Re: need to vent

[Guest guest]

Thanks for letting us know about those spiders!!!!!

You be careful and always take a look under those Toliet Seats!!!!! LOL

Hope your pain goes away. I would contact your dr and make sure its not from RP.

Carol A

[Guest guest]

Well first I hope you are doing OK. Did the GI doc give you any

specific diagnoses? I would ask what type of enzymes? I have been on a

generic (lypram) now for about 2 years. I took time for my body to get

accustom to the new enzymes. I went from 117 to my last appointment

153 in about a 1 1/2 years. Even before all of this stuff and the

major surgery I had in 2000 never weighed this much.

Second, what type of pain meds?

Third, Does your Primary Care doc know about Chronic Pancreatits? If

not try to get as much info as you can condense it down in something

you understand and this should help you educate them.

Please ask as many questions here, because there are so many people

here to help.

Walt

[Guest guest]

> Hi, I'm sorry but I need to vent alittle. I hope someone out there

> is listening and I'm sure many of you can relate to my post. I

just

> got off the phone with my GI doc. I was to call him 3 months from

> my last ERCP. Well it has only been 2 1/2 months but I have been

> suffering with pain more often than not and my husband has been

> bugging me to call the doc and give him my update. The doctor told

> me that I am to start taking Creon 10 enzymes and was surprised

that

> I haven't already been given them from my PC doc. He also told me

to

> continue to take pain meds as necessary. I am to call him in

> another 3 months and give another update. He said if I am still

> having pain then I can stop the enzymes (because they aren't

> working), and have another ERCP done to check on the ducts to see

if

> I need more stenting done. Then he said if I loose another 10

> pounds that I would have to have a feeding tube (major freak

> out!!). He also told me that I could then try sandostatin hormone

> shots, to help the intestine digest food. He then warned me about

> the price for these shots and that most insurance companies don't

> cover the cost. I do have pretty good insurance from my husband.

I

> guess my question would be, Has anyone tried these shots and do

they

> work?? Do you take these shots with pain meds too?? He also

> mentioned having an EUS with nerve block. My mind is just spining

> from all the information that he gave me that I became overwhelmed

> with emotion. Which explains the reason I've been in tears . The

> doctor told me that he is treating me for chronic pancreatitis even

> though nothing shows up on the cat scans yet. He said that in time

> something probably will and I would be treated with the same

options

> and pain meds that I am taking now. Does anyone out there get lots

> of relief from pancreatic enzymes alone?? or with pain meds???

> Sorry if I don't make much sense right now. I guess I have been

> unofficially given a diagnoses of CP. I don't know whether to be

> releived or terrifed. Really I am feeling both right now!!! Thank

> you all for listening. I feel like I'm falling apart right now.

> Kris in TN

Hi Kris,

Sorry to hear you are having such a difficult time of it. I also

apologize for taking so long to respond to your post. I have not

been checking my mail regularly as of late, so this info may be dated

by te time you receive it.

I was on Sandistatin shots for about 6 months and, yes they are very

expensive. Fortunately, my insurance carrier did not give me any

trouble so I was able to try this to help with my poor digestion.

Unfortunately, they did not do me any good as I continued to throw up

just about on a daily basis. Also, another word of warning, the

shots hurt a bit. However, don't use my statement as the answer to

your medical problems. One thing I have come to learn over the years

is that no two patients suffering from pancreatitis will get relief

in the same way. While Sandistatin is usually helpful for gastric

paresis (I hope I spelled this okay), in my case it was

unsuccessful. I still vomit for no apparent reason from time to

time, but nothing like what I used to do, thank God.

I hope you can find resolution toyour current problem. We

pancreatitis sufferers have enought to contend with anymore undo pain

or discomfit.

Andre'