Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 Call the office and go in. The orthotist can help explain the function of the band and make changes if needed. Let us know how it goes! Jen Mom to Luli - 3 yrs old Torticollis, Plagio, Syringomyelia New and Worried My 4 month old daughter got her DOC Band Wednesday and it's now Sunday night. She isn't sleeping in it tonight and has not worn it all day. I did the checks after 3 hours of wearing it and she had a couple of harsh red spots that were taking longer than an hour to fade so we went in Friday for an adjustment as a spot above her ear where it bulges (has brachy) looked like it was on the verge of being a blister. They shaved it down some and put a gauze type thing over it. It was right where the helmet latches. Over the weekend it seems to have worsen and this morning it was oozing clear liquid, so I haven't put it back on. Also, when she wakes up, fluid has built up in between the latch. It looks awful and seems to be painful to her. She does well in it, until night time or when we lay her on her back. That's when it seems painful. Her little cry kills me. They said it would always be pink in the spot that concerned me, but that red was bad. Well, where is the line between pink and red? Certainly seems bad enough to not put the band back on her for awhile. I hate that she isn't wearing it because when she wakes up I feel like I can already see a small difference and really want her in it as soon as possibble, but of course I don't want any blisters or pain from it! Well this band every be comfortable for her and fit right? I feel like the latch needs to be on the other side because it bulges less there. Will they remake a band if the first one doesn't seem to fit right? I struggled over banding her but was glad I decided to because she really does need it, but this makes me worried that maybe I shouldn't have. Need encouragement and advice. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2009 Report Share Posted September 8, 2009 I did go to the office today and it went much better than previous appointments. The band has to stay off until no pink is left then can be put back on, but they shaved some areas for room for growth and to relieve pressure on the side. I am feeling much better. And I really liked the orthotist I saw today. By the way it's CT in Dallas- anyone going there? > > > Call the office and go in.? The orthotist can help explain the function of the band and make changes if needed. > Let us know how it goes! > > > > > > Jen > Mom to Luli - 3 yrs old > Torticollis, Plagio, Syringomyelia > > > > > > > New and Worried > > > > > > > > > > > > > > > > > > > > > > > > > > My 4 month old daughter got her DOC Band Wednesday and it's now Sunday night. She isn't sleeping in it tonight and has not worn it all day. I did the checks after 3 hours of wearing it and she had a couple of harsh red spots that were taking longer than an hour to fade so we went in Friday for an adjustment as a spot above her ear where it bulges (has brachy) looked like it was on the verge of being a blister. They shaved it down some and put a gauze type thing over it. It was right where the helmet latches. Over the weekend it seems to have worsen and this morning it was oozing clear liquid, so I haven't put it back on. Also, when she wakes up, fluid has built up in between the latch. It looks awful and seems to be painful to her. She does well in it, until night time or when we lay her on her back. That's when it seems painful. Her little cry kills me. > > > > They said it would always be pink in the spot that concerned me, but that red was bad. Well, where is the line between pink and red? Certainly seems bad enough to not put the band back on her for awhile. I hate that she isn't wearing it because when she wakes up I feel like I can already see a small difference and really want her in it as soon as possibble, but of course I don't want any blisters or pain from it! > > > > Well this band every be comfortable for her and fit right? I feel like the latch needs to be on the other side because it bulges less there. Will they remake a band if the first one doesn't seem to fit right? > > > > I struggled over banding her but was glad I decided to because she really does need it, but this makes me worried that maybe I shouldn't have. > > > > Need encouragement and advice. > > > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
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