im terrified, PLEASE SOMEONE TALK TO ME

October 6, 2003

Hi all, Well we ended up in the emergency room last night, woke up

crying that he was in pain in his ear. H e also has been coughing horribly but

his cf nurse said that was to be expected from the pulmozyme, well guess what,

has Pneumonia and a middle ear infection in both ears, the right one

having it worse. This is the second case of pneumonia he has had in 6 months.

The ER doctor told me that his o2 stats are a concern, we couldn't get them

above 94, that was even after a breathing treatment, He told me that if

isn't improved by tomorrow then we need to have him admitted to the hospital,

I'm scared, I called his pulmonogolist and they told me to up his vest and

nebulizer, so we are looking at 4 x vest and 4xneb, he has been placed on

zithromax for 14 days, the pharmacist told me that must have it bad

because

they don't normally prescribe that long on that antibiotic. I am upset with

myself because just 3 weeks ago we were in to see the pulm and had that

cough, He was placed on bactrim for 14 days, and that was when he was placed on

the pulmozyme, his cf nurse told me that he would get a cough to bring up the

mucus because that is what the medicine is supposed to do, has lost

another 3 pounds, which brings it to a total of 5 pounds. I should have realized

that something wasn't right, I just assumed the cough was from the pulmozyme,

The pulmonogolist doesn't seem to worried about his o2 stats being low or

being admitted to the hospital, he just wants to be seen by his regular

pediatrician, the ER doctor was ready to admit but he held out because

he wanted to have checked out with his pulm first. His pulm wants us

to wait until Thursday to see if he is improved and if then he isn't then we

would go into see him, also the ER doctor wrote a school note that says he

cannot return to school without being seen by the pulm DR first. Do you think it

will matter if the ped sees him to ok him if he goes back to school, I

definitely want an x ray to make sure he is cleared of the pneumonia just to be

on the

safe side. I am sorry I am rambling I just have so much on my mind, Im scared

about his o2 stats, they will go back up right? I'm scared about his lungs,

I'm scared. Thanks to all for responding

, mommy of 5 years old w/cd/adhd/allergies and 2 years old

no cf

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