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Thanks Kimber

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Hello Kimber and welcome back!

I did look at the Medic Alert website on the day the posts first

appeared and then......forgot about it again! I wil find out more.

I meant to ask the consultant last Wednesday but in the midst of all

the other stuff it got lost! I did tell him I'd like a short summary

of my condition to have on me at all times with a translation for

when I'm abroad. We got side-tracked into discussing my fears about

what could happen unexpectedly and we got so involved that we never

came to the original question which was going to lead on to Medic

Alert!! He was able to assure me that some of my fears were

unfounded. That was good but he threw me again by saying that I

ought to consider the TP over the next couple of years. (This is

because my particular case gives me a very high cancer risk.) You

can imagine that this took my mind off other matters for a while.

He wasn't my usual Prof who was actually in theatre on Wed. I'm

going to make an appointment with him as soon as I can and I'll ask

all the relevant questions. The doctor I saw on Wed. was very nice

and very informative on a range of issues but I've tended to develop

a sort of dependence on Prof Neoptolemos whom I usually see so I

don't feel quite reassured unless I've spoken to him specifically!

I hope you're feeling re-energised and re-created after your holiday.

Take care,

Fliss (UK)

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