s

[Guest guest]

You wrote " " " I think that the aches are caused by a bacteria;

present with RPer's " " " " Please do me a favor and fully explaine

what you are saying ! Are you saying RP is a bacteria? if so you are

very wrong and this is very upsetting to me as it could be to others.

Please talk to your DR about this, RP os a Autoimmune disorder and

there is NO data linking " RP " to any bacteria of any kind, maybe

others but not RP. I feel you should do some more reserch on the

subject at hand so we do not confuse people.

I look forward to a reply from you soon.

Love,

P.

Phlebotomist, MLT and ASCP certified

Golden Colorado

----------------

>

> ,

>

>

>

> I am interested in the pressure you describe. I also get what I

would

> loosely call headaches, really just incredible pressure inside my

head. I

> feels awful! Could you describe what you experience? I have had

an MRI

> that was normal. My blood pressure is also low. I don't know what

to make

> of the sensation, except that it feels like extreme pressure

building up in

> my head. I have wondered if this could possibly be vasculitis. Any

> thoughts?

>

>

>

> Kathleen (Tx)

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED

> HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING

> ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND

> ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT

MAYBE

> DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Is it okay to eat the same thing at first? I'm having a hard time

changing up what I eat and introducing new foods.

Loretta,

I understand the logic behind the idea of a rotation diet, both to

prevent developing sensitivites, and for sheer boredom. But for a

number of decades I simply have not had enough foods to rotate. Even

though after about 6 months on the diet, I have been able to add a

few more foods, I still do not have enough for much variety. And I

get along better with the foods I know I tolerate than trying to bull

through adding questionable ones except now and then for testing. So

I would say if you are having a hard time adding new foods because

they always seem to cause troubles, maybe wait longer between tests.

(Of course if we don't test, we'll never get anything back). But if

it's just a bit hard to make up your mind to try, then, you do need

to when you feel your body is on a reasonably even keel. I wouldn't

try something new if you are having a flare, sick, or odd things seem

to be happening.