new to the group and need advice

[Guest guest]

Hello .

It sounds like either Lupus, because of the butterfly rash or a long

running case of Lyme disease. I think Lupus is more likely.

Either one may be helped by LDN.

Quick and dirty Lyme test. Order a bottle of Samento or Cumanda from

Nutramedixs. Take the lowest dose of one drop. If you proceed to

have flu like symptoms then odds are you have Lyme disease or at least

a bacterial infection that needs to be resolved.

I am not a doctor and I may be wrong. But my wife has Lyme disease

and I am the only one who has treated her.

Good Luck

D Bergy

>

> Hello my name is george and im 25 years old, i probly wont be able to

> type very much because of the pain im experienceing in my arms hands

> and just about everywhere else, ive been suffering from a condition

> for 7 years that was diagnosed without much testing beyond a basic

> blood panel that i have fibromyalgia. i've had this diangnosis for

> about 4 years now and as of late due to my symptoms getting worse and

> having some new ones that maby the doctor was wrong and after much

> study and talking to a close family friend who suffers from lupus i

> feel strongly that this is what i may actually be suffering from. i've

> repeatedly been called a hypochondriac by friends and family for both

> complaining about my discomfort and what some would call an obsession

> over finding out whats really wrong and that im not a doctor but i do

> know and can say ith very little ego that i have a bright and strong

> mind and a determination to learn all that i can about what may

> actually be destroying my life. if you saw me in person youd think

> " there's a completely healthy model specime of a 25 year old man, 6'2 "

> 180 lbs with perfect posture and good muscle tone " while on the inside

> i feel like im being ripped apart at the seems and have to be

> constantly biting my lip while i suffer immensely and have to keep

> quiet about how in depthly i research things for the simple fact of

> being sick of hearing the negative criticism while also having to deal

> with this, i had another blood test taken on the third of this month

> and my doctor has been reluctant to return my calls for the results of

> both that and an mri of a recent knee injury but i can live with the

> knee injury its not that bad, not as bad as my hands swelling and my

> veins visably bulgeing when i have an attack. its been difficult

> enough to write as much as i have here and has taken almost a half

> hour of my time so i appologize if im coming off as rude and truely

> mean nothing negative but its so difficult to focus that im just going

> to be very blunt for the moment,

> i wrote this next text earlier while my pain medication was still

> working and was trying to put all the final pieces of this process

> together and simply wish to know if anyone thinks LDN therapy might be

> beneficial and how i should go about mentioning it to my doctor even

> if its not lupus because ive read that it can help fibromylagia as

> well. and now to copy and paste, might seem a bit odd in the way its

> written but having brain fog will do that to a person, i hope this can

> help me out in some way.

>

>

> " my symptoms have been diagnosed raynaud's disease(my hands are ice

> this very moment yet my body is hot and sweating), chronic fatigue

> overall body discomfort i cant quite call pain by the traditional

> sense but it may as well be and have attributed it to

> fibromyalgia(wich i read ldn may be beneficial to as well), a constant

> need to stretch,, attacks where my hands feet and face become

> extremely painful, the veins on my arms near my hands also become

> visable and bulge and i have an instinctual urge to gorge myself on

> chocolate wich i've just now realized might indicate a low endorphine

> level wich would explain also my natural tolerance and need for higher

> doses of opiate based painkillers to touch me and also why i had abuse

> issues with them in the past for a few years but ive scince overcome

> on my own free will and can take them as prescribed or even less

> without worry of having a relapse because i realized the damage i must

> have been causing to my liver from the tylenol in the pill.

> i've always had deretilogcal problems (when i was younger i had

> what i can only describe as crippleing eczema on my feet that i would

> literally tear the skin off with the top of a brass incense burner

> because the itch was beyond something any sane person should be able

> to handle in turn making it nearly impossible to walk at times but it

> literally but in the past 2 years ive developed an increaseing

> butterfly roseacea on my face and worsening sciriosis on my scalp and

> now in my eyebrows as well and even stranger within the last 4 days

> ive developed a large raised red patch of skin about the size of a

> good bananna on my right hip altho it doesnt have any itch or pain,

> its just there. im also diagnosed as having ADHD and was recently

> prescribed adderall for it. it seems to be helping and yet worsening

> my symptoms, the pain is not there while the medication is having its

> effect and my ability to focus has been dramaticly increased but my

> skin is reacting just below the line where the risk outweighs the gain

> scince my brain has been in a fog for years now witch i feel may also

> be attributed to what im going through because its constantly being

> reminded that my body feels like hell .

> I cant seem to focus on even things i enjoy such as playig guitar

> and going for long walks. the attacks seem to occur predominantly in

> the evening and sometimes i cant sleep until after 4 am witch may also

> be endorphine related scince what ittle ones i have im probly running

> out of by evening and the body only reproduces your daily ammount

> between the hours of 2 and 4 am and when its bad i literally cant fall

> asleep or get cofortable till the sun comes up. also they seem to be

> seasonal and weather related makeing the winter especially difficult

> wich may lead back again to the low endorphine levels due to lack of

> sunlight witch im literally addicted to in the summertime and can be

> found out in it every chance i get. also i experience leg and arm

> cramps on and off today especially. i dont drink caffine and try to

> stay on a diet of mostly fruits veggies and fish and lots of

> cranberries lol. i appologize for having written all that but it

> actually helped me organize my thoughts for when i do talk to my

> doctor next and i thank you for taking the time to read over this. "

>

> if that says anything that sticks out to you please let me know. im

> out for now ill check back when i return later. thank you all for your

> time and patience with my bad grammar and run on sentences;)

>

> scincerely,

> ASH

> lha

> lae

> ll

> l

> rise from it just as the mythological phoenix does

>

[Guest guest]

Hi everyone! I am new to this group. Our daughter, Madeline, is almost 6 months

old and we were just diagnosed with positional plagiocephaly. It is mild but it

is there and we are beginning the process of researching bands. We had our xrays

yesterday and thankfully they were clear so we are full steam ahead with getting

her in for a consulation. Our doctor is ready to write our referral as soon as

we pick where we are going to go. We live 2 hours from the nearest Cranial

Technologies but we have heard that they are the best. Any advice? We are

located outside of Charlottesville, VA and the Cranial Tech location is near

Washington DC. We are willing to go anywhere for our daughter..we want to give

her the best. How long is each appointment? How often do you go for adjustments?

Any and all advice would be greatly appreciated.

Thank you!

[Guest guest]

Hi . Are you going to Cranial Technologies in ndale, VA? That is where I take my daughter. You are in good hands. My daughter is now 7 months old and has been in the DOC band for 3 weeks. We have already seen improvements in her shape. She doesn't mind the band at all. The appointments are pretty quick. The initial evaluation does not take long if you daughter cooperates. It may take longer if she gets upset. Since she got the band, we have been weekly. I think we go weekly for a month. It depends on the childs age and they do take into account if she was born premature. Since my daughter was a month premature, I think we go weekly until she is 8 months and then we will go every other week. Do you stay at home with your daughter. I am sure

it is very difficult for working parents who have to travel to appointments! The appointments take 10 minutes really if everything is going ok.

Hope this helps!

Woodbridge, VA

From: amanda.walsh@... <amawalsh@...>Subject: new to the group and need advicePlagiocephaly Date: Saturday, September 5, 2009, 9:47 AM

Hi everyone! I am new to this group. Our daughter, Madeline, is almost 6 months old and we were just diagnosed with positional plagiocephaly. It is mild but it is there and we are beginning the process of researching bands. We had our xrays yesterday and thankfully they were clear so we are full steam ahead with getting her in for a consulation. Our doctor is ready to write our referral as soon as we pick where we are going to go. We live 2 hours from the nearest Cranial Technologies but we have heard that they are the best. Any advice? We are located outside of Charlottesville, VA and the Cranial Tech location is near Washington DC. We are willing to go anywhere for our daughter..we want to give her the best. How long is each appointment? How often do you go for adjustments? Any and all advice would be greatly appreciated. Thank you!

[Guest guest]

Hi ,

I highly recommend the Cranial Technologies in ndale VA. Our daughter got two DOC bands from them and we saw great results for her age.

You may wish to check out her blog at www.mymaysa.wordpress.com

The very first appointment will be the longest. I suggest that you have them schedule you for an eval and the DSi on the same day. It will be long but at least you won't have to come back again for that. After that, you will most likely have to go every week or every two weeks.

Let me know if you need further info. Good luck,

Leila,

Maysa, 19.5 mo. DOC band Grad 5.26.09

www.mymaysa.wordpress.com

From: amanda.walsh@... <amawalsh@...>Subject: new to the group and need advicePlagiocephaly Date: Saturday, September 5, 2009, 9:47 AM

Hi everyone! I am new to this group. Our daughter, Madeline, is almost 6 months old and we were just diagnosed with positional plagiocephaly. It is mild but it is there and we are beginning the process of researching bands. We had our xrays yesterday and thankfully they were clear so we are full steam ahead with getting her in for a consulation. Our doctor is ready to write our referral as soon as we pick where we are going to go. We live 2 hours from the nearest Cranial Technologies but we have heard that they are the best. Any advice? We are located outside of Charlottesville, VA and the Cranial Tech location is near Washington DC. We are willing to go anywhere for our daughter..we want to give her the best. How long is each appointment? How often do you go for adjustments? Any and all advice would be greatly appreciated. Thank you!