Cleaningless in CF centers...

[Guest guest]

Dear Friends,

I am talking from the bottom of my heart with the love that only a

mom knows. Just because a CF center is acredited by the CFF doesn't

mean they are following CFF guidelines.

Some of you remember me telling our story when a was diagnosed

here in Memphis, TN. and we went to the so called CFF at LeBonheur

Children's Hospital. Biggest fiasco of my life, what a dirty, nasty

place. Incompetentcy is the rule in this darn place, as you can tell

I am still very bitter with these people. I just can not imagine how

they can go to bed everynight.

Well, with that said, always follow your instints and if something

does not seem right open your mouth and let them know. If necessary

walk away, you will be grateful that you did. I was way to scare and

very ignorant about what could and would harm my CF child. I did not

know what pseudomonas were much les the B word.

I wish the CFF would be much stricter before endorsing a place that

is probably killing children. I know for a fact that children at the

CFF here in Memphis are not doing as well as the people that Dr.

Hanissian sees.

Ranting now, Love to all of you and thank you for letting me vent,

some day I will grow up and move on and not think about them.

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

[Guest guest]

YES, YELL, HOLLER, SCREAM. & tell it like it is . For your sake, your

children's & everyone's.

Bless your heart. thanks for the heads up !!!

LOVE & HUGS, grandmomBEV

Cleaningless in CF centers...

Dear Friends,

I am talking from the bottom of my heart with the love that only a

mom knows. Just because a CF center is acredited by the CFF doesn't

mean they are following CFF guidelines.

Some of you remember me telling our story when a was diagnosed

here in Memphis, TN. and we went to the so called CFF at LeBonheur

Children's Hospital. Biggest fiasco of my life, what a dirty, nasty

place. Incompetentcy is the rule in this darn place, as you can tell

I am still very bitter with these people. I just can not imagine how

they can go to bed everynight.

Well, with that said, always follow your instints and if something

does not seem right open your mouth and let them know. If necessary

walk away, you will be grateful that you did. I was way to scare and

very ignorant about what could and would harm my CF child. I did not

know what pseudomonas were much les the B word.

I wish the CFF would be much stricter before endorsing a place that

is probably killing children. I know for a fact that children at the

CFF here in Memphis are not doing as well as the people that Dr.

Hanissian sees.

Ranting now, Love to all of you and thank you for letting me vent,

some day I will grow up and move on and not think about them.

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

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be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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