Re: Summary of Board/response to Rosemary's post!

[Guest guest]

If I have been missunderstood to be trying to make a competing club,

please don't think so. I just happen to be a systematicaly

organized person and thought I could help out a little.

As I said before, if the manager or someone else (now that the we

know that the manager doesn't have time) were to do it, I would be

very glad. Nevertheless, as the idea does not seem to have catch

on, it's ok too.

I am making the site I created private just to show that there is no

ulterior motives here.

I apoligize for any bad feelings I may have created.

> GOOOOOOOOOOOOOOOOOOOOOOOOOO, Rosemary!

> n--like who else?

> Re: Re: Summary of BoardRESPONSE

>

>

> > I agree with Jan. Also, what makes this group unique is the

friendships

> that

> > have devoped. If we just wanted CF information we could go to a

research

> > site or medical website. At this e-group we are all here for

each other.

> We

> > give each support and since many of us have been on this e-group

for a

> couple of

> > years the familarity makes it nicer and allows us to " Joke " . I

wouldn't

> trade

> > the warmth of this group for anyother list.

> >

> > If you are looking for strictly information there are many

sites. I like

> the

> > people here and the mix of information, experiences, articles,

research

> and

> > support.

> >

> > Just me 2 cents........

> >

> > Rosemary in NY with 3 children (13, 11 and 7)

> > with CF. I have a dog named TOBI and have

> > coined the phrase " BREATHE DAMMIT "

> >

> >

> >

[Guest guest]

,

There are no bad feelings at all. Good luck with your club.

How is your baby doing?

Sara

> > GOOOOOOOOOOOOOOOOOOOOOOOOOO, Rosemary!

> > n--like who else?

> > Re: Re: Summary of BoardRESPONSE

> >

> >

> > > I agree with Jan. Also, what makes this group unique is the

> friendships

> > that

> > > have devoped. If we just wanted CF information we could go to

a

> research

> > > site or medical website. At this e-group we are all here for

> each other.

> > We

> > > give each support and since many of us have been on this e-

group

> for a

> > couple of

> > > years the familarity makes it nicer and allows us to " Joke " .

I

> wouldn't

> > trade

> > > the warmth of this group for anyother list.

> > >

> > > If you are looking for strictly information there are many

> sites. I like

> > the

> > > people here and the mix of information, experiences, articles,

> research

> > and

> > > support.

> > >

> > > Just me 2 cents........

> > >

> > > Rosemary in NY with 3 children (13, 11 and 7)

> > > with CF. I have a dog named TOBI and have

> > > coined the phrase " BREATHE DAMMIT "

> > >

> > >

> > >

[Guest guest]

Oh goodness . There were no hard feelings. I was confused

because there already is a Files link in this board so why couldn't

that be used? I'd like to see some of Kim's detailed posts about

Magnesium go there too. The poor Kim must get so tired of answering

the same questions over and over. ;-)

jan

> I apoligize for any bad feelings I may have created.

>

>

>

[Guest guest]

,

Please stick with us. I know that you will enjoy the little things

that you continue to learn. AND I know that we will learn from you

too. There are no hard feelings. It just takes several days for

everyone to read and respond to posts.

Gale

> > GOOOOOOOOOOOOOOOOOOOOOOOOOO, Rosemary!

> > n--like who else?

> > Re: Re: Summary of BoardRESPONSE

> >

> >

> > > I agree with Jan. Also, what makes this group unique is the

> friendships

> > that

> > > have devoped. If we just wanted CF information we could go to

a

> research

> > > site or medical website. At this e-group we are all here for

> each other.

> > We

> > > give each support and since many of us have been on this e-

group

> for a

> > couple of

> > > years the familarity makes it nicer and allows us to " Joke " . I

> wouldn't

> > trade

> > > the warmth of this group for anyother list.

> > >

> > > If you are looking for strictly information there are many

> sites. I like

> > the

> > > people here and the mix of information, experiences, articles,

> research

> > and

> > > support.

> > >

> > > Just me 2 cents........

> > >

> > > Rosemary in NY with 3 children (13, 11 and 7)

> > > with CF. I have a dog named TOBI and have

> > > coined the phrase " BREATHE DAMMIT "

> > >

> > >

> > >