Tobi side effects Re: Re: Culture's are back/........

[Guest guest]

Don't forget that some kids end up with ABPA as a result of being

on Tobi for extended periods. This is Allergic Broncho Pulmonary

Aspergillosis. It's a fungus that can grow in the lungs because of

the favorable conditions caused by the bacteria in there being

killed by the Tobi. Ricky has this and it is what landed him in the

hospital a year ago (woo, it's been a year since he was in!) for two

weeks, four solid days of it on continuous nebs.

We treat it with Sporanox (oral antifungal) and sometimes he has

to be on Orapred (steroid) for the wheezing and inflammation.

ABPA is a pretty stubborn thing to try to get rid of too!

On the good side... The first time Ricky cultured pseudonomnas it

was when he was two and he was immediately hospitalized and

put on IVs. We managed to get rid of it. Then he cultured it again

at five. I'm convinced that he got it from a kid in the hospital (who

he was in a room with, bad bad bad) but anyway, the major

problems he's had with mainly are the ABPA and its effects. The

pseudo itself hasn't affected him too much.

Just my $5.

Becky mom of Ricky 7 with CF and Andy 5 no CF