Which is the best medicines for CP

[Guest guest]

Hi Folks,

One more of my questions. I am new to the board within the last

week. My nickname is Boo, my real name is Becky. Does anyone have a

recommendation for the best pain releif from this hideous disease? I

can't go a single day without some level of pain. I have been crying

for over four hours straight now with a pain scale of 9 -10 out of

10. The percocet 10/325 does not work, it barely touches the pain.

It's 11:10pm here in Florida. I don't know how much longer I can do

this. Any information and/or advice that you have is greatly

appreciated, as I have an appointment with my pain doctor tomorrow.

I'll be lucky if I make it out of bed, let alone make it to work.

Boo

[Guest guest]

Becky,

The most effective pain medication for me has been the duragesic patch. I've

tried Oxycontin, Oxycontin IR, Dilaudid, Morphine, Percocet 10/325's (2 at a

time), Hydrocodone and Oxycodone. Everything, just about, except

Methadone, which isn't available in my state. After at least one month's trial

and error with each of these meds, the duragesic patch (I now use 75 mgs.)

with Oxycodone for breakthrough has worked the best for me. I used

Percocet for almost two and a half years prior to this.

You must remember that each individual has different reactions to medication,

and what works for me may be totally unsuitable for you or someone else. I

know a lot of people have allergies to certain narcotics, and can't use them at

all. Then there are others who feel " wired up " with one med, like Percocet,

where I could take a double-dosage and not have it affect me at all.

Any change or increase in your medication should be carefully controlled by

your physician, and you should be able to contact him or her on short notice if

you experience any unpleasant or undesirable side effects. Hopefully the

doctor that you meet with tomorrow will be helpful in setting up a good pain

maintenance regimen for you, or will refer you to a Pain Management

Specialist who can. Let us know how it works out tomorrow.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

SC & SE Regional Rep.

PAI

Note: All advice or comments are based on personal experience or opinion,

and shouldnot be substituted for consultation with a medical professional.

[Guest guest]

Hi Boo....my name is and I'm relatively new to this awful

illness as well. I take the same med as you've been prescribed and

it's prescribed for " every 6 hrs as needed. " Well, for the past 4

days it's been more like every 4 hours and I'm lucky if I make past

3 1/2 hrs sometimes. I sure hope that you've gotten some relief.

I've been awake (except for about 3 hrs this morning) since

yesterday and haven't even gotten out of bed until now to check the

posts. Please let us know how you're doing and I would be interested

to hear what they give you for pain relief. I have definitely taken

a turn for the worst in the last few days and have been about an

inch from going to the ER except from past experience I know they

won't be able to do much for me there. Please let us know when

you're able to how you're doing.

love and prayers to you and everyone here....I feel like this is

another extended family and sometimes just knowing I'm not alone

helps so much!

P.S. Sorry Karyn...I just remembered to delete the original post in

this message and I think I may have sent one w/o deletion of the

original first!!