feel better about himself. I just never know if we are doing the right thing, if we are doing enough, if there's something more I should be doing or services from the school I should be aware of and push for. I know he'll always have Aspergers and OCD, he'll see the world differently than most. But I want him to be happy too, find his niche in the social world and enjoy his life and go after his passions/dreams. We don't have any parent support here -- I was searching to see if there was a parent support group in this area and found you all. Hi, nice to meet you, thanks for reading my book... I mean post . ~g ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.15.9/571 - Release Date: 12/5/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 On Oct 6, 3:24am, " hollyfagerlund " wrote: } I couldn't find a exact site for adults with aspergers so I hope its=20 } ok I post here. Sorry my spelling and grammer are not the best. I was=20 Hi - here's a board for adult aspies: http://www.aspergerinfo.com/forums/ubbthreads.php/ubbthreads.php/ubb/cfrm and another useful site: http://www.wrongplanet.net/ } I sometime wonder if its not a disservice to my husband or if I am=20 } wrong for having him put up with me. I feel like I hurt people when I=20 } am around them and I don't want to do that. I can't even drive.=20 } Sometimes I just get so angry with myself and so sad for not acting=20 } normal. Depression is a problem at times when I am alone but when I=20 } am with my husband I feel better but worry about him.=20 Ah, I know what you mean. I'm having a lot of trouble with anxiety lately and I feel really useless and burdensome sometimes. My husband claims I make him happy though. Have you talked to your husband about this? Maybe it's more of a problem for you than for him. Willa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Bless your heart Holly, your welcome here, everyone here will be glad to help you if we can. I'm sorry you have had such a rough time with your dx. Have you thought of going to another doctor now and getting their advice or dx? It took the doctor to dx my son after being with him for a few hours. But he was an expert and he didn't jump to anything real quick. And he came back to visit at the school at different times with my son. He is almost 18 now, he was dx'd when he was in the 3rd grade. I have tried to teach my son that there is nothing wrong with being an aspie, and in fact he is more intellegent than a lot of people I know. He is honest and loving and a very good son, and except for his repeating making me nervous at times, we have a very good home life. He is doing much better since I have taken him out of school and he does his work here at home. All the negative things he learned from the so called normal people at school. So don't put yourself down, you are a better person than the so called normal people out there. They are the one's with the problem, they are rude, and heartless, and who wants to be around them anyways. Take care, I wish the best for you. pj Hello all,I couldn't find a exact site for adults with aspergers so I hope its ok I post here. Sorry my spelling and grammer are not the best. I was diagnosed with aspergers at the age of 15 before they believed I had ADHD and bipolar disorder. For some time I tried to deny having AS because of the way my family and teachers looked at me. I hated it. It was used against me so much and instead of getting help when my family found out about it, it made things all the more worse for me. I am now married and have a great husband. But I still worry about my AS. I have a very very very hard time talking to him about many things so then we tend not to talk at all. He does know I have AS and he is as understanding as he can be. I feel depressed and upset alot. I don't ever leave the house. I am afraid of being around people and I think it hurts him sometimes. I know the way I act is wrong sometimes but I can't stop it either. I have read some folks talking about eye contact and their little ones not being able to keep it. For me and your little ones maybe different if simply fear and lack of self esteme and control. I study animals alot because I relate better to them then any person I have ever been in contact with and dogs will do this to the dog lower in the pecking order will not look into the other dogs eyes. To me it seems more natural not to look someone in the eyes. I sometime wonder if its not a disservice to my husband or if I am wrong for having him put up with me. I feel like I hurt people when I am around them and I don't want to do that. I can't even drive. Sometimes I just get so angry with myself and so sad for not acting normal. Depression is a problem at times when I am alone but when I am with my husband I feel better but worry about him. When they told me I had AS at 15 I was so upset and afraid I don't know still to this day if it was right or wrong. My folks took me to the docs without my knowing I was going. The doc was nasty and talked to me for a minute at the very most. I don't know how its possible for anyone to get a clear view of a person within that time frame or is it? Maybe doctors can know right away was this the case with any of your kids? Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Hi Holly!!!!I'm so glad you've joined!!! It's wonderful to get the perspective of an adult with AS!!!! I bet you'll be getting some questions from many of us!!BUT,,,,,first,,,,,,,do you think you should maybe make an appt with a psychol and see if you'd still be dx's as Aspergers? Maybe a new doc would have some advice for you as far as therapy/counseling IF you were dx'd again? It's just that you seem so sad. Sounds like your husband is a good man........he deserves you. Anyway,,,,,,,,,,I hope you continue to "talk" with us and that you keep us posted. Have a super day.Robinhollyfagerlund <hollyfagerlund@...> wrote: Hello all,I couldn't find a exact site for adults with aspergers so I hope its ok I post here. Sorry my spelling and grammer are not the best. I was diagnosed with aspergers at the age of 15 before they believed I had ADHD and bipolar disorder. For some time I tried to deny having AS because of the way my family and teachers looked at me. I hated it. It was used against me so much and instead of getting help when my family found out about it, it made things all the more worse for me. I am now married and have a great husband. But I still worry about my AS. I have a very very very hard time talking to him about many things so then we tend not to talk at all. He does know I have AS and he is as understanding as he can be. I feel depressed and upset alot. I don't ever leave the house. I am afraid of being around people and I think it hurts him sometimes. I know the way I act is wrong sometimes but I can't stop it either. I have read some folks talking about eye contact and their little ones not being able to keep it. For me and your little ones maybe different if simply fear and lack of self esteme and control. I study animals alot because I relate better to them then any person I have ever been in contact with and dogs will do this to the dog lower in the pecking order will not look into the other dogs eyes. To me it seems more natural not to look someone in the eyes. I sometime wonder if its not a disservice to my husband or if I am wrong for having him put up with me. I feel like I hurt people when I am around them and I don't want to do that. I can't even drive. Sometimes I just get so angry with myself and so sad for not acting normal. Depression is a problem at times when I am alone but when I am with my husband I feel better but worry about him. When they told me I had AS at 15 I was so upset and afraid I don't know still to this day if it was right or wrong. My folks took me to the docs without my knowing I was going. The doc was nasty and talked to me for a minute at the very most. I don't know how its possible for anyone to get a clear view of a person within that time frame or is it? Maybe doctors can know right away was this the case with any of your kids? Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 > I also started candex - 1/2 cap on empty stomach in the a.m. and 1/2 cap on empty stomach in the pm. This has been the last week. I'm trying to control yeast - he eats fruits, but his diet is so restricted, I don't want to take away all fruit and I'd like to continue to give him honey and agave. (I've taken those out temporarily.) I used biotin and GSE to control yeast. If it is not that bad, biotin should be sufficient. It requires magnesium for proper absorption. For a time I used Candidase enzyme to control yeast, that worked well until I learned about biotin, which corrected my son's body so that it could control the yeast itself. More yeast info http://www.danasview.net/yeast.htm > He has always been extremely sensitive to foods, even sun blocks, chlorine - anything you try to give him. Sun blocks are typically high phenol http://www.danasview.net/phenol.htm Chlorine info http://www.danasview.net/chlorine.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2008 Report Share Posted June 17, 2008 christy, Sounds like every kid with asd. My son was also recently diagnosed, but he knows of the syndrome, I chose to tell him. He hated knowing he has a problem, he cried for along time. But the Doctor sat down with him and explained it all to him. Now he knows why he is different and why he has no friends. He is working very hard to work through his problems. I think your son can handle the diagnosis, just explain it kids can handle alot and they can bounce back. good luck. Talk any time teresa in MichiganChristy <momtosanalstef@...> wrote: Hi, I'm new here and am hoping to get a little guidance! My almost 11 year old son was recently (6 months ago) diagnosed with Aspergers. We always just assumed he was ADD and just a little different. When we finally took him in for the full blown add testing the psychologist tested for AS also. So, here we are he is a very smart boy, extremely artistic and creative with a great imagination (especially if it's about his most recent obsession)! He is pretty mild on the spectrum, not very good at sports, a little different gait , especially when running. I think our main concern at this point is the social aspect. He is in therapy with 2 therapists, 1 who supposedly specialises in AS. I'm not seeing much change. He usually has 1 friend at a time, friendships last about a year before I think they just can't take his self centered personality. He will talk their ear off and not care what they want to do, but then be annoyed when they won't do what he wants. does anyone have any ideas? He doesn't know he has a "syndrome" we just tell him he's better at the brain stuff, but has to work harder at the sports and social stuff. I'd like to get involved in an AS group but am worried because I don't want him to know he has a label , I don't want him to be upset about it or use it as an excuse in the future. Any help would be greatly appreciated!Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi, My son, who is 12 1/2, was just dx AS. He was originally dx ADHD in 3rd grade. We have always told him. When we learned he had ADHD and had to take medicine, his therapist explained it to him like this...she told him his brain was a great brain. It was just wired differently from other people's. But his brain was just as good as everyone else's. She told him his medicine was his concentration pill...it was a pill that would help him concentrate better in school. I have always told my son that he may feel different than others or act different or think differently than other but that was okay. God created him that way and God has a plan and a purpose for all of us. And, if God had created us all the same then this would be one heck of a boring world. I also remind him that some of the greatest inventions, medicines, discoveries, etc. have been done by men and women with Asperger's ....men like Edison,Issac Newton, G. Bell, Bill Gates, Jefferson, etc. etc. I always tell him that the sky is unlimited and the world is his and what he does is life is all up to him. I always tell him that he could be the next president, the next great inventor or whatever else he chooses. Different is Good! There are so many ways to solve math problems and he may choose one way while everyone does it another way...but that doesn't matter because we all come out with the same answer. No one is right and no one is wrong...it is just a matter of preference. And just think of it as they look and see things differently than us...maybe if we ask them they can open our eyes to see things in another way! What an enlightment that would be! I do know my son feels more comfortable about himself...that some of things are "not" exactly his fault. He understands a little better why kids tease him or why he doesn't spell well or doesn't catch on in math....or that noise bothers him...or that he really does need to take breaks in school. I feel I can speak with him on better terms...I try to teach him to advocate for himself at school...not to let the kids pick on him or the teachers. And, if the teachers say harmful things that he should let them know how much they are hurting his feelings. I think we all need to be made aware of this. A lot of times my son doesn't get the joke or the saying et. He takes things literally. So, if the teacher says...finish your work or you will have to stay here till you do....he thinks she can keep him there all night! I think I did the right thing telling my son about his DX. It is up to the family and each child is different...but I know in my case it has helped! I hope I helped by telling you my story. jan Janice Rushen Mom, Mentor, Wife, Teacher, Advocate, Accountant, Maid, Taxi, Shopper, Bulletin Board Artist Nanny, Crafter, Therapist, Friend, Sister, Aunt, Daughter, Grand-daughter, Personal Care Aide, Student, Believer, and Giver. From: Karin <kartay5@...>Subject: ( ) Re: New to the board Date: Tuesday, June 17, 2008, 6:41 PM Hi Christy-Your son sounds so much like my son. Mine is 8 yo, and was just diagnosed last month. He too was first tested for ADD, which came back "inconclusive. " We finally decided to go to a specialist after he continued to have lots of issues, and the doctor almost immediately decided we needed to look at Autism Spectrum as a possibility. We finally got a diagnosis the end of May. We chose to talk to him about the diagnosis, and it has worked for us at this point. I had some of the same apprehensions you mentioned, all the negative things that can come along with having a "label." My son really seemed almost relieved and even a little enthusiastic about the whole thing. His teacher said he seems to be very comfortable with himself, and it's the rest of us that have a harder time dealing with it all! We just take it all one day and step at a time. you have to do what works best for your son and your family.Welcome to the board! It's been a great help to me!Karin>> Hi, I'm new here and am hoping to get a little guidance! My almost 11 > year old son was recently (6 months ago) diagnosed with Aspergers. We > always just assumed he was ADD and just a little different. When we > finally took him in for the full blown add testing the psychologist > tested for AS also. So, here we are he is a very smart boy, extremely > artistic and creative with a great imagination (especially if it's > about his most recent obsession)! He is pretty mild on the spectrum, > not very good at sports, a little different gait , especially when > running. I think our main concern at this point is the social aspect. > He is in therapy with 2 therapists, 1 who supposedly specialises in > AS. I'm not seeing much change. He usually has 1 friend at a time, > friendships last about a year before I think they just can't take his > self centered personality. He will talk their ear off and not care > what they want to do, but then be annoyed when they won't do what he > wants. does anyone have any ideas? He doesn't know he has > a "syndrome" we just tell him he's better at the brain stuff, but has > to work harder at the sports and social stuff. I'd like to get > involved in an AS group but am worried because I don't want him to > know he has a label , I don't want him to be upset about it or use it > as an excuse in the future. Any help would be greatly appreciated!> Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi I made the decision to tell my son too. He's just five, but very bright (reasoning age of 8 according to the ed. psch.), and he's thrilled about it! I explained that Aspergers is something that makes him quite clever in some ways, but means that he sometimes feels different and that he will sometimes need to work harder at other things. For a while, if he was deliberately naughty, he would say 'the Aspergers made me do it' - we've kind of got over that one now! He understands that his brain is a wonderful brain that works a little differently to most other peoples' brains. I have AS too, and as long as I understand a situation I can deal with it. If I can't reason out why something is strange, or uncomfortable, I get panicky and controlling. With this knowledge, it just seemed best to me that my son had the vital information about why sometimes things are harder for him... AS can be both a curse and a blessing, and as a parent I figure it's my job to minimise the curse and maximise the blessing! xxx > > > > Hi, I'm new here and am hoping to get a little guidance! My almost > 11 > > year old son was recently (6 months ago) diagnosed with Aspergers. > We > > always just assumed he was ADD and just a little different. When we > > finally took him in for the full blown add testing the psychologist > > tested for AS also. So, here we are he is a very smart boy, > extremely > > artistic and creative with a great imagination (especially if it's > > about his most recent obsession)! He is pretty mild on the > spectrum, > > not very good at sports, a little different gait , especially when > > running. I think our main concern at this point is the social > aspect. > > He is in therapy with 2 therapists, 1 who supposedly specialises in > > AS. I'm not seeing much change. He usually has 1 friend at a time, > > friendships last about a year before I think they just can't take > his > > self centered personality. He will talk their ear off and not care > > what they want to do, but then be annoyed when they won't do what > he > > wants. does anyone have any ideas? He doesn't know he has > > a " syndrome " we just tell him he's better at the brain stuff, but > has > > to work harder at the sports and social stuff. I'd like to get > > involved in an AS group but am worried because I don't want him to > > know he has a label , I don't want him to be upset about it or use > it > > as an excuse in the future. Any help would be greatly appreciated! > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Your son sounds a lot like my son (11, diagnosed about 8 months ago) but originally we were told it was ADHD. He's always had his own "thing" going on socially and stood out. He's very smart and his AS is mild. I've told him about the Aspergers and originally the ADHD. He seemed okay w/ the ADHD and would tell people about it when he was younger, but as he got older, he stopped. Now it seems it took awhile for him to accept the Aspergers but it seems like he has. He doesn't share it with many people though but that's okay - it's his own business. I realized I don't need to tell people who really don't need to know b/c it's his right to share it if he wants to. His soccer coach, teachers at school, youth minister at church, and our family (and extended family) know about it but I think it's important or they won't understand exactly why he acts the way he does sometimes. Feel free to message me directly (smacalli@...) if you have any specific questions. ( ) New to the board Hi, I'm new here and am hoping to get a little guidance! My almost 11 year old son was recently (6 months ago) diagnosed with Aspergers. We always just assumed he was ADD and just a little different. When we finally took him in for the full blown add testing the psychologist tested for AS also. So, here we are he is a very smart boy, extremely artistic and creative with a great imagination (especially if it's about his most recent obsession)! He is pretty mild on the spectrum, not very good at sports, a little different gait , especially when running. I think our main concern at this point is the social aspect. He is in therapy with 2 therapists, 1 who supposedly specialises in AS. I'm not seeing much change. He usually has 1 friend at a time, friendships last about a year before I think they just can't take his self centered personality. He will talk their ear off and not care what they want to do, but then be annoyed when they won't do what he wants. does anyone have any ideas? He doesn't know he has a "syndrome" we just tell him he's better at the brain stuff, but has to work harder at the sports and social stuff. I'd like to get involved in an AS group but am worried because I don't want him to know he has a label , I don't want him to be upset about it or use it as an excuse in the future. Any help would be greatly appreciated!Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2009 Report Share Posted February 22, 2009 > etc. I've recently heard a lot about digestive enzymes and I am totally > new to this. Could someone please help me? How do I know what enzymes > to use? I used HNI with much success http://www.houstonni.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Hi Leanda, I can send you out some information on enzymes and some samples of the number one selling digestive enzyme called DigestGold. If you haven't read through the website enzymestuff.com, I encourage you to do so. It's an amazing and very helpful website. All the information I will send you, will have a toll free number you can call and speak to one of ENZYMEDICA'S technical advisors. They can help you step by step. Or feel free to ask me any questions. A lot of parents' questions are answered in that website I mentioned above (enzymestuff.com). The samples are just to see how your little one tolerates them but a 3-4 week period is always recommended. Most parents request samples of DigestGold, GlutenEase, and Virastop. Do these sound like ones you would be interested in? Feel free to look up some information on these products at enzymedica.com Hope this helps! Alessandra Enzymedica's Education Department enzymedica.com > > Hi All: > > My name is Leanda and I have an 8 year old son. He was diagnosed with > ADD about 3 years ago and it's never sit 100% with me. I beleive he may > have a tad of Asbergers, but it has never really been important to me > to put an actual label on him. I have my son on 30mg of Metadate CD > for about a year now. It seemed to help him in the beginning, but I've > just recently stopped giving it to him on the weekends and he seems so > much more mellow, alert and conversational. I really want to take him > off of it as I think it makes him more hyper and less focused and I am > concerned for the future as I've heard that it can become addictitive, > etc. I've recently heard a lot about digestive enzymes and I am totally > new to this. Could someone please help me? How do I know what enzymes > to use? My mom takes these (she buys them at Whole Foods) made by a > company called Rainbow Light I beleive. > > I've seen lots of different ones out there. How do I know which ones to > try for my son? Please help.... > > Thank you! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Thank you Alessandra. I appreciate your post. I just finished reading the book " Children with Starving Brains " by Jaquelyn McCandless and have already ordered Digestive Enzymes from Klaire Labs. We'll see how he does on these. Thank you, Leanda > > > > Hi All: > > > > My name is Leanda and I have an 8 year old son. He was diagnosed > with > > ADD about 3 years ago and it's never sit 100% with me. I beleive he > may > > have a tad of Asbergers, but it has never really been important to > me > > to put an actual label on him. I have my son on 30mg of Metadate > CD > > for about a year now. It seemed to help him in the beginning, but > I've > > just recently stopped giving it to him on the weekends and he seems > so > > much more mellow, alert and conversational. I really want to take > him > > off of it as I think it makes him more hyper and less focused and I > am > > concerned for the future as I've heard that it can become > addictitive, > > etc. I've recently heard a lot about digestive enzymes and I am > totally > > new to this. Could someone please help me? How do I know what > enzymes > > to use? My mom takes these (she buys them at Whole Foods) made by a > > company called Rainbow Light I beleive. > > > > I've seen lots of different ones out there. How do I know which > ones to > > try for my son? Please help.... > > > > Thank you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Hi Leanda,  Another AMAZING book is " Enzymes for Autism and other Neurological Conditions " by DeFelice. It's definitely worth buying and reading.  Alessandra Enzymedica¢s Education Department Enzymedica.com From: Leanda <lmcquilkin@...> Subject: Re: New to the Board Date: Wednesday, February 25, 2009, 4:02 PM Thank you Alessandra. I appreciate your post. I just finished reading the book " Children with Starving Brains " by Jaquelyn McCandless and have already ordered Digestive Enzymes from Klaire Labs. We'll see how he does on these. Thank you, Leanda > > > > Hi All: > > > > My name is Leanda and I have an 8 year old son. He was diagnosed > with > > ADD about 3 years ago and it's never sit 100% with me. I beleive he > may > > have a tad of Asbergers, but it has never really been important to > me > > to put an actual label on him. I have my son on 30mg of Metadate > CD > > for about a year now. It seemed to help him in the beginning, but > I've > > just recently stopped giving it to him on the weekends and he seems > so > > much more mellow, alert and conversational. I really want to take > him > > off of it as I think it makes him more hyper and less focused and I > am > > concerned for the future as I've heard that it can become > addictitive, > > etc. I've recently heard a lot about digestive enzymes and I am > totally > > new to this. Could someone please help me? How do I know what > enzymes > > to use? My mom takes these (she buys them at Whole Foods) made by a > > company called Rainbow Light I beleive. > > > > I've seen lots of different ones out there. How do I know which > ones to > > try for my son? Please help.... > > > > Thank you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Thank you Alessandra. I'll check this book out! > > > > > > Hi All: > > > > > > My name is Leanda and I have an 8 year old son. He was diagnosed > > with > > > ADD about 3 years ago and it's never sit 100% with me. I beleive > he > > may > > > have a tad of Asbergers, but it has never really been important > to > > me > > > to put an actual label on him. I have my son on 30mg of Metadate > > CD > > > for about a year now. It seemed to help him in the beginning, but > > I've > > > just recently stopped giving it to him on the weekends and he > seems > > so > > > much more mellow, alert and conversational. I really want to take > > him > > > off of it as I think it makes him more hyper and less focused and > I > > am > > > concerned for the future as I've heard that it can become > > addictitive, > > > etc. I've recently heard a lot about digestive enzymes and I am > > totally > > > new to this. Could someone please help me? How do I know what > > enzymes > > > to use? My mom takes these (she buys them at Whole Foods) made by > a > > > company called Rainbow Light I beleive. > > > > > > I've seen lots of different ones out there. How do I know which > > ones to > > > try for my son? Please help.... > > > > > > Thank you! > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Hi ladies, I'm Jamey and my son is 10months old () we live in miami and we have begun the journey of getting the DOC ban, I had noticed a little flatness on my son's head since he was younger, but the doctor told me not to worry about it, I trusted her jugdgement, but after a few more things she seemed unconcerned about I change pediatrician, this new pedi, brought up the yopic and asked about his head and suggessted we take him for an evaluation. After the initial appt, the was an 11mm assymetry that is affecting his facial symmetry, he does have some flattness but she was more concerened with the facial asymmetry. He is 10 months old today and we should have the DSI measurements done in about 1-2 weeks after insurrance okays it, which from what the lady at cranial technologies states shouldn't be a problem with aetna from the criteria. Well ladies I look forward to learning from you about the success stories and different decorating ideas to make it less medical. I felt very bad with myself for not asking for a second opinion sooner but at least we're on the right track now. Thanks ladies for my rant. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Welcome to the group. It is good that you are getting started, even if your ped did miss it earlier (like most of ours). Most babies do really well tolerating the band and hardly notice it is there. Hopefully this will be the same for . -christine sydney, 3.5 yrs, starband grad > > Hi ladies, I'm Jamey and my son is 10months old () we live in miami and we have begun the journey of getting the DOC ban, I had noticed a little flatness on my son's head since he was younger, but the doctor told me not to worry about it, I trusted her jugdgement, but after a few more things she seemed unconcerned about I change pediatrician, this new pedi, brought up the yopic and asked about his head and suggessted we take him for an evaluation. After the initial appt, the was an 11mm assymetry that is affecting his facial symmetry, he does have some flattness but she was more concerened with the facial asymmetry. He is 10 months old today and we should have the DSI measurements done in about 1-2 weeks after insurrance okays it, which from what the lady at cranial technologies states shouldn't be a problem with aetna from the criteria. Well ladies I look forward to learning from you about the success stories and different decorating ideas to make it less medical. I felt very bad with myself for not asking for a second opinion sooner but at least we're on the right track now. Thanks ladies for my rant. > Quote Link to comment Share on other sites More sharing options...
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