Re: mucoid vs non-mucoid Pa

[Guest guest]

Great idea! I just thought I wouldn't understand the lab results,

but they can teach me how to interpret them. I should learn how to

do this. I will start getting copies of everything. I keep records

of visits, meds, test dates, etc. I just have never asked for the

copies. Silly me.

Regarding the sugar shell around the bacteria, ususally I am in

favor of all things with a sugar coating, but this PA seems to

really take the cake!

Sara

> > > Our clinic visit went fine. We were given a room that had not

> > been

> > > used yet that morning. Squeaky wheel.... Abby is 97th

percentile

> > > for wt. and 90th for ht. Got a good throat swab and hopefully

> > won't

> > > grow anything. In the event the intermittent Pa is back I

talked

> > to

> > > Dr. Spencer about Zithromax. From what I've read it's usually

> > given

> > > to those with chronic Pa and is very effective in suppressing

it.

> > It

> > > is not anti-pseudomonal but has some anti-inflammatory

properties

> > > that keep the Pa thrown off balance and make it harder for it

to

> > make

> > > biofilm. We know that most of the time the Pa will be

> > intermittant

> > > and non-mucoid for awhile at first. The study I looked at said

> > that

> > > statistically on avg. it turns mucoid within a couple of

years.

> > That

> > > may have been an old study but never the less it seems to me

that

> > if

> > > we started her on a Z-max regimen now (if the Pa is back) then

> > > possibly it could postpone the mucoid Pa from colonizing.

Spencer

> > > acted like he would definitely be interested in trying it and

> > would

> > > talk to the team. Of course this all depends on her culture

> > > results. He said " she would probably be the youngest person

in

> > the

> > > country on it. " Which surprised me. Are any of your little

ones

> > on

> > > azithromycin? Abby is 15 mos. What do y'all think about this?

> > >

> > > Joe

[Guest guest]

I sent an article on PA and mucoid from the web to

;pretty well goes over it. Of course, genius that I

am, I did not send it to cfparents.

Love, n Rojas

mucoid vs non-mucoid Pa

> ,

>

> Mucoid Pa has formed a sugar shell around the bacteria that makes it

impermeable to antibiotics. Not only is

> this a problem for people that culture Pa in their lungs or open wounds,

but it's also a problem for businesses

> that use water for processing or production, such as water pipes in

dentists' offices, bottled water dispensers in

> grocery stores, fisheries, etc.

>

> Labs identify what they find in sputum, referring to them as isolates. So

your lab print-outs will say something

> like " Isolate 1: Pseudomonas. Isolate 2: Staph, " etc.

>

> There are different strains of Pa with PAO1 the most common. The lab

report should state whether it's mucoid.

> If it doesn't say mucoid, then generally it is assumed to be non-mucoid.

>

> If you don't request copies of all lab reports (sputum, blood, PFT

print-out's and radiologist report) after each

> visit, then you should. Believe me, someday you'll wish you had them to

refer to. Even when the doctor or nurse

> calls you with a lab result, we often forget down the road.

>

> We put all copies of medical work into a large 3-ring binder. It's divided

into years so I can refer to all lab work

> and PFTs by any given year.

>

>

>

> --- " dwson2 " <sara@d...> wrote:

> > Zach's only been on Zmax for ear infections. I have heard great

> > things about taking Zmax three times a week. Maybe this will work

> > for Abby.

> > Could you explain the difference between the mucoid and non-mucoid

> > PA? My clinic didn't mention which one Zach had and I didn't know

> > to ask.

> > Sara

> >

> >

> > > Our clinic visit went fine. We were given a room that had not

> > been

> > > used yet that morning. Squeaky wheel.... Abby is 97th percentile

> > > for wt. and 90th for ht. Got a good throat swab and hopefully

> > won't

> > > grow anything. In the event the intermittent Pa is back I talked

> > to

> > > Dr. Spencer about Zithromax. From what I've read it's usually

> > given

> > > to those with chronic Pa and is very effective in suppressing it.

> > It

> > > is not anti-pseudomonal but has some anti-inflammatory properties

> > > that keep the Pa thrown off balance and make it harder for it to

> > make

> > > biofilm. We know that most of the time the Pa will be

> > intermittant

> > > and non-mucoid for awhile at first. The study I looked at said

> > that

> > > statistically on avg. it turns mucoid within a couple of years.

> > That

> > > may have been an old study but never the less it seems to me that

> > if

> > > we started her on a Z-max regimen now (if the Pa is back) then

> > > possibly it could postpone the mucoid Pa from colonizing. Spencer

> > > acted like he would definitely be interested in trying it and

> > would

> > > talk to the team. Of course this all depends on her culture

> > > results. He said " she would probably be the youngest person in

> > the

> > > country on it. " Which surprised me. Are any of your little ones

> > on

> > > azithromycin? Abby is 15 mos. What do y'all think about this?

> > >

> > > Joe

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

[Guest guest]

The one by Todar? Yes - you sent it to CFparents. I read it today

and saved a copy - very useful. Thanks.

M

Re: mucoid vs non-mucoid Pa

> I sent an article on PA and mucoid from the web to

> ;pretty well goes over it. Of course, genius that I

> am, I did not send it to cfparents.

> Love, n Rojas

[Guest guest]

Whew! n Rojas

Re: mucoid vs non-mucoid Pa

>

>

> > I sent an article on PA and mucoid from the web to

> > ;pretty well goes over it. Of course, genius that I

> > am, I did not send it to cfparents.

> > Love, n Rojas

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>