Re: Re: low fat diet to Heidi

[Guest guest]

Hi Heidi,

I totally agree with what you said regarding the amount of fat in our diet. I,

too, have seen different recommendations from different doctors. I think all we

can do is listen to the advice that is available, and then learn what works for

us, as individuals.

I did discuss diet with Prof Neoptolemos, although not the exact quantities he

recommended. He does recommend a healthy diet, along the lines of what is

recommended for anyone, and increasing the enzyme supplements as required.

Best wishes

Sue

> Message date : Apr 08 2004, 10:35 AM

> From : " hhessgriffeth "

> To : pancreatitis

> Copy to :

> Subject : Re: low fat diet to Sue

> Sue wrote:

> > My Consultant, who is a leading expert in conditions of the pancreas (Prof

> Neoptolemos from the Royal Liverpool Hospital, UK), does not believe in

> restricting fat in the diet. Prof Neoptolemos promotes taking a healthy diet,

> and adjusting pancreatic enzymes, accordingly.

>

>

>

> Dear Sue,

>

> Yes, I am aware of Professor Neoptolemos' recommendations. Fliss sees

> him also, and told us about his philosophy. While my personal

> gastroenterologist isn't exactly a leading expert in the States, he does

follow

> the guidelines of what MOST leading experts in this country teach and

> recommend, which is to reduce our fat and protein comsumption.

>

> Personally, I still believe I'm getting an adequate amount of fat in my diet

of

> 30 grams or less per day. And, I know that even with taking enzyme tablets

> containing 100,000 units lipase, 325,000 amylase and 350,000 units protease

> at a meal, if that meal is too high in fat content, I will be in severe pain

> afterwards. Even the highest amount of enzymes I've taken won't cover the

> after-meal pain I've encountered from a butter sauce, or a standard size filet

> mignon! Many doctors here don't even prescribe as many enzymes as I take,

> anyhow.

>

> Regardless of our doctor's differences of opinion's, I do think it's a matter

of

> personal diet and physical capabilities. If you can eat 80+ grams of fat a day

> (this is the amount that Fliss said Neoptolemos recommended), without any

> problems afterwards, that's delightful, and I can't say I'm not envious! And I

> certainly wouldn't tell you you're wrong for doing so. After all, you're

following

> your doctor's orders, and so am I. In that sense, we're both being compliant

> patients.(smile)

>

> With love, hope and prayers,

> Heidi

>

> Heidi H. Griffeth

> South Carolina

> SC & SE Regional Rep.

> PAI

>

> Note: All advice and comments are personal opinion only, and should not be

> substituted for professional medical consultation.

>

>

>

>

> >

> >

> >

> >

> > > Message date : Apr 06 2004, 07:29 AM

> > > From : " theproteaplace "

> > > To : pancreatitis

> > > Copy to :

> > > Subject : Lipase level - Heidi

> > > Dear Heidi,

> > > Just noticed your post about your intial acute pancreatitis and looked up

> what my lab report showed way back when. Every one of us

> > > is different, aren't we? Whereas you had a moderately high level which

> remained high, mine was incredibly high (12,570) for only

> > > hours, dropping the next day to 10% of what it had been, and back to

> normal within 5 days. Since then, it has rarely been above the

> > > high normal. I've been trying to research statistically what damage is

done

> by very high lipase. Many articles teach that AP usually

> > > does not recur, and one episode rarely leads to CP, but that's what

> happened to me.

> > >

> > > In the research I've done today, I came across a very interesting site:

> > > http://www.healthsystem.virginia.edu/nutrition_manual/iii/iii55.html

> > >

> > > I am concerned that this is the State of Virginia or a university in

Virginia.

> You will notice that it says more than once in the article that

> > > it is unnecessary to restrict fat intake, and actually argues against

> restriction. Can you believe it? This is a nutrition manual for

> > > healthcare in pancreatitis?

> > >

> > > If there are any PAI members in Virginia, you might want to check it out.

> > >

> > > Aloha,

> > > Chris

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >