Tami - bikerblue

[Guest guest]

I have been having these severe attacks for 6 years now. I have SOD

of both the biliary duct and the pancreatic duct. Now I also have

celiac too. I have had numerous tests and have had 5 ERCP's now.

My last one at Indiana Univ. I was hospitalized afterward with

pancreatitis. I was actually relieved that my enzymes were

elevated. I feel like I need all the documentation that I can get. I

did make sure to tell the doctor that the pain from the post-

procedure pancreatitis is the same pain that I get all the time.

Only the pain level varies from day to day.

I was also asked if I had CP from one of my many ER visits, from the

doctor on call. I just looked at him and said I don't know. I have

read that the GF diet is suppose to give relief of symptoms to

people in approx. 2 weeks to 6 months time. It has only been 1

month for me, but I didn't have any celiac symptoms prior to my

diagnoses, acccept for the mucous in the stool. I think my doctor

is hoping that my symptoms were all from the celiac but I am still

in pain very often. I feel like I am on pain meds more often than I

am not. But I will take the docs advise and stay faithful to the

diet and I am also keeping a diary of my pain. I printed out

calendars and stapled them together. That way I can just hand it to

him when the time comes. I also wanted to tell you that its

perfectly ok to change doctors too. I have gone through a couple of

specialists myself and finally found a wonderful doctor (Dr.

Lehman). I received excellent care when I was there. Me and my

husband were very impressed.

Take care