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Re: Connie - antibiotics

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Hi Connie,

I know you've probably shared this before, but I can't remember! :)

WEre you on something else, like Methotrexate, when you started the

antibiotics?

I'm interested in asking Dr. Buckner about this when I see her on

Tuesday, but I also have just reached the point where the metho is

kicking in and working.

How long did it take for the antibiotics to start showing results for

you? Anything else you can share would be great, when you're feeling

up to it.

Thanks!

M

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Hi :-)

Hey, :-0 we're almost neighbors! I live in eastern Washington, in

Richland. I hope we can get together some day soon.

As for the abx and methotrexate....although many people find the

antibiotic treatment after they have already started the other drugs

like Methotrexate, my doctor started me on the antibiotic protocol

first. For those who are already on Methotrexate, it is best to

gradually switch to the antibiotics and eliminate the other drugs,

but this varies among docs and patients.

It would be really neat if Dr. Buckner would go this route with you.

It might help to let her know that Dr. Trentham has used the

antibiotics for RP. If you have time, get a hold of a copy of Henry

Scammell's book before your Tuesday appointment. It is called " The

New Arthritis Breakthrough " and it will explain a lot about the

treatment, although it does not specifically mention RP. You should

be able to find it at your library or at and Noble. Another

book that you can order from Amazon or from the publisher, but not

yet the mass media is just out....it's called " Rheumatoid Arthritis -

The Infection Connection. Targeting and Treating the Cause of

Chronic Illness " by M. Poehlmann, Ph.D. (she wrote it as

part of her doctoral dissertation)

Also, if you want, you can search through the archived messages at

http://groups.yahoo.com/group/Rpolychondritis/ and type in

maybe " Connie H " to read any of my old posts, or maybe type

in " Minocin " or some such thing.

Also, you can read my story (it's listed under

Connie/Dermatomyositis) at http://www.rheumatic.org/medhist.htm I do

need to update it since I am no longer on the zithromax, but Biaxin

and two more doctors have told me that I most likely have RP in

addition to dermatomyositis.

Take care over there. Did you just send us some rain? It just

started a few minutes ago :-)

~Connie

> Hi Connie,

> I know you've probably shared this before, but I can't

remember! :)

> WEre you on something else, like Methotrexate, when you started the

> antibiotics?

> I'm interested in asking Dr. Buckner about this when I see her on

> Tuesday, but I also have just reached the point where the metho is

> kicking in and working.

> How long did it take for the antibiotics to start showing results

for

> you? Anything else you can share would be great, when you're

feeling

> up to it.

> Thanks!

> M

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Thanks for the info, Connie, and I don't think it's possible that we

sent the rain your way because we have plenty of our own over here.

It doesn't look like the weather is sharing with anyone else, just

dumping good old H2O on us!

Take care!

M

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