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Re: - Pred

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--- OneSuperMema@... wrote:

> In a message dated 08/22/2002 3:59:02 PM Central

> Daylight Time,

> Rpolychondritis writes:

>

>

> > I'm down to 5 mg and hating it! All my joints

> > and my ears are protesting!

>

> Squeek,

> I couldn't agree with you more. I'm down to 4 mg,

> the lowest I've been in 5

> years, and my body is SCREAMING. But my doctor told

> me this week to keep

> lowering the pred. She thinks it is really causing

> me major problems because

> of the side effects. I'm sure she's right but, oh,

> the misery of it.

> Love,

>

>

I just made a " flow-chart " of my medications and I was

down to 2 mg.....but only for 5 days! This dose of 5

mg is the lowest I've been on since that time, and

that was nine months ago. All told I have only been

on prednisone for 2 1/2 years and as far as I know, I

have no side effects so far. (knock on wood or

something) Hope we both get adjusted to this dose

SOON! I have remicade again on Friday and I am hoping

that it actually does something this time. Last time

I think they injected kool-aid instead of remicade!

Take care! Love, squeek

=====

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