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Re: Bob Estes

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Hi Bob,

I also had a biopsy that was inconclusive, but my doc did not say I didn't

have RP. My blood work always looks great too. The diagnosis is based on 3

observations of the disease I believe. When I first presented, both of my

ears were red and swollen, my nose was red and swollen and I couldn't stop

coughing, that was 8 years ago and I've been treated by my Rheumy ever since.

Currently taking CellCept, Pred and Embrel - feeling pretty good - have been

able to taper the pred down to 8 mg. since being on the CellCept and

hopefully will be able to go down further, it's the lowest I have been for a

while. Don't give up, I know other people in this group had a hard time

getting a diagnosis, I was one of the lucky (?) ones that was diagnosed early

and treated early.

Patty B.

P.S. My maiden name is Estes - what a coincidence?

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Patty!!!! Gosh where have you been??? Did you finally look at your day

planner??? LOL

gosh I've missed you. Hope you and your family are still doing well. Bet

you are busy this summer.

Please post more often, just to say HI.

hugs

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Patty B.

This is from of La's dad. How long have you

been on the cellcept. this is what they gave her at

mayo and she is doing much better but still on 40 mg

of pred.

bob lindsay

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