Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Hi! I'm going to give this another try, I'm not sure it worked the first time around. Anyways, my daughter, Sydney, is going to be three in March, and she was diagnosed with CF in May of this year. My husband was actually deployed during the war when I found out, so I was sort of handling it myself with help from my family until he came home. Anyways, I have a bunch of questions concerning CF, but I'll start out small. We had an appointment yesterday at the CF Clinic, and found out that Sydney tested positive for psudanomas (non-mucoid). We started her on TOBI today, and I'm concerned about her taking it at such a young age. Has anyone else out there had to use this on their toddlers? If so, did you see an improvement? For the most part my husband and I are trying to be very positive about everything, but sometimes its hard. I want her to live a normal life, but I already find myself sheltering her from a lot. We recently moved to Virginia, and I haven't returned to work yet for fear she'll be exposed to way too many viruses at a daycare center. It seems like we're starting to spiral out of control with our emotions, any advice on how to get a grip on reality without letting it bring you down? It feels like we're the only family going through this. I'm hoping somebody has some words of encouragement out there! Thanks in advance for any advice you may have for us. Tracey Quote Link to comment Share on other sites More sharing options...
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