Re: Digest Number 2711/ Attention Squeek

[Guest guest]

Oh My goodness Squeek,

and I were talking today about both of us have foot tumors and wondered why we did, and she told me someone else had them too. I wonder if RP has anything to do with this?

Does anyone else have them? I can hardly walk, one of mine is so bad. They have already done the MRI but I can't see the doctor until Oct. go figure?

Squeek I am so sorry you have been having a hard time. Bless your heart I pray things will start to turn around real soon for you. If they don't they need to change drugs don't you think? These doctors frustrate me sometimes, especially when we suffer.

Know your in my thoughts and prayers.

Love you!

Lu

Unfortunately I am feeling like cRaP these days. August was a horrible month for me. Saw my rheumy

today and he raised my pred (again) and my Remicade. I will be at the maximum dose of remicade that I can

take now. I also found out that I have two lipoma's

on my left foot. One is really noticable and one is

just tiny. He said I don't need them "hacked"

on....to just leave them alone unless they get

bothersome. I know others in the group have that

problem also. Does anyone know why?

Well, Lu, go make your appointment...it will save you

from writing more letters! Take care of yourself!

Love, squeek

[Guest guest]

In a message dated 9/4/02 7:48:37 PM Pacific Daylight Time, Lu1953@...

writes:

<<

and I were talking today about both of us have foot tumors and

wondered why we did, and she told me someone else had them too. I wonder if

RP has anything to do with this?

>>

Squeek, I KNEW there was someone else with these things!! OUCH! I have

never had so much pain and don't know what to do. Has your dr done anythng

for them except recommend surgery? Yes Lu, I'm interested to know if

anyone else has them. I know that Russ had abdominal lipomas and I think

Lucy has some too. Can we find out if they are RP related????

Lets go on another crusade!!!

hugs