medications

[Guest guest]

Well the enzymes did the same for me, I don't take them anymore. I

still get nauseated everyday but I am somewhat used to it (two years

now) but for really bad attacks of nausea I take Zofran ODT 8mg.

It's the only thing that works as good as an IV. It's expensive as

hell but it works instantly.

As for pain everyone is different, again I'm kinda used to it and

other than at bedtime I probably could get by with just the

Percocets. I take the highest dose you can get 10/750 for daytime

attacks and usually get by with just 20mg Oxy-contin twice a day.

Not to bad considering I started out on a fentanyl patch 100mg and

160 mg OC twice a day with maybe 4 to 6 percocets.

I can get thru the day on the pills much better than dealing with

the pain and nausea without..... If they had something that would

give me a pain free day I would take it regardless of what anyone

thinks.

R.

>

> Hello all,

>

> Two questions, I was put on pacreas the pancreatic ensyme, it

has

> made me so nausea everytime I take it is there any suggestions on

any

> other one out there that might not have that effectt.

>

> Second question, I have been on percocet for pain and ultracet

for

> moderate pain, they don't work so I feel I take to much, so I

spoke

> with my PCP and we have an appointment tomorrow to discuss pain

meds,

> now I work in a hospital and I have seen people get so addicted to

> pain meds and to be honest I am really scared I just started to

have

> to be on pain meds all the time and now he is talking about

stronger

> ones like a duragesic patch maybe, and everyone I know doesn't

> understand the pain so I don't want to say anything but I feel

like I

> am a drug seeker or something but I just want the pain to stop,

I'm

> young and never thought anything like this would happen to me, now

I

> have to go make appointment about more pain meds(enough of the

> venting) does anyone have any suggestions about any kind of pain

meds

> cause I still have to function at work can't be tired for the

meds,

> if anyone has any ideas please write I am on my last string here

and

> feel I am about to go nuts.

>

> thank you and hope all are feeling well.

>

>

> NJ

[Guest guest]

,

There are different pancreatic enzymes, and some work better for people

than others. If this particular enzyme is giving you so much trouble, I would

ask your doctor to substitute it for another, before you give them up entirely.

If your taking a non-enteric coated enzyme like Viokase, which is a matte

finished tablet, then you need to be taking an antiacid before you take the

enzymes, to prevent the acid in your stomach from destroying the enzyme

before it reaches the intestines. If this is the type of enzyme you're taking,

make sure that you're also taking that antiacid FIRST. Some doctors aren't

aware that this is necessary, and prescribe that type of enzyme without the

antiacid. This negates the purpose of the enzyme entirely and can cause

additional pain and discomfort for the patient.

The enteric coated enzymes are products like Lipram, Ultrase and Creon.

They have a gel coating with a capsule formation with tiny microbeads inside.

This type of enzyme doesn't need any antiacids to be taken with it. If you're

taking one type or the other, you might try switching to the opposite type to

see if that works better for you.

In regard to your medication for pain, you shouldn't need to worry about

addiction. Most patients with a chronic pain condition do find themselves

reliant upon some type of pain medication in order to function. The type you

need, and dosage you require, is usually best determined by thorough testing

with a pain management doctor, or a doctor who has extensive experience

with cancer patients and the use of all the different type of opiods.

When you are using a narcotic for the prevention or lessening of pain, you do

not become addicted to it. You're taking only the amount necessary to make

it possible for you to function, and nothing more. You're not taking it to get

" high " or feel a buzz. This is what differentiates an addict from a chronic

pain

patient.

An addict wants the drugs to induce a high, and will continually seek higher

and higher amounts of the drug that will do this. His body becomes addicted

to the narcotics and he doesn't feel well without having it, going into

withdrawal, the shakes and becoming sickly feeling.

When you are taking pain medication to allieviate your pain, you use only

what you need to function, and while your body can become " dependent "

upon the medication, it isn't an addiction to it. Once a pain patient is

properly

dosed on the correct medication, they don't need additional medication in

higher amounts to get by.

Talk to your doctor about referrring you to a pain management doctor if you

chose, to help you with your medication needs. Let us know if there is

anything more we can do to help you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Reg. Rep., PAI

Note: All comments or advice are based on personal experience or opinion

only, and should not be substituted for consultation with a medical

professional.

>

> Hello all,

>

> Two questions, I was put on pacreas the pancreatic ensyme, it has

> made me so nausea everytime I take it is there any suggestions on any

> other one out there that might not have that effectt.

>

> Second question, I have been on percocet for pain and ultracet for

> moderate pain, they don't work so I feel I take to much, so I spoke

> with my PCP and we have an appointment tomorrow to discuss pain meds,

> now I work in a hospital and I have seen people get so addicted to

> pain meds and to be honest I am really scared I just started to have

> to be on pain meds all the time and now he is talking about stronger

> ones like a duragesic patch maybe, and everyone I know doesn't

> understand the pain so I don't want to say anything but I feel like I

> am a drug seeker or something but I just want the pain to stop, I'm

> young and never thought anything like this would happen to me, now I

> have to go make appointment about more pain meds(enough of the

> venting) does anyone have any suggestions about any kind of pain meds

> cause I still have to function at work can't be tired for the meds,

> if anyone has any ideas please write I am on my last string here and

> feel I am about to go nuts.

>

> thank you and hope all are feeling well.

>

>

> NJ

[Guest guest]

I'm assuming Tylenol etc is not SCD legal. What do you give for fevers,

colds etc?

Also, we are now on Day 2 (the right way) and was wondering do we keep on

the intro diet for a few more days until he poops?

Thanks,

Tumpa Reinhardt

To the world you may be one person, to one person you are the

world~Anonymous

[Guest guest]

If you're meaning liquid children's Tylenol.... no, it's not legal. On the rare

occasion that I give my daughter Tylenol (she does not have autism), I use one

plain, regular strength adult Tylenol tablet (that's the correct dosage for my

70 lb. 10-yr-old)... and just grind it up and mix in applesauce.

Some people get Tylenol or Ibuprofen compounded at a special compounding

pharmacy.

Two days of intro diet are enough, unless the individual has severe diarrhea.

Please refer to the constipation protocol on Elaine's website,

www.breakingtheviciouscycle.info (in the " Knowledge Base " ) if your son is

constipated.

Patti

medications

I'm assuming Tylenol etc is not SCD legal. What do you give for fevers,

colds etc?

Also, we are now on Day 2 (the right way) and was wondering do we keep on

the intro diet for a few more days until he poops?

Thanks,

Tumpa Reinhardt

To the world you may be one person, to one person you are the

world~Anonymous

[Guest guest]

At 11:36 PM 8/13/2010, you wrote:

I am thinking of taking a new

medication, but one of the ingredients is corn starch, so that worries

me. What do you think?

What medication?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

I think most of us that are on meds have to deal with illegals. It's very

expensive to get meds compounded to be legal, and there are also meds that can't

be compounded. If you need it, take it.

I take Pentasa, Venlafaxine, Zyrtec, and LDN, and unfortunately, they all have

at least 1 illegal. My BCP also has illegals. But all my supplements are legal,

and I've never cheated food-wise, so I've still done lots of good healing on SCD

:-).

Holly

Crohn's

SCD 12/01/08

>

> Hi all,

>

> I am thinking of taking a new medication, but one of the ingredients is corn

starch, so that worries me. What do you think?

>

> June

>

[Guest guest]

According to

http://www.breakingtheviciouscycle.info/legal/legal_illegal_d-n.htm ,

dextrose is illegal.

Magnesium is pretty easy to find legal though. Does your husband suffer

from diarrhea? If so, don't get magnesium oxide or magnesium citrate, as

they both draw water into the bowel. If I recall, magnesium glycinate is

bowel neutral. Can anyone second this, or am I wrong?

Holly

Yes, magnesium glycinate is supposed to be bowel neutral. I say supposed

to be, because for me no, it is not. But it's very mild. THe oxide

form I think could unconstipate an elephant.

[Guest guest]

Yes, magnesium glycinate is supposed to be bowel neutral. I say supposed to be, because for me no, it is not. But it's very mild. THe oxide form I think could unconstipate an elephant.But elephants probably aren't constipated because, lucky them, they eat their natural diet! I wish I could be happy and healthy just eating grass all day.. Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!)

[Guest guest]

I've been on LDN since last Dec/Jan. I don't have knee pain anymore,

and I sleep a bit better on it, but I haven't noticed any difference

gut-wise. I still eat a pretty limited diet. I can't say it's boosted

my immune system either. The whole time I was on Humira and Imuran, I

never caught a single cold/flu/virus. I've caught something now

though (first time in many years), and have had whatever this virus

like thing is for over a week. Seems LDN is the not my miracle drug :-(

Holly

I think LDN works differently for each of us. I've been on it since

last October 1st. I haven't yet noticed any gut help either. Or not

that I know of. It definitely has not helped pain yet. However,

even three days after I started on 1.0mg, it started helping fight

off the near-constant viral attacks I had had for years. I mean,

like at least 5 days every single week with a cold or worse. What's

interesting is, now I will have that virus for an hour, 30 minutes, a

couple of hours. I can feel the LDN fighting and getting rid of it.

So if only for that, I'll keep it. I've also had help from a couple

of small auto-immune things. So I think it's like the diet, it's a

long-term thing. We can't expect quick miracles any more than we can

from the diet.

[Guest guest]

Marilyn, thank-you for your reply on Magnesium question, tell me what

site or sites to shop for vitamins,also bought Barney some enzymes,

please commet.

I'm not Marilyn but I'll duck in here. I order almost all my

supplements on-line. I use swansonsvitamins.com, vitacost.com and

vitaminshoppe.com the most. If I'm doing a biggish order I

will set up tabs for all three and start comparing prices, sales, etc

before I decide where to get things this time. But these three are where

I order the most.

And I HIGHLY recommend that you have nothing to do with

myvitanet.com. I had an order last year where they sent me the

wrong stuff, and after nine months of " don't worry, we are sending

it " letters, I never did get the right stuff and was just out my

$85.00. They may be OK if everything goes right but they sure aren't if

things aren't right.

[Guest guest]

At 06:50 AM 8/16/2010, you wrote:

Marilyn, thank-you for your

reply on Magnesium question, tell me what site or sites to shop for

vitamins,also bought Barney some enzymes, please

commet.

I purchase many of my vitamins from The Vitamin Shoppe,

www.vitaminshoppe.com. If you are looking for extraordinary

vitamins, NOW vitamin line is good. I'm sure others will have their

suggestions for their favorite places to get vitamins.

Lucy's Kitchen Shop,

www.lucyskitchenshop.com carried SCD legal multi-vitamins and other

SCD supplies.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle