Re: help with what 's the next step-Jen

[Guest guest]

Hi Jen, thats great that you have been feeling better lately. I

hope it never ends. When are you giong to Toronto for the stent?

Please dont get yourself all worried about what might happen if it

doesn't work. Just focus on the fact that your doc is not going to

put one in you if he doesn't think it will help. I have had several

stents placed and I have ductal torotuosity. It has a bit of a loop

to it I like to call the omega. some docs call this torutosity a

form of divisum and some don't.

Because of the loop, the stents would not migrate as they should and

even though I had releif from pain. Since they did not migrate they

just got clogged, which caused more damage. It got to the point

that I demaded an exray after 3 weeks and if it was still in I

wanted it pulled. the last stent I had placed in febuary helped the

pain and migrated. Unfortunately it was too little too late for the

head of my panc. But your young and your catching this early.

Sometimes it takes several stents before the duct is finally

stretched open enough and stays open for adequate drainage. I think

that may be the route with you.

Be patient, expect to feel terrible after the eercp, a lot of

peopple have terrible bouts of pancreatitis. I never really did, I

felt lousy but never a full blown attack after one. have enough of

those anyway. I hope the doc will keep you over night afterwards

just to keep an eye on you. If not, stay in town and make sure you

can eat and tolerate a light breakfast before you head back home.

It may take a couple of times, but stenting has worked. And like I

said your young and dont have the same co-morbitities that some of

us older gals have...ughh hate admitting that. I think you will do

great with the stenting. Please let me know how it goes,ok.

Warmly,

> Hello everyone. Thanks again to everyone who responds. It's so

> nice to talk to people who understand. For those who don't know

me

> I starting developing recurrent attacks of pancreatiits last Aug.

> They've done variety of tests and they figure that my attacks are

> related to me having pancreas divisum. The doctors also seem to

be

> leaning towards me as been developing chronic pancreatitis. I'm

off

> to Toronto, Ontario to attempt stenting to fix the divisum.

>

> What i want to know is what they will do if the stenting fails?

> They already tried once and couldn't get it in. And the report

that

> the surgeon sent to my doctor states that he thinks that the ducts

> looked fine and that he's doubtfult that they could get the stent

> in. So what's next? I'm actually feeling a little better today.

> These past 3 days i've actually felt like a normal person. But

for

> the 3 weeks prior it was hell. My lipase is always elevated, it

was

> at 980 the other week. And I usually have constant pain.

>

> So if the stenting fails are they just gonna leave it? I don't

even

> think i would be a candidite for surgery cause all tests are

showing

> my pancreas as fine and no damage. I just don't want to suffer

> another 9 months of misery. Thanks again for any suggestions or

> advice. Jen