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Chrissy

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Chrissy -

I am glad you are doing so well. Did I miss the post where you explained

what all was done in your surgery? Also, what is a " peg " ?

Cecilia

Mesa, AZ

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Jean,

one of our members, Peg, raised some money to help her son have the

pancreatectomy. Maybe you can ask her if she can recommend fundraising

ideas for you and your daughter to help pay for the surgery.

Her full name is Peg Bates. I don't remember her email address though.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

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  • 4 weeks later...
Guest guest

> I'm sorry to read that you have been feeling heavy hearted. I know

> that feeling well. As we have discussed many times on this board,

> we will run through a full array of emotions. Feeling sad sometimes

> is perfectly normal. Allow yourself to think introspectively and

> dont feel the need to fight it, just let it flow.

>

> You have had a lot going on in your life lately as well. Good golly

> girl, you have been from south american, to south carolina to new

> york in as many months. Plus the wedding plans and having time with

> Austin. You have been very busy and now your body is saying slow

> down rest, take a little selfish time. I did that today, stole off

> to the beach by myself for about 3 hours, very relaxing.

>

> It ok for the lady to sing the blues Heidi, I know I have waled many

> times, if there is anything I can help with, just let me know.

> Love,

> Chrissy

Chrissy,

Your advice was accurate....I have had a lot on my plate these last few

months, and have been doing a heck of a lot more than I've been able to

under other circumstances all year. I took your advice and gave myself a day

off yesterday. A friend had invited Austin over for the day and overnight and

to go bowling. They asked me to go along for the bowling, too, but I declined,

thinking that even that might be a little more activity than I needed right now.

So I stole the afternoon to do nothing whatsoever, and went down to the dock

with a book, the radio and a huge drink cooler filled with raspberry tea. We've

got a nice lounge chair down there, an outside shower and an umbrella for

shade, if wanted. I use a crab cage as a side table to the lounge chair. It

only

took me about 10 minutes and I fell asleep.....must be the Neurontin, or

perhaps I needed it, I still don't sleep well at night! It's not quite as

soothing as

the beach with the ocean waves making their own music, but it's close. There

was quite a bit of boat traffic early in the afternoon, people heading to our

Bluffton sand bar, but that quieted down later in the day and then the dolphins

came up the river to feed, just a few feet from the dock. There were three in

one group and then later, two females guarding a baby came along behind

them. We see them all the time where we are, but I never tire of watching

them! I took a lazy swim and then came up to the house and showered. Even

though they said the heat index was supposed to be 105 degrees, it didn't feel

that bad and I did feel well rested.

All the pancreas uproar was settled down. It's strange that I'm getting these

one day, fierce episodes. Usually they last several days....but I'm not

complaining, LOL! I may do the same thing again today, since there aren't

any father's here at home to celebrate their day with. is in Oklahoma,

Bob is flying, and my dad's up in Lake Placid. The cards were sent, and the

phone calls will be made, but otherwise, no celebration here. I bought Bob a

large, two door storage cabinet for his new workshop. Since the garage/

workshop/greenhouse was finished last month he's gone out and bought

himself a lot of new " tools " , but no place to neatly store them. I thought that

would help keep the place neat and tidy.....hahaha......he's not much for

picking up things once he gets them out. He's got so many tools and things in

his truck box that once that's cleaned out, we could probably furnish a full

hardware store! Since we didn't have a place to keep them before, everything

ended up in the truck box, and there's tools and " stuff " in the bottom of it

that

haven't been seen in years. It got so bad that when he needed something,

instead of digging down through all the stuff in there, he'd run over to Home

Depo or Ace Hardware and just buy a new one!

Didn't mean to get off topic....you can see that I'm feeling more chipper today.

Thanks for understanding. I hope your day is going well, too.

Thinking good thoughts,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI

Note: All comments or advice are based on my personal opinion or

experiences only, and should not be substituted for a professional medical

consultation.

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  • 1 month later...
Guest guest

chrissy,

thanks. my back is slowly getting better, but I had a very bad week this

week. Lots of pain, diahrea and fatigue. Yes, I did have lot of fun on

my trips, only I think I'm paying for them now. Everything I eat comes

right back out again. I'm drinking a lot of Smart Water to give me the

electrolytes and minerals that I need, though. So, I do know what you

mean about trade offs.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

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wrote:

> I hope everybody is doing well. We have had some pretty foul weather

down here and looks like we are in for more. It doesn't take much for the

power to go.

Chrissy,

Did you lose your power? Everybody here was all worked up, anticipating the

wind, the rain, flooding and loss of power.....and it slid right by us without

much fuss. The wind chimes were kicking up some fast melodies this

morning, but that was about the extent of it and now the sun's shining and it

looks glorious outside.

I spent yesterday afternoon moving all our chaise's off the dock, taking down

the flag and the umbrella and securing everything in sight. The dockhouse

was full to the roof by the time I was done, and we had the boat already out of

the water. I'm so thankful that we didn't have any problems and no

evacuations for us this time. I was alone this time and not looking forward to

having to do the evacuation drill all by myself. My aunt and uncle live down in

Ft. Myers and I'm worried about them, there's been no word, so hopefully

that's good news!

There's always another one around the corner, right? I'm sorry that you've

been feeling so tired and down in spirit. Go out and enjoy this sunshine and

get your mind away from worries. When does start at COC?

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI

Note: All comments or advice are based on personal experience or opinion

only, and should not be subsituted for consultation with a medical

professional.

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  • 1 year later...

Chrissy,

When it rains, it pours, huh? I am sorry to hear about Maddy's

accident. We had a similar experience at 's 5th birthday

party. It was at a nearby park. He was running, fell, and threw

his arms out to catch himself. He broke one of his arms very badly.

Despite all the trauma he had been through in his life, I freaked

out. I think because this was so unexpected, and everything else we

had been through was par for the course. Anyway, left his

birthday party in an ambulance. Luckily, it happened towards the end

of his party anyway.

Kim C.

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  • 2 weeks later...

Hi Chrissy,

Still thinking of you & Madison.... Despite your woes with he, I

thought your morphine story was funny. acted similar to that

twice (one time before surgery when they gave his something & another

time when he broke his arm & they gave him something). It was very

amusing to watch him act drunk. At least it makes them happy!

Kim C.

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  • 2 weeks later...

Hi Chrissy!

God luck with Maddy, I myself had nursed a few

patients with TPN and I know how essential it is.

Maddy will be in my Prayers.

Elize

--- chrissynlou@... wrote:

> Maddy is getting TPN it's all the fats and lipids

> that the body needs to

> survive (she doesn't eat well enough right now to

> get that through feeding and

> cannot handle tube feedings) through a port, picc or

> central line. She is very

> malenutrition and needs this to help her gain

> weight.

> She will need to be on the TPN for a month so she

> will be well enough to go

> through surgery.

> Chrissy

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

______________________________________________________

Yahoo! for Good

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  • 4 weeks later...

That's great Chrissy! It sounds like things are looking up for you &

Maddy. And 6 lbs. in a month? That almost sounds like magic for our

kids!

Kim C.

> Maddy went to see her GI doc today ( this is the doc here in Philly

> that

> used to work in NY with Dr. H)

> Turns out Maddy is up to 24lbs 6oz. Thats a far cry from the 18lbs

> she was 4

> weeks ago. So now they are taking her off 24hour feeds and doing 12

> hour feed

> from 9-9. So she can run free all day!!!! Thats if her sugar holds

> up so

> keep your fingers crossed. This was the best doc appt ever LOL.

> Chrissy

>

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  • 3 weeks later...

The only negative to being at Cornell is the lack of refrigerator in

the room! But I'll stock up on those tuna packs that you liked. And,

ugh, diet ginger ale. Even the M & Ms. You will NOT starve if Jodie

Cals and I can help it! (But this time you are also getting fresh

fruit and veggies.)

Jodi Z

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