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RE: ARRRRGGGG!!

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If I was close, I would give you a big hug!!! It just makes you want to

spit!! Lets hope that Cory is feeling much better soon.

Tina W., mother of Steph 18yo wcf

ARRRRGGGG!!

Hi All,

Sorry, but I just need to vent or I'm going to explode (what a mess). We

had

to go up to BIG hospital last friday due to Cory having pain that started in

diaphram area and moved around to back then up front to sternum and stayed.

This is how his reaction to sulfur based antibiotics started in Florida so I

was concerned about reaction to IV antibiotics he is currently on. He also

is

running low grade fever off and on but not steady. Doctors did not know for

sure what this could be but put him on prednisorne for possible inflamation

of

lining of lungs. They also extended his IV antibiotics for another week.

We

got home and got another delivery of meds that evening which we checked and

hooked up. Next day they ran dry before proper time so I called. Guess

what!!!

Meds were not correct. They had doubled concentration (disolved meds in 100

ml instead of 250 ml) We had to make another trip to hospital to get this

fixed. The nurse told me that I should have double checked to make sure. I

DID!!!!! The sticker on the meds stated it was 250 ml. They had put the

right

sticker on the wrong bag. Cory ended up spending next day on the toilet and

losing weight. He is OK but could have been a disaster.

I am soooo tired of medical system that tries to make parents/patients

responsible to their errors. Well, thanx for letting me vent. We are off

to BIG

hospital again to hopefully get this pic line removed. Cory is tired of

being

tethered.

Edi, mother to Cory 16 w/cf and 15 w/cf

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> I am soooo tired of medical system that tries to make

parents/patients

> responsible to their errors. Well, thanx for letting me vent.

We are off to BIG

> hospital again to hopefully get this pic line removed. Cory is

tired of being

> tethered.

>

> Edi, mother to Cory 16 w/cf and 15 w/cf

Edi,

You have enough to deal with. The medical system is really screwed

up and it stinks! Cory is lucky to have such a smart and alert Mom.

Glad you were watching out for him.

Sara

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This is a terrible mistake! You just opened my eyes to the fact the

we need to pay attention to Abby's meds. more carefully. I wouldn't

have expected that kind of an error.

I am glad that Cory will be okay.

Gale

> Hi All,

>

> Sorry, but I just need to vent or I'm going to explode (what a

mess). We had

> to go up to BIG hospital last friday due to Cory having pain that

started in

> diaphram area and moved around to back then up front to sternum and

stayed.

> This is how his reaction to sulfur based antibiotics started in

Florida so I

> was concerned about reaction to IV antibiotics he is currently on.

He also is

> running low grade fever off and on but not steady. Doctors did not

know for

> sure what this could be but put him on prednisorne for possible

inflamation of

> lining of lungs. They also extended his IV antibiotics for another

week. We

> got home and got another delivery of meds that evening which we

checked and

> hooked up. Next day they ran dry before proper time so I called.

Guess what!!!

> Meds were not correct. They had doubled concentration (disolved

meds in 100

> ml instead of 250 ml) We had to make another trip to hospital to

get this

> fixed. The nurse told me that I should have double checked to make

sure. I

> DID!!!!! The sticker on the meds stated it was 250 ml. They had

put the right

> sticker on the wrong bag. Cory ended up spending next day on the

toilet and

> losing weight. He is OK but could have been a disaster.

>

> I am soooo tired of medical system that tries to make

parents/patients

> responsible to their errors. Well, thanx for letting me vent. We

are off to BIG

> hospital again to hopefully get this pic line removed. Cory is

tired of being

> tethered.

>

> Edi, mother to Cory 16 w/cf and 15 w/cf

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