Re: SV:Lynn Chandler, Sandostatin To Sonja

[Guest guest]

Hi Sonja! I'm glad you did find someone that is taking Sandostatin.

But I'm sorry you're still not feeling well. I know what it's like

to hope something's gonna work & then have the dissappointment of it

not working like you'd hoped. Maybe if you're on it a little longer?

May I ask if you're having any side affects from it? I have never

heard of this drug before & I'm very curious. I hope you don't

mind my nosiness.

Hugs,

Deanna Tubb

New Mexico PAI Rep

>

> To Lynn, thanks for your answer. You are the first person whom I

have

> been in touch with using Sandostatin. In Sweden it is just

experimental

> and the doctor who prescribed it is a friend of mine who heard from

the

> States about it beeing used. I take two injections a day 50

microgr. I

> did feel better during the first weeks but I am back on pain and

> difficulties to eat (I do take enzymes as well) I am wiped out by

the

> great tiredness. Had some real good days when I started. Did it take

> some time for you to adjust? Are the longterm injections working

better?

> I am so poorly now had this hope for it to get better and now

loosing

> faith again. Thanks for your kind reply, I am greatful for all the

> information there is. Lots of Love Sonja