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Update on Shaelin

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Hello everyone,

Well, we have survived out first week in the hospital and hopefully,

after a sinus CT scan tomorrow, we will be going home to complete

antibiotics at home.

Shaelin has been much better this time than when he was 18 months.

Then he would just run up and down the halls, try to get on the

elevators without me and touched or put everything he found in his

mouth. This time although he is feeling well and very energetic, he

is behaving. I have threatened him with the fact that if he leaves

the room once without me, he is going back into a crib! That has

seemed to work.

His throat cultures have been negative for pseudomonas so they

stopped his tobramycin and now have him on Ceftaz IV and oral

Bactrim. I have continued him on the probiotics and his stools have

been looser than usual but only 1-2/day as opposed to 5-6/day when he

wasn't on the probiotics.

Thanks for all of your support and advice.

Jeanne (foster Mom to Shaelin, 2 1/2 wcf)

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GREAT..

It is nice to hear of improvements. I do hope all continues to go well

LOVE & HUGS, grandmonBEV

Update on Shaelin

Hello everyone,

Well, we have survived out first week in the hospital and hopefully,

after a sinus CT scan tomorrow, we will be going home to complete

antibiotics at home.

Shaelin has been much better this time than when he was 18 months.

Then he would just run up and down the halls, try to get on the

elevators without me and touched or put everything he found in his

mouth. This time although he is feeling well and very energetic, he

is behaving. I have threatened him with the fact that if he leaves

the room once without me, he is going back into a crib! That has

seemed to work.

His throat cultures have been negative for pseudomonas so they

stopped his tobramycin and now have him on Ceftaz IV and oral

Bactrim. I have continued him on the probiotics and his stools have

been looser than usual but only 1-2/day as opposed to 5-6/day when he

wasn't on the probiotics.

Thanks for all of your support and advice.

Jeanne (foster Mom to Shaelin, 2 1/2 wcf)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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  • 4 months later...
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Happy birthday to this precious child. Love Has & will make him strong

LOVE & HUGS, grandmoMBEV

Update on Shaelin

Hi Everyone,

Shaelin had an follow-up appointment in the CF clinic S/P being

diagnosed with RSV last week. His viral culture showed RSV but his

bacterial culture only showed rare staph and normal flora, no

pseudomonas, yeah! He is still coughing but much better. No longer

coughing at night or vomiting mucus. He is to remain on Bactrim for 1

more week and TOBI until his cough goes away and assuming it does not

return, back to normal. I am so glad he is better. I was really

frightened when he would waken from a sound sleep coughing and

choking on his secretions and I don't scare easily.

On another note, Shaelin will be 3 next week. As many of you know,

he is a foster child who my husband and I have had since he was 7

months old and finally, we are getting closer to being able to adopt

him. Hopefully we will be able to adopt him within the next 3-4

months. It has been a long road but he is worth it, cf and all.

Jeanne (foster Mom to Shaelin, almost 3 wcf)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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